My mother in-law ordered me socks online. They say thorlo over the toe area. I believe she ordered me ones in the edema category. My crps is all over the top of my right foot and on the move up my calf. They are a little pricier than normal socks but they are the only socks I can bear. I found they also help weaken the burning sensation if something touches that foot while I a wearing them. These socks and slippers are the only thing I can bear touching the top of my foot. **

Aspercreme. That's the only topical item that has ever helped. Tames down the "Firey" pain.

Gabapentin was my life saver. Clothes are clothes they will always cause pain there's nothing anyone can do about that.

heather

My faith in the promises of God to heal me is what sustains me.

Heat Heat Heat
Good things:
1. Heated baggies of beans or rice in a soft fabric
2. Egyptian Cotton sheets the highest thread count I could find. 760?
3. lidoderm patches (stay still)
4. Heating pads and blankets
5. silk - silk like nighties
6. never have elastic bands on anything
7. epsom salt baths!!!!
8. hot running water
9. warm purring cat as long as she doesn't walk or kneed.
10. Hot sunshine


Evil things:
1. Ice
2. tempid-cool-cold water
3. breezes ?why? does anyone know why the wind hurts?
4. walking kitty paws
5. repetitive kitty pokes to get attention
6. stress
7. no sleep
8. car vibrations and movements
9. freezer isle
10.pants. (except harem pants or mc hammer pants)

If you still drive, drive something you're actually are comfortable in. I know that the price at the pumps are up there but when it comes down the brass tacs, you're the only one that matters. I'm a big dude, so I drive a truck. I lifted it slightly so it's easier to get in and out of. and I swear it's like driving around a la-z-boy lol!

Lose clothing. I have RSD in my right calf area so I don't wear pants. Shorts only. Usually cargo and something that isn't to restraining like khakis I look goofy at weddings and funerals but whatever lol

Comfortable shoes! I like Red Wing myself. They have some nice inserts as well. I know that they're kind expensive, but they last for*******ever.

Hope this helps!

J.

I know right!?!

one of those little quark... we all share kinda like ice or rough clothing.

Has anyone tried the pajama jeans? I cant wear pants as this just plain hurts all the while I have them on. I ordered some dresses from zulily can't wait till they get here. Can any one wear flip flops or sandals? Ladies this next question is for you. How do you shave your legs? Help please!!!

Dresses and skirts make me happier too. Chiffon is really light and nice if you find something you like in that material, I advise getting it.

Pants when I have to wear them I make / buy pallazo pants really big fluffy legged. As for jeans, I can only wear them on my best days. Even then walk through the door of my home and off they come. Stretchy hurts so I buy those type of things a size larger then normal.

Shaving legs it took time...

I should say this first get Coochy Cream http://www.coochyshavecreme.com/ or a similar thing. I advise the greentea. It makes the friction of shaving much much easier to endure.
Yes I know embarrassing to go into an adult store ect. but this is one of the things that makes it possible for me to shave my legs/ have my legs shaved depending on pain that day.

That and a Blade with five razors and a large head to reduce irritation and condensing the pressure on a small area. Always have a sharp razor never use if it starts pulling. This is what I buy http://www.gillettevenus.com/en-US/p...nsitive-razor/

I normally start with sitting on my bath stool under really hot water to get my leg as relaxed as possible and desensitized. Then from bottom first I start shaving that way if I need to stop, normally at least my lower legs are done.

When I first started to shave again I had to shave with the grain now I can shave against like normal. It just took a lot of desensitizing.

I remember, I told the ssi/ssd doctor at my evaluation, that I could finally shave my legs and he seriously didn't get what an accomplishment that was.


Flip flops complicated answer: no because they push you off balance, by making you tense and curl your toes. Yes because some times with swelling they are the only thing you can get on. Until my honey bought me these http://bedrocksandals.com/ . I had trouble with flipflops.

Good Luck!

My partner suffers from CRPS in her right hand/arm. As previously mentioned she also uses a sleeve style support bandage when going outside. Not tight but not so loose as to move around. This has its advantages. It really helps fend off those evil breezes, whether from nature or vehicles driving past etc.

She deliberately does not disguise it as anything other than a bandage so that it acts as a visual cue to those unaware of here condition. When bumped on her affected limb (in the street/shop or interacting with younger members of the family who forget/can't understand) she is often rendered unable to move or speak for a while, often just sitting down in unusual places.

People naturally try to help someone who appears injured. For this reason she also keeps a card with a short explanation of her problems in the front of her purse that she can give to people when this happens. It says "I have a painful right arm (CRPS). Please do not touch it. I do not need an ambulance and will be ok soon. Please call (this number) using my phone. Thank you for wanting to help."

I don't know how common this reaction to stimuli is with the rest of you but she found it has stopped incidents where she has been hurt further simply by another's kindness.