[tshadow]

I know you all don't know me, as I have posted for years over at my primary diagnosis of right-sided neurological thoracic outlet syndrome.

But recently, my primary pain doc did not recognize a classic pic I had taken of myself (but couldn't get in to see him at the time) of RSD.

Hey, I need pics of RSD.

Reason? My doc said, "oh, I think you should see a dermatologist if that comes back..."

OMG. Does he really not know that RSD is a nerve disorder, and part of my diagnoses, and needs to be understood as he is my primary, pain mgt. doc? He is a D.O.

I asked him if he has other RSD patients, he said, "oh yeah, but their RSD doesn't look anything like this."

I had bright red sunburn from arms to chest to neck and face. I've seen some of your pics, and yes, we all look like this with an active RSD going on.

So please email me pics to tamaraleslie@hotmail.com. Please don't take down my email...I'm not worried, so many of you know my full name...I really need these pics. I'll not be using your name or anything other than the image to talk to him about RSD.

I'll copy this to RSD forum, but you know I've never posted over there, so they don't know me.

God bless you all and thank you if you are willing to do this for me. I really need help so that he does nto write me off as a loon.

Sitting at, or being "on" the computer triggers unbelievable nerve pain, so I choose only the TOS site, and only on rare occasions. But, I think I will try to pop in here and read your informative wisdom, as RSD is becoming my BIG problem, in addition to.

God bless you all.

[bobber]

If you go to the top of this rsd crps page and click on the 2nd thread,,you will get all the pics you want,,,

[loretta]

Hi tshadow and Welcome,
I don't know how to do that, but lots of friends on here do and I'm sure they will help you. It bothers me too to sit at a computer. Are you in a position to get a laptop? It is so much easier on our body. And communication with others is soooooo important. There really is a lot of information here, I've learned so much and try to share with others, RSD
Take care and stay in touch, loretta I'm 61, 14 years with RSD following surgery. Wasn't diagnosed for 4 years. Am full body now. Married, my hubby does so much around the house. My daughter and son in law just moved in in December. We are SO HAPPY, we don't want them to leave. We have a big house and get along so well. and they help clean. We've always been close, they have been married 9 years. They have a tiny miniature dog 9 lbs. and we have a 15 lb cat. Doggie wants to play, but kitty doesn't want to. They each have their own floors and we use baby gates to keep them apart. Honestly, these are my grandchildren! smile Take care, loretta

[Sandel]

Hi TS I remember you and it is very nice to see you posting again.
I have pictures and I will send some along shortly, they may not be what you need lol, I tend to be mottled purples and shiney and not so much the reds since my early days not since it all spread I think though it still turns lots of colors.. just dull and dark.
do have a friend who turns a lovely striking shade of red though and I believe she has pictures.. I will tell her about your doctor and see what she says.

Do look on the first page of this RSD forum, as Bobber says the picture/photo thread here has alot of photo's in it.

Hugs hon good luck, been there with the doc's attitude thing too.. most of us have in one way or another.


Sandra

[daniella]

Rsd can look somewhat normal though but be very painful. Can you see someone who deals with rsd? I have an rsd specialist I am working with but my gp's and I haev 3 are clueless. I think it is key to have someone who deals a lot with rsd in treatment though I know it can be hard to find. Also if you go on you tube there are videos too though I am not sure about printing that out. Sending thoughts and I am so sorry for your struggles

[Jomar]

tshadow asked me to correct her email address as there was a typo noticed.

tamaraleslie@hotmail.com

Any photos sent to her will be only to show her doctor for his personal knowledge & education on RSD.
"to be kept totally anonymously"

The reason she asked for them sent by email is so they are larger and easier to see and print out - with out having to re sized like with the Google or other searched images.