Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 05-01-2019, 07:12 AM #221
annabanana123 annabanana123 is offline
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annabanana123 annabanana123 is offline
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My latest helpers:

Daily meds: lyrica, celebrex (AM & PM) then hydrocodone & tizanidine (PRN, up to 2x/day), lidocaine patches (up to 3 at a time, on the areas that are the worst at any given moment)

PT/Exercise: Desensitization therapy, light exercise (water aerobics, light yoga, walking the dogs, even household chores) but also listening to my body and cutting myself slack when needed

Other: Heating pads, heated blankets (I keep both at home and at work, as well as upstairs and downstairs in my house), hot baths, fuzzy socks, soft clothing and/or shorts, distraction therapy (family, friends, solitaire/yahtzee on my phone, social media, reading, tv, etc).

To the person who said loose shirts - check out the Ava & Viv section at Target - in the plus size area. even if you're not plus sized they are really loose through the stomach and a 0x works well even if you're a size 8 or something. And they're $8 each and super soft and lightweight.
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"Thanks for this!" says:
full_moons_of_hope (07-06-2019), Lyla Grace (11-04-2020)

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Old 07-06-2022, 09:47 AM #222
kitkat63 kitkat63 is offline
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Hi! I'm new here, I just found this site, but I have CRPS in my left ankle that has since spread to my whole leg and for me a portable TENS unit is an absolute miracle worker. My pain management doc was able to prescribe it, and I love it so, so much!
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Old 07-09-2022, 08:52 AM #223
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Quote:
Originally Posted by kitkat63 View Post
Hi! I'm new here, I just found this site, but I have CRPS in my left ankle that has since spread to my whole leg and for me a portable TENS unit is an absolute miracle worker. My pain management doc was able to prescribe it, and I love it so, so much!
I am glad that is all it takes. Maybe they discovered it quite early on. For a lot of us TENS doesn't even touch it.

I had TENS. My God. I could not hack the vibrations, but did have it in physical therapy (the monster TENS machine of all TENS machines) for 8 months, without any success, on the contrary, my upper leg atrophied... totally!
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 12-25-2022, 06:53 AM #224
MiMi_of_2 MiMi_of_2 is offline
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Question Nail Care/Pedicure Ideas, Solutions, etc.

Hi! New here! RSD for 17+ years.

This may not be the right thread for this, but I really need some lifesaving ideas for nail care 💅 pedicure solutions. I haven't been able to get a pedi in forever...sigh. I'm lucky to get thru the basics of nail care on my feet. I've decided I'll be DARNED If I'm gonna completely give up on at least having **twinkly** toes!

Any "tips" lol on nail care or pedicure would be more than appreciated!

Thanks, ya'll!
Merry Christmas! 🎄
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