Hello, Newby today. I have CRPS in my right foot/calf. Second Sciatic Nerve Block/Ultrasound. Going for second treatment tomorrow. Just wanted to say HI and hope that I will find people who can share the same issue's. I'm also interested in learning about other person's issues. Hope to see you here after my block tomorrow.

I have RSD in both legs & feet. I love the soft fuzzy socks! They are the only ones I can wear on my feet! As far as shoes go, fashion is out the door. I can only wear Crocks, one size to big. They don't press on my feet at all and I can slip them off & on. Soft downy pillows are a must!!! When I shop for pants of any kind I usually go with the danskin as well! The seams aren't to big and the fabric is very soft! They come in a variety of colors and thickness.

Hope this helps!!!

I am in total agreement on the crocs. I have been living in tights, when I can bear them and most of all the pants from columbia with soft fleece lining. Anything has to breathe well or it's out the door. Most of my closet is unused now and filling up with dresses. I haven't been able to wear pants for six months.

New to the forum, new to CRPS but hoping to help as much as I gain by participating here.

Gentle Hugs to all!

I have found that Target carries these ultra soft and light tights that are sold rolled up for 5 dollars. Since I have to dress up for work I find those are helpful and I wear shoes that don't have tops so my sensitive spot on my RSD foot isn't being agitated

I have RSD bilaterally on both hands, wrists and arms. I also have it on my incision sites of my SCS, neck, mid back, & lower back. Now it's spreading onto my right shoulder as well. I have found that jersey sheets by northern nights are the best. I have to have very soft fabrics in order to sleep or even to wear. I found a pillow that is the best ever too and its by Soft tex.

I tell every one I can do everything I use to do just slower and with coushins!
the right pillows on a trip are VERY important. The vibrations of the road can be an issue for me

Hello you Dear Mom, I can tell that you want to help someone so very much to find comfort. God bless you Mothers, you are all so special.
I am new here, and have 21 years under my belt living with RSD.
You want to be prepared...RSD is a make it up as you go along thing most of the time. We feel different everyday, so better some worse. Weather does play a big role and what you ate the day before. How much activity you had or lack of it the day before..it follows no rules.
Epsom salts not only feels good it is good for you full of Magneisium. On real bad days I soak my feet in wild mint leaves that I find in the woods.

I am to tired tonight to go any more. Please ask anything you want to or need to. I have big ears and shoulders.
God bless you MOM. RSD with LUV, Andrea

Wow lots of interesting tips! Think I need to go thru and read in the morning when I'm more alert and have my handy dandy note book with me to write them down!.

Thought I'd share my little trick I use for for my arm. I have Ulnar Nerve damage, RSD, CPRS, Nueropathy, etc. in my right arm. My arm despises the cold of any sort and lets me know it immediately, when the slightest cool breeze or slight drop in tempature. Basically my arm starts to spasm which then sets of "zingers" which then sets of the pins and needles to spread from my pinkie and ring finger to my whole arm.

So in order to avoid this, I went on a search after watching a football game and saw some players with this thing on their arm(s) and also, remember seeing basketball players wear them too. But the sleeves those athletes wear are made of neoprene, which can be very tight, which for me is not a good thing cause even sweaters and sweatshirts irritate my arm and also those sleeves are very expensive. But I stumbled upon this cool thing called a "tattoo Sleeve" on ebay. Its basically a cotton sleeve, almost like its cut off from a long sleeve shirt except the top that goes up on the bicep has an elastic that can be stretched out ( I had my husband wear the sleeves for me to stretch them out since I have little arms) and the part that goes by your wrist is neatly cuffed. I believe they come in different sizes but not positive, its been years since I ordered them. I cut a whole at the seam for my thumb to go thru so the sleeve covers my hand and part of my fingers. I bought 2 sets of 2 for $7 or $8 ea set which included shipping. That was 5yrs ago. They were white and I kept one white and dyed the others different colors to go with my wardrobe. I also, find it helps me with my anxiety when I do venture out in public especially on warm days when everyone is wearing t-shirts and tank tops, my sleeve stands out! It makes me feel like my arm is wrapped in a secure blankie but unfortunately it doesn't stop unruly kids from running into you or ramming a stroller or a shopping carriage into my arm either.

I am just now needing new ones as these are worn almost everyday and they are machine washable and machine dry-able too! I am currently collecting remanents from material I buy for other sewing projects to try and make my own. not sure how well it will go as I wasn't a good sewer before my injury and am a worse one since, worst case I buy some new ones.

Hope my tip helps someone!

TTFN The Scrapoholic aka Jill

I would ad ice to this but be very careful. You don't want to freeze the skin. I also use only 700 thread count and up. I know they are expensive but they allow me to lay right against the sheets and it helps. heat is my enemy but everyone is different

It is known that ice is the worst thing you can put on an RSD affected area. It is known to cause spread and/or make it worse. So be careful about using ice.