Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-19-2009, 03:21 PM #1
buckwheat
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Hi Folks,

It really is a wasted emotion, just think about it a few seconds.

I really had to make lemonade, instead of lemons. This is why alot of people that get well don't come back.

Start being an asset.

Hugs, Roz
 

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Old 02-19-2009, 03:27 PM #2
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I don't really see it as complaining.

I think many need to come to forums to vent and commiserate with others about the symptoms and feelings that come with chronic pain or illness.

To share with others that have the same or similar feelings and maybe that have family members that don't understand it all quite yet.

Some folks just like to have a place to visit and share.
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Old 02-19-2009, 03:36 PM #3
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Jo mar,

On a serious note we can talk to John. Have you gotten out of the RSD pain??? I really have, you mention you don't have it right, so how could you know???

I have to make copies of every thing I post. It's sad that I have had to dot my I's and cross my T's to help someone.

Much Love, Roz
 
Old 02-19-2009, 04:12 PM #4
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No i don't have RSD , but I read many of the posts and other forums here from people in pain, and some just want to learn about the condition they or a family member has..

People post for many reasons, many just want to talk with others.
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Old 02-19-2009, 04:29 PM #5
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Roz
you do have to please remember that not everyone is in the same situation and what works for some does not work for others

also members can use this forum to "complain" or vent or whatever provided it is within the guidelines

members should feel safe to post here nomatter whether they just need to let it out or whether they are rejoicing.

all are welcome

it is not for us to try to tell someone else how to handle their pain

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Old 02-19-2009, 05:06 PM #6
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Quote:
Originally Posted by buckwheat View Post
Hi Folks,

It really is a wasted emotion, just think about it a few seconds.

I really had to make lemonade, instead of lemons. This is why alot of people that get well don't come back.

Start being an asset.

Hugs, Roz
Is this not doing the same thing?

I always remember when pointing a finger, there are 3 poitning back at me.

Roz, if you don't like to read those type of posts, then skip them. If you think the same person does it all the time, put them on ignore.

People leave forums for many reasons. If they no longer have pain from RSD, then most likely they don't stay, because they don't need the support.

All members have the right to post what they feel, as long as it's within the guidelines.
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Old 02-19-2009, 05:35 PM #7
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Dear Folks,

I got well because, I have very competent MD'S.

Having a PPO with a secondary insurance, didn't cover alot of medical treatments.

Can you imagine going to an MD that spends 3 hours with you???

The right MD can help you, please don't give up. Hugs, Roz
 
Old 02-19-2009, 05:59 PM #8
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Dear Folks, & John & Co.

Most people want to matter that they lived at all. They really do.

For people with RSD it is vital more ways then one, alot of them are alot more time sensitive. In other words their life is shorten.

We really need to make good use of our time. I got several emails beging me to keep going that is why I stayed.

If I can get out of pain so can some of them, don't you think???

*edit*

If I can recover so can they, with the right MD. Much Love, Roz

Last edited by Chemar; 02-19-2009 at 06:31 PM. Reason: NT guidelines
 
Old 02-19-2009, 06:34 PM #9
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Roz

as mentioned before, this is a very diverse forum and not everyone has the same symptoms nor responds the same way to treatments

I am closing this thread now
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