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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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04-16-2019, 05:52 PM | #1 | ||
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Im really tired tonight and can't do much on this, but I wanted to mention that I LOVE, LOVE, LOVE my tshirts that I buy at the most unusual place. I have a tummy...not huge, but I don't like tshirts touching me too much...a little loose in the belly.
I go to the maternity store and buy their tshirts, because the arms and chest area fits and I get extra room in the belly area. I know, this is crazy, but they fit me so well....I just had to mention them. I live by sketchers shoes (when buying, only pick those with the super thick edged bottoms, as the thinner bottom shoes don't give you the cushion for those painful feet. I use lidocaine patches.....they dont resolve anything, but they do help some days when extra is needed in spots. I live by my heating pad....it matters....as do heated seats in the car. I used to have a round pillow that was super soft and I wedged it wherever the wedge would take the burn away. Gabapentin for allodynia...without it I would probably use curse words..... warm to hotish baths always loosen me up some (I have fibro, too). Some days I take more than 3. I listen to books on audible (wrote this elsewhere on the site today, too). I get really wrapped up in the books I listen to, and what a great distraction for me this is. No, my pain doesn't go away, but my focus can be redirected which for me is golden, both from the mental stuff as well as the physical. |
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04-23-2019, 04:37 PM | #2 | ||
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I discovered for me that direct heat is too much on my CRPS limbs, i found it aggravates my rashes. I gave up Epsom salts baths. I use magnesium oil instead. I line my bed with heating pads when I cannot get warm & snuggle next to them, but I avoid having them touch my CRPS limbs.
When the fire is insanely bad I line my bed with dollar store ice packs (in zip bags-the packs can leak) wrapped in tea towels. I keep the covers off my legs with a stool & slide in to my makeshift refrigerator without having cold packs directly on my limbs. It isn’t as fast relief, but it works well. I keep six of these big packs flat in my freezer-they last for hours. |
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"Thanks for this!" says: | full_moons_of_hope (07-06-2019), ShaggyChic_1201 (11-17-2019) |
05-01-2019, 07:12 AM | #3 | ||
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Junior Member
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My latest helpers:
Daily meds: lyrica, celebrex (AM & PM) then hydrocodone & tizanidine (PRN, up to 2x/day), lidocaine patches (up to 3 at a time, on the areas that are the worst at any given moment) PT/Exercise: Desensitization therapy, light exercise (water aerobics, light yoga, walking the dogs, even household chores) but also listening to my body and cutting myself slack when needed Other: Heating pads, heated blankets (I keep both at home and at work, as well as upstairs and downstairs in my house), hot baths, fuzzy socks, soft clothing and/or shorts, distraction therapy (family, friends, solitaire/yahtzee on my phone, social media, reading, tv, etc). To the person who said loose shirts - check out the Ava & Viv section at Target - in the plus size area. even if you're not plus sized they are really loose through the stomach and a 0x works well even if you're a size 8 or something. And they're $8 each and super soft and lightweight. |
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"Thanks for this!" says: | full_moons_of_hope (07-06-2019), Lyla Grace (11-04-2020) |
05-03-2024, 01:13 AM | #4 | ||
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