Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-26-2009, 10:20 PM #31
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Mslday,
ohhhhhhhhhh me toooooooooooooooo!!!! I hate even the refridgerater isles any time of the year *LOL* I forgot & wore sandles one day last summer & I ended up outside with my feet in the sun to warm up. I live in California & it was blazing [COLOR="Red"]HOTCOLOR] that day too, I am talking in the high 90's. But my poor feet & ankles were so feeling so cold. And sometimes I have noticed that when touched by say my husband, my ankles that is *LOL* he says they only feel a bit cool. To me they feel freezing cold.........go figure. All I know what my brain actually is telling me & the temperature they truly are rarely are the same........

DebbyV
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Old 02-26-2009, 10:53 PM #32
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Quote:
Originally Posted by Debby View Post
Mslday,
ohhhhhhhhhh me toooooooooooooooo!!!! I hate even the refridgerater isles any time of the year *LOL* I forgot & wore sandles one day last summer & I ended up outside with my feet in the sun to warm up. I live in California & it was blazing [COLOR="Red"]HOTCOLOR] that day too, I am talking in the high 90's. But my poor feet & ankles were so feeling so cold. And sometimes I have noticed that when touched by say my husband, my ankles that is *LOL* he says they only feel a bit cool. To me they feel freezing cold.........go figure. All I know what my brain actually is telling me & the temperature they truly are rarely are the same........

DebbyV
I'm sorry you have that too. For me it is like a deep bone burning cold pain. My dr. measured the temperature in my foot with a special tool and it was definately lower than my other foot. Funny my husband says the same thing...LOL

MsL
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Old 02-27-2009, 08:26 AM #33
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Originally Posted by Debby
Mslday,
ohhhhhhhhhh me toooooooooooooooo!!!! I hate even the refridgerater isles any time of the year *LOL* I forgot & wore sandles one day last summer & I ended up outside with my feet in the sun to warm up. I live in California & it was blazing [color="Red"]HOTCOLOR] that day too, I am talking in the high 90's. But my poor feet & ankles were so feeling so cold. And sometimes I have noticed that when touched by say my husband, my ankles that is *LOL* he says they only feel a bit cool. To me they feel freezing cold.........go figure. All I know what my brain actually is telling me & the temperature they truly are rarely are the same........

DebbyV


Quote:
Originally Posted by Mslday View Post
I'm sorry you have that too. For me it is like a deep bone burning cold pain. My dr. measured the temperature in my foot with a special tool and it was definately lower than my other foot. Funny my husband says the same thing...LOL

MsL
Debby & MSL:

I can really relate. My daughter lives in Miami and I look forward to visiting - not only to see her, but to put my foot in the hot hot sun, or maybe bury it in the blazing hot sand on a beach. Funny thing is, though, that it is only my right foot. The left one is extra-warm. Sometimes I try to "equalize" the temperatures by holding them together but I can't find a comfortable position.

I wait until the very end of my grocery trip and then rush through the refrigerator/freezer section of the grocery store. I have a very careful list and pretty much have the layout memorized, so I know exactly where to find things. LOL

My wife also says my foot is just a little cool, not cold. Go figure.

Mike
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Old 02-27-2009, 08:37 AM #34
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Default Stuff that helps

UnderArmour tube socks
T-shirts & fleece jackets
ThermaCare heat wraps
understanding hubby
hot chocolate
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Old 02-27-2009, 11:06 AM #35
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Atheletic Works pants. They are from Wal-Mart. They not only feel good, they look good.

I agree on hot chocolate, lidocaine patches, heating pads, electric blankets, warm decaf green tea at night.

My right hand and foot is always cold. I shook hands with someone the other day and thought about how cold my hand was compared to his. It's been warm here also so it hasn't been from cold.

Also, warm wind blowing. Yesterday was the worst day I have had in a long time. The wind was blowing pretty hard, even inside I felt it.

I'm still looking for those sheets that you don't feel every thread in.

Also the floor. I had tile put in my hallway last summer and when I step on it at night, it wakes up the sensitivity in my feet. I think I can feel every line in it. Carpet for me is better.

Ada
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Old 02-28-2009, 02:57 PM #36
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this seems a very helpful thread with great information

would members like this to be a "sticky" thread at the top of the forum so it can always be easily found?
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Old 02-28-2009, 03:41 PM #37
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Quote:
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this seems a very helpful thread with great information

would members like this to be a "sticky" thread at the top of the forum so it can always be easily found?
I think that would be helpful for members AND for visitors to be able to quickly reference for some tips. Thank you for suggesting!
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Old 03-03-2009, 03:59 PM #38
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Default Epsom salts???

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Thanks for that MominpainRSD! I can tell by your posts that you are truly one who genuinly cares about people. I know I felt welcome the moment you responded to my first post!

I was a member of another forum before I found this one where people were not so nice. The information I have gained from all of you on this site, has been invaluable for helping understand issues that frankly, I didn't think of before!
I'm reading a lot about epsom salts, I have been through the whole jeans ,shoes, socks dillemas, but I never heard of epsom salts. Does a hot bath with the salts help that much ? I HOPE IT DOES BECAUSE I'M ON MY WAY TO THE DRUG STORE!!
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Old 03-03-2009, 06:45 PM #39
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it has helped me alot and i have used them since before rsd for injurys from gymnastics and they helped then and they help now with alot of the cramps and muscles pain i have in my legs

carrie
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Old 03-04-2009, 01:10 PM #40
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Quote:
Originally Posted by Sheriberi View Post
I'm reading a lot about epsom salts, I have been through the whole jeans ,shoes, socks dillemas, but I never heard of epsom salts. Does a hot bath with the salts help that much ? I HOPE IT DOES BECAUSE I'M ON MY WAY TO THE DRUG STORE!!
This response to epsom salts has to do with magnesium.
Some magnesium is absorbed thru the skin.

When you have swelling you have a back up of blood in the small capillaries and this prevent NEW blood from getting thru with its nutrients.

Magnesium reduces swellling by improving circulation to tissues that are clogged up. Also magnesium works against calcium in the NMDA receptor, which can lower pain responses.

Many of us on PN use epsom salts all the time.
(including me)
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