oh Ali,
every time I hear more about you it brakes my heart,
but how you handle it is awesome,

I am also bent over like that, no one knows why, besides the pain, it would take me over, then I could not bring my self back up, or sit up right just like you explained, even in PT when I was going in for it, I could not get off the table after PT, the pain was so bad, I just would try and roll off, and then I would have to bend over the table for a bit to try to stand and walk out of there,
and it kept getting worse and worse, then my PT finely, said no more
it was a very bad burning pain, like I felt like my spine was just going to snap in to 2,
I was not getting any better but worse, then I was sent to a nero surgeon and was told I needed surgery, then my Ins co said no,
but what you are talking about being bent over, wow,
I do not know how you do it, but what ever it is don't stop its working for you
look at every thing you do, and still try and offer help,


hugs to you again
peace
Kelly

PS yes I did get PT and OT in home for a little bit ,,but again there was not much they could do for me
oh and to get that pass medicare, my Dr did not write about having RSD
so when they came in, they where stock to see me,
we did get that cleared up, there was no way was I going to let someone
work on me like that with out letting them know what I have,
I know my Dr GP was just trying to help, but not at my health

Kelly,
Forgive me.....I cannot remember (darn RSD)......are you on a muscle relaxant??? Did you start taking the Klonopin??? Have you noticed any difference since you did?? There are so many different meds that could help you......I just do not understand why they haven't tried you on them??? If you could at least get a prescription written, other people on the forum have posted suggestions in a different thread about contacting the drug companies directly. Hugs....

hello mominpain

yes I did start them, not sure if there is a diff yet, I am only taking one a night for a week and then 2 next week and then up to 3 a day
I am on Zanx, so they want to ween me off of that, also,

I am also on Balafax ugg can not spell it, I take 4 a day, 40 mg,

how are you doing today?

thank you
Kelly

I'm doing better than I was last night......I can move my ankle again.....my whole foot hurts and I think has tiny muscle spasms in it because I have tender spots in it. I'm going to try to cook dinner early tonight before the pain gets too bad (which it always does later in the day).

Are you on Baclofen for your muscle relaxant??? I've heard from many on this forum that is what works for them. I may look into getting that for myself. I think the Klonopin will help you once you get up on the higher dose. It is good for several different issues related to RSD. Talk later!!