NeuroTalk Support Groups

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-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   RSD "lifesavers" (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/78732-rsd-lifesavers.html)

annabanana123 05-01-2019 07:12 AM

My latest helpers:

Daily meds: lyrica, celebrex (AM & PM) then hydrocodone & tizanidine (PRN, up to 2x/day), lidocaine patches (up to 3 at a time, on the areas that are the worst at any given moment)

PT/Exercise: Desensitization therapy, light exercise (water aerobics, light yoga, walking the dogs, even household chores) but also listening to my body and cutting myself slack when needed

Other: Heating pads, heated blankets (I keep both at home and at work, as well as upstairs and downstairs in my house), hot baths, fuzzy socks, soft clothing and/or shorts, distraction therapy (family, friends, solitaire/yahtzee on my phone, social media, reading, tv, etc).

To the person who said loose shirts - check out the Ava & Viv section at Target - in the plus size area. even if you're not plus sized they are really loose through the stomach and a 0x works well even if you're a size 8 or something. And they're $8 each and super soft and lightweight.

kitkat63 07-06-2022 09:47 AM

Hi! I'm new here, I just found this site, but I have CRPS in my left ankle that has since spread to my whole leg and for me a portable TENS unit is an absolute miracle worker. My pain management doc was able to prescribe it, and I love it so, so much!

CRPSbe 07-09-2022 08:52 AM

Quote:

Originally Posted by kitkat63 (Post 1300061)
Hi! I'm new here, I just found this site, but I have CRPS in my left ankle that has since spread to my whole leg and for me a portable TENS unit is an absolute miracle worker. My pain management doc was able to prescribe it, and I love it so, so much!

I am glad that is all it takes. Maybe they discovered it quite early on. For a lot of us TENS doesn't even touch it.

I had TENS. My God. I could not hack the vibrations, but did have it in physical therapy (the monster TENS machine of all TENS machines) for 8 months, without any success, on the contrary, my upper leg atrophied... totally!

MiMi_of_2 12-25-2022 06:53 AM

Nail Care/Pedicure Ideas, Solutions, etc.
 
Hi! New here! RSD for 17+ years.

This may not be the right thread for this, but I really need some lifesaving ideas for nail care 💅 pedicure solutions. I haven't been able to get a pedi in forever...sigh. I'm lucky to get thru the basics of nail care on my feet. I've decided I'll be DARNED If I'm gonna completely give up on at least having **twinkly** toes!

Any "tips" lol on nail care or pedicure would be more than appreciated!

Thanks, ya'll!
Merry Christmas! 🎄

christinejarvis2010 05-03-2024 01:13 AM

Quote:

Originally Posted by annabanana123 (Post 1275015)
My latest helpers:

Daily meds: lyrica, celebrex (AM & PM) then hydrocodone & tizanidine (PRN, up to 2x/day), lidocaine patches (up to 3 at a time, on the areas that are the worst at any given moment)

PT/Exercise: Desensitization therapy, light exercise (water aerobics, light yoga, walking the dogs, even household chores) but also listening to my body and cutting myself slack when needed

Other: Heating pads, heated blankets (I keep both at home and at work, as well as upstairs and downstairs in my house), hot baths, fuzzy socks, soft clothing and/or shorts, distraction therapy (family, friends, solitaire/yahtzee on my phone, social media, reading, tv, etc).

To the person who said loose shirts - check out the Ava & Viv section at Target - in the plus size area. even if you're not plus sized they are really loose through the stomach and a 0x works well even if you're a size 8 or something. And they're $8 each and super soft and lightweight.

I would be very interested to hear more about your experiences and reccomendations


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