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10-12-2013, 07:31 PM | #1 | ||
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02-01-2010, 10:12 PM | #2 | ||
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"Thanks for this!" says: | bluekrikit (12-27-2015) |
05-17-2012, 08:09 PM | #3 | ||
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@Ali12 ,
When you say that your doctor made you a RSD Survival Pack, what all did he include? I'm wondering because I need help. It's been hard to deal with and because of my age; 14- no one knows what would work best. I have medicine, but not like ideas to help make the pain easier to deal with. Thanks a ton and I appreciate it. (: |
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05-09-2015, 10:21 AM | #4 | ||
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My pain med barely works anymore. Since getting this, I now have a phobia to pain and I used to be able to tolerate a lot of pain before this nightmare! I am now scared to death of pain! There have been times when my burning pain has been so bad that I cried and prayed for days for just a little relief! How can you handle this kind of pain with no pain meds? And how did you stop them? Thank you
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Last edited by spiritscript; 05-09-2015 at 10:22 AM. Reason: typo |
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"Thanks for this!" says: | DejaVu (11-09-2015) |
08-08-2015, 12:04 PM | #5 | ||
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I'm so sorry. The same thing happened to me. In fact I am certain that's why it took so long for me to get diagnosed- because I had such a high pain tolerance, over time I have become more and more sensitive to pain and anything uncomfortable for that matter. About the pain medicine. There have been times when I just get so frustrated that my pain medicine doesn't work I will just stop cold turkey, During that time I just pray, try to lower any stressors around me, try to take as many warm epsom salt baths as possible, listen to soft music, meditate, every hour for 20 mins use "THERMAL ON" moist heat packs from wal-mart (that brand is the only brand I will use.) I hate therma care etc. I wear really soft nightshirts and socks, drink warm cups of chamomile herbal tea, use super soft blankets, watch feel good movies (I love that channel on Roku- Feeln) Most of all be kind to yourself. I know it gets so discouraging, but be patient with yourself and let others help you also. Another thing is sometimes when I notice my pain medicine not working I will take a break from it and then start back up. Sometimes that's all I need to do. Also have you tried the medicine Savella. It's a non narcotic pain medicine that has helped me some. I heard about it after doing TONS of research on medicines that could help RSD. Hang in there. There will be brighter days. |
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"Thanks for this!" says: | DejaVu (11-09-2015) |
02-26-2009, 03:53 PM | #6 | ||
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New Member
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try rubbing different types of things over the spot that hurts not hard,get some one to help you because they cant fell it so they will do it harder than you try this for about a week I'm new to this only had RSD for 3 mouths I started rubbing a dry wash cloth around on it and noe I can ware a bra<its on my shoulder,due to surgery, I know its hard but do it,if you like the clothing you have now and dont want to buy more,this is the way to go.Let me know how it goes for you.
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"Thanks for this!" says: |
02-27-2009, 08:37 AM | #7 | ||
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UnderArmour tube socks
T-shirts & fleece jackets ThermaCare heat wraps understanding hubby hot chocolate |
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"Thanks for this!" says: |
02-27-2009, 11:06 AM | #8 | |||
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Magnate
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Atheletic Works pants. They are from Wal-Mart. They not only feel good, they look good.
I agree on hot chocolate, lidocaine patches, heating pads, electric blankets, warm decaf green tea at night. My right hand and foot is always cold. I shook hands with someone the other day and thought about how cold my hand was compared to his. It's been warm here also so it hasn't been from cold. Also, warm wind blowing. Yesterday was the worst day I have had in a long time. The wind was blowing pretty hard, even inside I felt it. I'm still looking for those sheets that you don't feel every thread in. Also the floor. I had tile put in my hallway last summer and when I step on it at night, it wakes up the sensitivity in my feet. I think I can feel every line in it. Carpet for me is better. Ada |
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"Thanks for this!" says: |
02-28-2009, 02:57 PM | #9 | |||
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Administrator
Community Support Team
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this seems a very helpful thread with great information
would members like this to be a "sticky" thread at the top of the forum so it can always be easily found?
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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"Thanks for this!" says: | bassman (03-02-2009), DejaVu (09-09-2015), mcfly (10-03-2012), MominPainRSD (03-11-2009), Pauliana (02-28-2009) |
02-28-2009, 03:41 PM | #10 | ||
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Member
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I think that would be helpful for members AND for visitors to be able to quickly reference for some tips. Thank you for suggesting!
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