RSD "lifesavers"

KWolter · 10-12-2013, 07:31 PM

Quote:

Originally Posted by bassman

Since my worst pain is an ultra-sensitive foot, I am always looking for the ultimate sock. The best I can find right now are a Hanes crew athletic socks. I looked on the Hanes site to try to find you a model number, but can't narrow it down based on the information there.

The socks I got have a red HANES logo beneath the toes and are extremely soft! They only come in white but who cares? I got them at Kohl's and they were six for $11.00 (approximately.)

This list is a great idea. Sometimes we know what we want by seeing it, but if we can keep it written down, others can even help us by shopping and getting the right product.

Thanks!

Mike

My mother in-law ordered me socks online. They say thorlo over the toe area. I believe she ordered me ones in the edema category. My crps is all over the top of my right foot and on the move up my calf. They are a little pricier than normal socks but they are the only socks I can bear. I found they also help weaken the burning sensation if something touches that foot while I a wearing them. These socks and slippers are the only thing I can bear touching the top of my foot. **

Courtw84 · 02-01-2010, 10:12 PM

Quote:

Originally Posted by ali12

Great thread - thanks for starting!!

For me, if I am travelling any long distances, I like to travel in my pyjamas! I know it sounds strange but they are the comfiest things I have to wear and I can just get changed once we arrive at our destination! I have lots of comfortable snuggly pj's that I just couldn't live without at all!!!! Me and my mum had to travel 4 hours to London twice in the summer last year for hospital treatment and they were really useful and comfortable. I don't like anything touching my RSD leg at all so I usually have to travel bear-foot or wear some really loose shoes as my foot tends to swell up a lot!

I also love soft pillows. I sometimes sit on them if my pain is really bad and we are travelling a long distance as they get rid of some vibrations from the car - although of course, it's impossible to get rid of them altogether!!!!!!

My Doctor is currently making me an "RSD Survival Pack" that I can use when we fly to Vegas on Sunday. My PT's said that he was going to give me lots of anti-inflammitary meds and some extra pain medications in case the flight makes my pain worse (which i'm guessing it will!). I'm currently not on any pain meds as non of them worked for me and the side-effects outweighed the benefits so we decided it was best to come off them but I take pain meds when travelling to try and combat any flares/spreading etc.

I hope you find something that helps you soon - everyone is different as to what works and it might take a while but you will eventually find something that really helps you!!

HEY!! I was reading through your post, and I saw that you were going to be on a plane soon... over course, I didn't look at the post date so I could be super late!!!!!! This may be completely weird, but I have RSD as well, and I have found that being on a plain actually makes me feel better on the inside. Going up and down is painful for me, but when we are at high altitudes it actually relieves alot of my pain. My doctor says this is beacuse of the barametric pressure change! Anyways, let me know if you were the same way!

SaraMichellee.(: · 05-17-2012, 08:09 PM

@Ali12 ,

When you say that your doctor made you a RSD Survival Pack, what all did he include?

I'm wondering because I need help. It's been hard to deal with and because of my age; 14- no one knows what would work best. I have medicine, but not like ideas to help make the pain easier to deal with.

Thanks a ton and I appreciate it. (:

spiritscript · 05-09-2015, 10:21 AM

My pain med barely works anymore. Since getting this, I now have a phobia to pain and I used to be able to tolerate a lot of pain before this nightmare! I am now scared to death of pain! There have been times when my burning pain has been so bad that I cried and prayed for days for just a little relief! How can you handle this kind of pain with no pain meds? And how did you stop them? Thank you

Quote:

Originally Posted by ali12

Great thread - thanks for starting!!

For me, if I am travelling any long distances, I like to travel in my pyjamas! I know it sounds strange but they are the comfiest things I have to wear and I can just get changed once we arrive at our destination! I have lots of comfortable snuggly pj's that I just couldn't live without at all!!!! Me and my mum had to travel 4 hours to London twice in the summer last year for hospital treatment and they were really useful and comfortable. I don't like anything touching my RSD leg at all so I usually have to travel bear-foot or wear some really loose shoes as my foot tends to swell up a lot!

I also love soft pillows. I sometimes sit on them if my pain is really bad and we are travelling a long distance as they get rid of some vibrations from the car - although of course, it's impossible to get rid of them altogether!!!!!!

My Doctor is currently making me an "RSD Survival Pack" that I can use when we fly to Vegas on Sunday. My PT's said that he was going to give me lots of anti-inflammitary meds and some extra pain medications in case the flight makes my pain worse (which i'm guessing it will!). I'm currently not on any pain meds as non of them worked for me and the side-effects outweighed the benefits so we decided it was best to come off them but I take pain meds when travelling to try and combat any flares/spreading etc.

I hope you find something that helps you soon - everyone is different as to what works and it might take a while but you will eventually find something that really helps you!!

stillsmiling · 08-08-2015, 12:04 PM

Quote:

Originally Posted by spiritscript

My pain med barely works anymore. Since getting this, I now have a phobia to pain and I used to be able to tolerate a lot of pain before this nightmare! I am now scared to death of pain! There have been times when my burning pain has been so bad that I cried and prayed for days for just a little relief! How can you handle this kind of pain with no pain meds? And how did you stop them? Thank you

I'm so sorry. The same thing happened to me. In fact I am certain that's why it took so long for me to get diagnosed- because I had such a high pain tolerance, over time I have become more and more sensitive to pain and anything uncomfortable for that matter. About the pain medicine. There have been times when I just get so frustrated that my pain medicine doesn't work I will just stop cold turkey, During that time I just pray, try to lower any stressors around me, try to take as many warm epsom salt baths as possible, listen to soft music, meditate, every hour for 20 mins use "THERMAL ON" moist heat packs from wal-mart (that brand is the only brand I will use.) I hate therma care etc. I wear really soft nightshirts and socks, drink warm cups of chamomile herbal tea, use super soft blankets, watch feel good movies (I love that channel on Roku- Feeln) Most of all be kind to yourself. I know it gets so discouraging, but be patient with yourself and let others help you also. Another thing is sometimes when I notice my pain medicine not working I will take a break from it and then start back up. Sometimes that's all I need to do. Also have you tried the medicine Savella. It's a non narcotic pain medicine that has helped me some. I heard about it after doing TONS of research on medicines that could help RSD. Hang in there. There will be brighter days.

shadownite · 02-26-2009, 03:53 PM

try rubbing different types of things over the spot that hurts not hard,get some one to help you because they cant fell it so they will do it harder than you try this for about a week I'm new to this only had RSD for 3 mouths I started rubbing a dry wash cloth around on it and noe I can ware a bra<its on my shoulder,due to surgery, I know its hard but do it,if you like the clothing you have now and dont want to buy more,this is the way to go.Let me know how it goes for you.

Annie Poo · 02-27-2009, 08:37 AM

UnderArmour tube socks
T-shirts & fleece jackets
ThermaCare heat wraps
understanding hubby
hot chocolate

dreambeliever128 · 02-27-2009, 11:06 AM

Atheletic Works pants. They are from Wal-Mart. They not only feel good, they look good.

I agree on hot chocolate, lidocaine patches, heating pads, electric blankets, warm decaf green tea at night.

My right hand and foot is always cold. I shook hands with someone the other day and thought about how cold my hand was compared to his. It's been warm here also so it hasn't been from cold.

Also, warm wind blowing. Yesterday was the worst day I have had in a long time. The wind was blowing pretty hard, even inside I felt it.

I'm still looking for those sheets that you don't feel every thread in.

Also the floor. I had tile put in my hallway last summer and when I step on it at night, it wakes up the sensitivity in my feet. I think I can feel every line in it. Carpet for me is better.

Ada

Chemar · 02-28-2009, 02:57 PM

this seems a very helpful thread with great information

would members like this to be a "sticky" thread at the top of the forum so it can always be easily found?

MominPainRSD · 02-28-2009, 03:41 PM

Quote:

Originally Posted by Chemar

this seems a very helpful thread with great information

would members like this to be a "sticky" thread at the top of the forum so it can always be easily found?

I think that would be helpful for members AND for visitors to be able to quickly reference for some tips. Thank you for suggesting!

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