Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-24-2009, 04:48 PM #11
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MsL, I have one of those microwave bean bags too! I forgot all about that. My friend got it for me as a xmas present a couple of years ago. It's one that filled with herbs, I think it's lavender and something else. It really feels good on spots that are really hurting sometimes. I also get aromatherapy at the same time and it's quite relaxing! Thanks for putting it down. Is yours a scented one too or just one of the plain?

Hugs,

Karen
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Old 02-24-2009, 05:05 PM #12
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Originally Posted by GalenaFaolan View Post
MsL, I have one of those microwave bean bags too! I forgot all about that. My friend got it for me as a xmas present a couple of years ago. It's one that filled with herbs, I think it's lavender and something else. It really feels good on spots that are really hurting sometimes. I also get aromatherapy at the same time and it's quite relaxing! Thanks for putting it down. Is yours a scented one too or just one of the plain?

Hugs,

Karen

Hi Karen,

I have a couple, one plain and the other with lavender. I love them both and often use them both, especially on day like this. We have a terrible cold rain right now and it gets deep into my bones so I am off to use my hot wax machine on my foot right now because of that. The hot wax is the only way to get deep penetrating heat for me. I know some here probably can't handle that intensity of that type of temperature but I have always loved it, even at my worst most sensitive state. Once I get past the first dip it is all good from there.

MsL
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Old 02-24-2009, 06:13 PM #13
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idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
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Old 02-24-2009, 11:51 PM #14
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idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
Just last night, and everynight for that matter, it gets kinda warm sometimes on the Left Coast, so when I turn on the fan in my bedroom, I HAVE to hide my arm under the sheets or it painfully wakes me up! Great idea!
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Old 02-24-2009, 11:53 PM #15
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andrea
i also have the same problem with the wind and even cealing (sp) fans in the house. i always at the house have blankets or sweat shirt. but last summer i noticed that i stayed warmer its like my rsd has days where i feel so hot and then days were its like antartica only in my body lol you sleve things are ingenius i cant wear gloves or stocking or pantyhose period so i have trouble in the winter thank god i live in the south lol

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Old 02-25-2009, 10:14 AM #16
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That was a great idea about the mens white Hanes socks. I'll look for those. Do they have seams on the toes that bother you??? That is my problem with most of my socks......my TOES hurt so much and the seam feels awful on them.
There is one seam across the front of the toes, but it is surprisingly soft as well. No seam at the heal area, though. Like most men's socks, they fit a wide range of feet with one size, so I find them roomy enough that the front ends are not pulled tight against my toes.

As far as sheets, there is a "new" (to me, anyway) type that are made of bamboo fibers. My daughter got two sets for wedding gifts and she claims they are very comfortable. I have not tried them, but it is very chic right now. I believe they are somewhat pricy, so I wouldn't suggest buying them unless you try them somewhere or get other recommendations. Has anyone tried the bamboo sheets?

Mike
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Old 02-25-2009, 12:06 PM #17
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Has anyone tried the bamboo sheets?

Mike
I saw some bamboo T shirts at a little shop on the coast - they were very soft. I was surprised at that.
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Old 02-25-2009, 04:11 PM #18
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Hi Mom!

Fresh organic fruit helps me to feel better!

I soak my feet in Epsom salts. I want a bath but the tub is upstairs and I haven't been up there since November just before I fell and hurt my ankle..My dream would be a nice
long warm Epsom salts soak in a bath tub.. That would be heaven..

Soft clothing are a big help.. In bed last night I realized just how much the sheets and the comforter weigh.. It felt like they were pounding me down in the bed.. I was cold but I still kept throwing them off me..

I just started Cranio Sacral Therapy..Here is a link about it..
Oh my goodness, this helps so much.. I have never experienced such relaxation and it helps my pain levels..

http://www.spineuniverse.com/display...rticle784.html

Wishing everyone a pain free evening..

Pauliana
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Old 02-25-2009, 08:43 PM #19
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pauliana
i also have had cranial sacriol and it did help alot the problem is finding some that knows how to do it exacatlly i also know that they use it for pelvic pain issues too . i have been tryin to find someone here that does it..


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Old 02-25-2009, 08:49 PM #20
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Can anyone enlighten me as to why my post was removed??? I posted about the only type of sock I could stand to wear.

DebbyV
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