Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 11-06-2011, 12:47 PM #121
3fingers 3fingers is offline
Junior Member
 
Join Date: Oct 2011
Location: Rockland County, NY
Posts: 16
10 yr Member
3fingers 3fingers is offline
Junior Member
 
Join Date: Oct 2011
Location: Rockland County, NY
Posts: 16
10 yr Member
Default

I thought it might be helpful for people to know that using micro fiber towels or having a micro fiber glove, as I have RSD of the fingers on my left hand is helpful. I don't know what else there is to help with this condition of the fingers...does anyone know of anything that could help me.
3fingers is offline   Reply With QuoteReply With Quote

advertisement
Old 12-24-2011, 11:40 AM #122
trinicossi trinicossi is offline
New Member
 
Join Date: Dec 2011
Posts: 1
10 yr Member
trinicossi trinicossi is offline
New Member
 
Join Date: Dec 2011
Posts: 1
10 yr Member
Default Celliant Socks

I bought Celliant socks for my daughter who has RSD and she lives in them. They have really helped her. They are specially designed to alleviate foot and leg pain for diabetics. You can also get boxers, gloves etc.**
trinicossi is offline   Reply With QuoteReply With Quote
Old 02-28-2012, 09:35 PM #123
rbbossong rbbossong is offline
New Member
 
Join Date: Feb 2012
Posts: 3
10 yr Member
rbbossong rbbossong is offline
New Member
 
Join Date: Feb 2012
Posts: 3
10 yr Member
Default

Quote:
Originally Posted by MominPainRSD View Post
Hi all!! This forum has been such a wealth of information and support for me already along my relatively brief road with RSD. I respect your wisdom and experience in so many ways and thought it would be interesting to hear from everyone as to what you each find to be invaluable in your day to day life as you deal with your RSD.

I know many of you have mentioned Epsom salts, heating pads, down pillows in car rides, etc.....but are there specific brands or types of things or fabric contents that you find most soothing or beneficial to you??? I would like to start acquiring an RSD "survival pack" of items (preferably finding things on sale a little bit along) that might help and come in useful when the need arises (or better yet......BEFORE the need arises!).

I thought it could be useful to read each others experiences and what works for them, and perhaps we could ALL pick up a few tips we hadn't thought of before.

Thank you all in advance for responding!!
Hi. I have RSD in my legs. Anything that rubs my legs hurts. So high count sheets, or flannel. Heat is your friend. Sitting in the sun will do wonders for you. (They found that people in the North, who don't get much sunlight,actually are more prone to RSD, go figure) Body pillow with feathers in a flannel cover....LOVE.
rbbossong is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
SandyRI (03-25-2012)
Old 03-09-2012, 07:39 PM #124
SonshineEvie SonshineEvie is offline
Junior Member
 
Join Date: Jan 2012
Posts: 6
10 yr Member
SonshineEvie SonshineEvie is offline
Junior Member
 
Join Date: Jan 2012
Posts: 6
10 yr Member
Default Life savers for me...

Hi everyone! Love this post! I have CRPS in my foot and it is spreading to the other foot and up my legs (ankle sprain began it all). I find that I can wear the Smart Wool socks that only cover the bottom of my foot and a little on the side (I think they are called "no show"). They keep my icy foot warm and don't over rub my foot. Also, I LOVE my Ugg boots. They are amazing for desensitization. I wear them around with no socks and they softly rub on my feet. I also have found that softer denim works and I fashionably roll up the bottoms. It's nice that that look is in right now!

Joyfully living in hope, Evie
SonshineEvie is offline   Reply With QuoteReply With Quote
Old 03-14-2012, 03:46 PM #125
loci1967 loci1967 is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
loci1967 loci1967 is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
Default New to RSD

I have severe RSD/CRPS in my right wrist/arm and it seems to be spreading. My doctor is trying all different kinds of meds for me but nothing seems to help the pain. I am losing mobility in the fingers on my right hand and I am seeing some contracture. I am at my wits end with this. Is there anything out there that will help me alleviate some of my pain.
loci1967 is offline   Reply With QuoteReply With Quote
Old 03-24-2012, 12:30 AM #126
Lupus777's Avatar
Lupus777 Lupus777 is offline
Junior Member
 
Join Date: Mar 2012
Location: Barrington, NJ
Posts: 7
10 yr Member
Lupus777 Lupus777 is offline
Junior Member
Lupus777's Avatar
 
Join Date: Mar 2012
Location: Barrington, NJ
Posts: 7
10 yr Member
Default

Hi everyone, I have trouble wearing sleeves because of the rsd in my right arm. My mom went crazy this winter and bought me shirts of all types to find something i could wear. What she did find that worked are sleeves made for runners to wear when it is cold outside. If i wear them i can put a sweater or other shirt or coat on top of them. I may not be able to wear it all day but at least an hour ot two. Good luck everybody.
Lupus777 is offline   Reply With QuoteReply With Quote
Old 04-08-2012, 07:33 PM #127
whereisfunkytown's Avatar
whereisfunkytown whereisfunkytown is offline
Junior Member
 
Join Date: Feb 2011
Location: Vancouver, BC, Canada
Posts: 18
10 yr Member
whereisfunkytown whereisfunkytown is offline
Junior Member
whereisfunkytown's Avatar
 
Join Date: Feb 2011
Location: Vancouver, BC, Canada
Posts: 18
10 yr Member
Heart

Socks made for people w/diabetes: department stores and mobility stores are great places to find these. They have a cushioned sole, loose leg that manages to stay up. (I also cut the top trim off cuter socks and that does the trick). And I always carry 2-4 extra pairs of socks, changing them whenever my foot pain increases. The fresh dryness helps.

Converse shoes: the regular canvas ones (low or high tops). These don't arch in the ball, have enough rubber cushion to manage city living, and the lace-up canvas upper means they're adjustable, made with sweat-free fabric. The high tops are actually most comfy because they result in no pressure applied around ankle (they don't need to be secured tightly). Warning: I've bought the knock-offs and they don't have the cushion that real Chucks do. But, most stores that specialize in board shoes have great sale racks: I got my favourite pair for 38 bucks two years ago and they are still in great shape. Once in awhile they also release faux fur lined editions: I'm waiting impatiently for those to return.

I wear skirts and tights almost every day and the only 'dress shoes' I own are uber-cheap mary janes from China, much like the Chinese shoes of my childhood, but with a thicker rubber base/heel: actually wonderful for CRPS feet and so I am using them sparingly until I find a local supplier. But most of the time I wear my Converse w/skirts, or cozy boots in winter. The tights mean absolutely zero friction from pants brushing and my skirts are pretty short. This uniform has helped me tremendously, and it's cute too so I feel a little more 'in the world'.

My spinal cord stimulator. For all the horror stories there are success stories too. Otherwise they wouldn't spend a fortune dropping them into people. If you get the opportunity, try it. I'd give up everything in my life, and everyone for that matter, before I'd surrender my SCS.

My cat. Having a silky soft animal that doesn't require walking, doesn't jump up on your legs, doesn't need to be picked up, is soothing beyond description. Get yourself to your local shelter and adopt a big boy (adult males are most easygoing/least demanding)
__________________
One cannot learn unless those who know tell.

Last edited by whereisfunkytown; 04-08-2012 at 07:38 PM. Reason: forgot something
whereisfunkytown is offline   Reply With QuoteReply With Quote
Old 04-10-2012, 12:05 PM #128
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
mommystime2 mommystime2 is offline
Member
 
Join Date: Apr 2012
Posts: 152
10 yr Member
Default comfort and questions

i am new to crps but i have a chronic back condition so some helpful things i have found are jersey cotton bottom sheet, no top. also pillowcase of jersey cotton. soft flannel ones are nice too. everything washed with downey softner. my blanket is down filled from llbean best ever. i also have carpel tunnel in both hands. so i have special exos brand remodel braces that include my thumbs. my crps is in right arm, hand, shoulder so my qustion is wear can buy soft comfy button up shirts? my husband helps put tshirts on me but the pain is unbearable at times. i wear danskin pull on cotton pants from walmart. i hate wearing anything tight, why did they invent bras???? lol i found some that button in front which is much easier tho!
mommystime2 is offline   Reply With QuoteReply With Quote
Old 04-21-2012, 01:20 AM #129
renhenne renhenne is offline
Junior Member
 
Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
renhenne renhenne is offline
Junior Member
 
Join Date: Aug 2010
Location: Florida
Posts: 43
10 yr Member
Default

I have RSD in both legs & feet. I love the soft fuzzy socks! They are the only ones I can wear on my feet! As far as shoes go, fashion is out the door. I can only wear Crocks, one size to big. They don't press on my feet at all and I can slip them off & on. Soft downy pillows are a must!!! When I shop for pants of any kind I usually go with the danskin as well! The seams aren't to big and the fabric is very soft! They come in a variety of colors and thickness.

Hope this helps!!!
renhenne is offline   Reply With QuoteReply With Quote
Old 04-23-2012, 03:00 AM #130
agirl agirl is offline
New Member
 
Join Date: Apr 2012
Location: Wisconsin
Posts: 4
10 yr Member
agirl agirl is offline
New Member
 
Join Date: Apr 2012
Location: Wisconsin
Posts: 4
10 yr Member
Red face ode to columbia lined yoga pants and crocs

I am in total agreement on the crocs. I have been living in tights, when I can bear them and most of all the pants from columbia with soft fleece lining. Anything has to breathe well or it's out the door. Most of my closet is unused now and filling up with dresses. I haven't been able to wear pants for six months.

New to the forum, new to CRPS but hoping to help as much as I gain by participating here.

Gentle Hugs to all!
agirl is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Lifesavers...AFSP Newsletter Alffe Survivors of Suicide 1 02-23-2009 06:47 PM
Pets are therapeutic and lifesavers: tjsmith890 Pets & Wildlife 6 04-08-2008 12:30 PM


All times are GMT -5. The time now is 07:39 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.