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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   RSD "lifesavers" (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/78732-rsd-lifesavers.html)

3fingers 11-06-2011 12:47 PM

I thought it might be helpful for people to know that using micro fiber towels or having a micro fiber glove, as I have RSD of the fingers on my left hand is helpful. I don't know what else there is to help with this condition of the fingers...does anyone know of anything that could help me.

trinicossi 12-24-2011 11:40 AM

Celliant Socks
 
I bought Celliant socks for my daughter who has RSD and she lives in them. They have really helped her. They are specially designed to alleviate foot and leg pain for diabetics. You can also get boxers, gloves etc.**

rbbossong 02-28-2012 09:35 PM

Quote:

Originally Posted by MominPainRSD (Post 470366)
Hi all!! This forum has been such a wealth of information and support for me already along my relatively brief road with RSD. I respect your wisdom and experience in so many ways and thought it would be interesting to hear from everyone as to what you each find to be invaluable in your day to day life as you deal with your RSD.

I know many of you have mentioned Epsom salts, heating pads, down pillows in car rides, etc.....but are there specific brands or types of things or fabric contents that you find most soothing or beneficial to you??? I would like to start acquiring an RSD "survival pack" of items (preferably finding things on sale a little bit along) that might help and come in useful when the need arises (or better yet......BEFORE the need arises!).

I thought it could be useful to read each others experiences and what works for them, and perhaps we could ALL pick up a few tips we hadn't thought of before.

Thank you all in advance for responding!! :grouphug:

Hi. I have RSD in my legs. Anything that rubs my legs hurts. So high count sheets, or flannel. Heat is your friend. Sitting in the sun will do wonders for you. (They found that people in the North, who don't get much sunlight,actually are more prone to RSD, go figure) Body pillow with feathers in a flannel cover....LOVE.

SonshineEvie 03-09-2012 07:39 PM

Life savers for me...
 
Hi everyone! Love this post! I have CRPS in my foot and it is spreading to the other foot and up my legs (ankle sprain began it all). I find that I can wear the Smart Wool socks that only cover the bottom of my foot and a little on the side (I think they are called "no show"). They keep my icy foot warm and don't over rub my foot. Also, I LOVE my Ugg boots. They are amazing for desensitization. I wear them around with no socks and they softly rub on my feet. I also have found that softer denim works and I fashionably roll up the bottoms. It's nice that that look is in right now! ;)

Joyfully living in hope, Evie :)

loci1967 03-14-2012 03:46 PM

New to RSD
 
I have severe RSD/CRPS in my right wrist/arm and it seems to be spreading. My doctor is trying all different kinds of meds for me but nothing seems to help the pain. I am losing mobility in the fingers on my right hand and I am seeing some contracture. I am at my wits end with this. Is there anything out there that will help me alleviate some of my pain.

Lupus777 03-24-2012 12:30 AM

Hi everyone, I have trouble wearing sleeves because of the rsd in my right arm. My mom went crazy this winter and bought me shirts of all types to find something i could wear. What she did find that worked are sleeves made for runners to wear when it is cold outside. If i wear them i can put a sweater or other shirt or coat on top of them. I may not be able to wear it all day but at least an hour ot two. Good luck everybody.

whereisfunkytown 04-08-2012 07:33 PM

Socks made for people w/diabetes: department stores and mobility stores are great places to find these. They have a cushioned sole, loose leg that manages to stay up. (I also cut the top trim off cuter socks and that does the trick). And I always carry 2-4 extra pairs of socks, changing them whenever my foot pain increases. The fresh dryness helps.

Converse shoes: the regular canvas ones (low or high tops). These don't arch in the ball, have enough rubber cushion to manage city living, and the lace-up canvas upper means they're adjustable, made with sweat-free fabric. The high tops are actually most comfy because they result in no pressure applied around ankle (they don't need to be secured tightly). Warning: I've bought the knock-offs and they don't have the cushion that real Chucks do. But, most stores that specialize in board shoes have great sale racks: I got my favourite pair for 38 bucks two years ago and they are still in great shape. Once in awhile they also release faux fur lined editions: I'm waiting impatiently for those to return.

I wear skirts and tights almost every day and the only 'dress shoes' I own are uber-cheap mary janes from China, much like the Chinese shoes of my childhood, but with a thicker rubber base/heel: actually wonderful for CRPS feet and so I am using them sparingly until I find a local supplier. But most of the time I wear my Converse w/skirts, or cozy boots in winter. The tights mean absolutely zero friction from pants brushing and my skirts are pretty short. This uniform has helped me tremendously, and it's cute too so I feel a little more 'in the world'.

My spinal cord stimulator. For all the horror stories there are success stories too. Otherwise they wouldn't spend a fortune dropping them into people. If you get the opportunity, try it. I'd give up everything in my life, and everyone for that matter, before I'd surrender my SCS.

My cat. Having a silky soft animal that doesn't require walking, doesn't jump up on your legs, doesn't need to be picked up, is soothing beyond description. Get yourself to your local shelter and adopt a big boy (adult males are most easygoing/least demanding)

mommystime2 04-10-2012 12:05 PM

comfort and questions
 
i am new to crps but i have a chronic back condition so some helpful things i have found are jersey cotton bottom sheet, no top. also pillowcase of jersey cotton. soft flannel ones are nice too. everything washed with downey softner. my blanket is down filled from llbean best ever. i also have carpel tunnel in both hands. so i have special exos brand remodel braces that include my thumbs. my crps is in right arm, hand, shoulder so my qustion is wear can buy soft comfy button up shirts? my husband helps put tshirts on me but the pain is unbearable at times. i wear danskin pull on cotton pants from walmart. i hate wearing anything tight, why did they invent bras???? lol i found some that button in front which is much easier tho!

renhenne 04-21-2012 01:20 AM

I have RSD in both legs & feet. I love the soft fuzzy socks! They are the only ones I can wear on my feet! As far as shoes go, fashion is out the door. I can only wear Crocks, one size to big. They don't press on my feet at all and I can slip them off & on. Soft downy pillows are a must!!! When I shop for pants of any kind I usually go with the danskin as well! The seams aren't to big and the fabric is very soft! They come in a variety of colors and thickness.

Hope this helps!!!:grouphug:

agirl 04-23-2012 03:00 AM

ode to columbia lined yoga pants and crocs
 
I am in total agreement on the crocs. I have been living in tights, when I can :eek: bear them and most of all the pants from columbia with soft fleece lining. Anything has to breathe well or it's out the door. Most of my closet is unused now and filling up with dresses. I haven't been able to wear pants for six months.

New to the forum, new to CRPS but hoping to help as much as I gain by participating here.

Gentle Hugs to all!
:hug:


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