[ShaggyChic_1201]

I'm about out of my mind and need to vent and hear some suggestions of what you've tried.

Tho I've had RSD for a long time, it had been stable up until about 3 years ago. Medtronic stim helps a bit, but the issue that has me insane is the allodynia. It's so bad on my arms and hands that I feel damned no matter what I try. Despite every desensitization trick, mirror therapy, neurofeedback (aka brain training), lidocaine patches/creams, who knows what else, I cannot stand anything touching my arms from palm to 4 inches above my elbows. And absolutely no pressure, which means my old technique of wearing a sleeve is out out out.

(I'm not done venting yet ) I'm also incredibly heat intolerant. I've tinted the windows in my car and do my best to stay inside when the sun is out, but it's depressing. A single sunbeam hitting my forearm feels like a laser slicing me open.

I work ... I pretend ... but it's so hard to cope. The burning is never-ending I KNOW I'm not alone. What do you do?