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03-10-2009, 09:12 PM | #41 | |||
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Great thread all, thanx for all the ideas!!
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"Thanks for this!" says: | bluekrikit (12-27-2015), MominPainRSD (03-11-2009) |
03-10-2009, 10:44 PM | #42 | |||
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Elder
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I only wear Crocs Mammoth...they are fully lined and are so warm. I wear them all year round... the lining comes out and can be machine washed and air dried.
http://www.crocs.com/products/women/mammoth/ I have 5 pairs now.... They also make these for men and children... I know...they are not the best looking shoes but they sure are comfy. Abbie
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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"Thanks for this!" says: | bluekrikit (12-27-2015), MominPainRSD (03-11-2009) |
03-11-2009, 04:36 AM | #43 | ||
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03-11-2009, 11:25 AM | #44 | |||
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Wisest Elder Ever
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I never use 2 cups!
I use about a Dixie cup amount in the tub. I have also made compresses with a very concentrated solution on vacation. We don't have a tub or running water there. So I got a dishpan and put about a Dixie cup of epsom salts in it and used a thin cloth (I think it was a HandyWipe --you know those towels you buy to clean with --they don't have any chemicals in them. They have holes in them tho.) I folded it over for several layers. I'd sit on the dock and refresh it every 10 minutes or so. For about an hour a day. I did this for my bad knee which was terrible at the time. The water was never really warm much and that didn't seem to matter...the temp ...since it was only compresses. The epsom salts worked really well that way too. Be careful in the tub with Epsom salts... things seem to get very slippery with them!
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All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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03-12-2009, 09:11 AM | #45 | ||
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New Member
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I posted earlier but I forgot to mention the power of positive thought in believing that you will be well and not focusing on the pain (I know it's difficult). I found a course online called "Living In The Truth Of The Present Moment which has helped me a lot.
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"Thanks for this!" says: | Angelina55 (02-28-2013), Mslday (03-13-2009) |
03-17-2009, 11:09 PM | #46 | |||
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New Member
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"Thanks for this!" says: | jacque7687 (10-07-2012), MominPainRSD (03-21-2009) |
03-20-2009, 09:17 PM | #47 | ||
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Junior Member
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Bed Cradle or Bed Bar. Particularly in winter can't stand weight of covers on leg. Found a bed cradle online which lifts just a small area of bedding up, put it in the garage last spring and mysteriously disappeared when my son cleaned up the garage. This winter bought a bed bar again online that lifts bedding entire width of bed. Used a heating pad to warm up the air in the space below the bar.
Thanks for all the other tips. |
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"Thanks for this!" says: | MominPainRSD (03-21-2009) |
03-25-2009, 10:59 AM | #48 | ||
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Junior Member
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I have also found physical therapy, i.e., stretching, free weights, and aquatic therapy to be a life saver. I've gone from using a walker to actually being functional again (with limitations). NSAIDs have been helpful with the swelling, and Cymbalta and Lyrica have been helpful with the neuropathic pain. Also Clonazepam eases the muscle tension. The latter three tend to make me a bit tired, however I have equilibrated over time. Hope this is helpful. K. |
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"Thanks for this!" says: | MominPainRSD (03-30-2009) |
03-25-2009, 03:43 PM | #49 | ||
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In Remembrance
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Hello,
I'm new. I hafto admit to cheating, I did not read All the notes in this thread. But, since I'm old to RSD, I may have some things to add. I notice lots of folks talking about lose clothing, and that's true. We can't be "bound". But, I have that thing where I can't stand a cool breeze on my "torso". For those of us with PERSPIRATION PROBLEMS> For that I started (in the mid 80's) Patagonia t shirts. Patagonia calls their product "Capeline". It's Priceless if you have RSD! They make silk weight to heavy weight. They're polypropelene(sp), made from recycled soda bottles. I found that Cotton is the WORST! It gets damp, and creates a cycle of sweat, chill, sweat, chill.....terrible No COTTON on my back! Hardly EVER! Nowadays they're more widely available. In the summer, I don't mind heat, but have difficulty with Humidity. In the winter, I can't stand the cool breeze, like I said, on my back mostly. So, these garments fit closely, and don't allow any airflow close to the skin. Then, I can LAYER on top! They make undershorts, and long underpants, socks too, and ALL can be layered. Patagonia garments are not inexpensive, but they last forever. (Almost). I am a comfort specialist by profession, and I note that HUMIDITY and BAROMETRIC changes have MORE to do with RSD Dis/Comfort than straight Temperature! I've studied it, and spoken to others, who aren't as specialized in Humidification / De-Humidification, and well, we can't do much about the Barometer! I myself, installed in my own home, central air that is slightly UNDER sized, so that it works to DEHUMIDIFY in the summer, more than just Blow cold! No vents exhaust onto where I would sit, or especially, sleep. My heat is by Hydronic Baseboard, computer controlled to respond to outside temperature. (not difficult to do). Persperation. I get it on my hands, feet and around my neck and behind my ears, my scalp, and on my back. I spray my feet with anti perspirant and also my neck, after a shower. My hands, I use Eucerin constantly. It's a lifesaver! (Just pay for it, it's WORTH it!) It seems that "closing my pores" after a bath or shower, (Love a whirlpool) is an event. I wear a heavy cotton terry robe, full length, and have a cup of tea, or something ice cold, whatever I need. I wear New Balance or Merrill trail sneakers. I need support that's comfy. (I've been seen wearing them with a suit). I'll be back, with more lifesavers, and my apologies if I've repeated what someone else has said.... Nice to be here. ASB Pete Last edited by AintSoBad; 03-25-2009 at 04:04 PM. |
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04-02-2009, 01:02 AM | #50 | ||
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Junior Member
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My hsubands RSD is in his foot and ankle. I buy him diabetic socks at wal-mart. They're super soft and not constricting , I've even bought a couple of pairs for myself. He also heats the bed up with the electric blanket before going to bed, then turns it off because of the night sweats he usually gets. The best sheets I've found are from QVC (Northern Nights flannel sheets) and regular sheets that are at least 400 thread count.
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"Thanks for this!" says: | bluekrikit (12-27-2015), MominPainRSD (04-04-2009) |
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