 |
|
| Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
| Reply |
|
|
Thread Tools | Display Modes |
|
|
02-24-2009, 04:48 PM
|
#1 | |||
|
||||
|
Member
|
MsL, I have one of those microwave bean bags too! I forgot all about that. My friend got it for me as a xmas present a couple of years ago. It's one that filled with herbs, I think it's lavender and something else. It really feels good on spots that are really hurting sometimes. I also get aromatherapy at the same time and it's quite relaxing!
 Thanks for putting it down. Is yours a scented one too or just one of the plain?Hugs, Karen
__________________
Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
|||
|
 Reply With Quote
|
| "Thanks for this!" says: |
|
02-24-2009, 05:05 PM
|
#2 | |||
|
||||
|
Member
|
Quote:
Hi Karen, I have a couple, one plain and the other with lavender. I love them both and often use them both, especially on day like this. We have a terrible cold rain right now and it gets deep into my bones so I am off to use my hot wax machine on my foot right now because of that. The hot wax is the only way to get deep penetrating heat for me. I know some here probably can't handle that intensity of that type of temperature but I have always loved it, even at my worst most sensitive state. Once I get past the first dip it is all good from there. MsL 
|
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | dd in pain (08-08-2011), DejaVu (09-09-2015), full_moons_of_hope (07-06-2019), MominPainRSD (02-24-2009) |
|
02-24-2009, 06:13 PM
|
#3 | |||
|
||||
|
Member
|
idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
__________________
~*Andrea*~ |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | dd in pain (08-08-2011), DejaVu (09-09-2015), freebird36 (11-22-2013), frogga (08-17-2010), irpuregenius (11-11-2014), MominPainRSD (02-24-2009) |
|
02-24-2009, 11:51 PM
|
#4 | ||
|
|||
|
Member
|
Quote:
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: |
|
02-24-2009, 11:53 PM
|
#5 | |||
|
||||
|
Member
|
andrea
i also have the same problem with the wind and even cealing (sp) fans in the house. i always at the house have blankets or sweat shirt. but last summer i noticed that i stayed warmer its like my rsd has days where i feel so hot and then days were its like antartica only in my body lol you sleve things are ingenius i cant wear gloves or stocking or pantyhose period so i have trouble in the winter thank god i live in the south lol carrie |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: |
|
01-12-2013, 10:03 AM
|
#6 | ||
|
|||
|
Member
|
Quote:
|
||
|
|
Reply With Quote
|
|
01-24-2013, 09:53 PM
|
#7 | ||
|
|||
|
New Member
|
So happy that I am able to spread the word to fellow RSD/CRPS'ers.
My mother suffers from CRPS in her left leg. Cannot explain to you how badly this has changed her life and ours. Her pain is just to much to handle. Up until now the pain and depression had taken over her life. We were researching Ketamine treatments, we're desperate. It was that time that I prayed and received an email the next day! Has anyone heard of Calmare Pain Therapy Treatment!? Its new, developed in Italy. There are currently only 20 of the machines in the US. I was lucky enough to get my mother into the only doctor located on the West Coast. She had consult yesterday and her first treatment today! She literally went from a 8-9 pain to walking out pain free!! Wow is all I can say. You can research it, but basically it scrambles the brain. It re-programs the brain that there is no pain there. Its non invasive, no side effects and ITS NOT PAIN FULL! Usually it consists of 10-12 treatments 45 min these are done every day. The pain is gone immediately and lasts for a few hours. Gradually the pain comes back However, each day the therapy is done it comes back less and less until finally, its gone completely or at a 1-2. Some people have gone 3 months pain free to 1 year! If the pain comes back, you simply go back in for a booster treatment! This is such a MAJOR breakthrough for people with the chronic pain condition and my mom is proof!! SO exciting I had to share the success. and did I mention its something like 91% effective!!     
|
||
|
|
Reply With Quote
|
| "Thanks for this!" says: | stillsmiling (08-28-2015) |
|
03-01-2013, 12:05 PM
|
#8 | ||
|
|||
|
New Member
|
Quote:
|
||
|
|
Reply With Quote
|
|
02-25-2009, 08:49 PM
|
#9 | |||
|
||||
|
Member
|
Can anyone enlighten me as to why my post was removed??? I posted about the only type of sock I could stand to wear.
DebbyV |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | DejaVu (09-09-2015) |
|
02-25-2009, 10:15 PM
|
#10 | |||
|
||||
|
Junior Member
|
Carrie,
My Physical therapist has had extensive training in Cranio Sacral therapy.. Check your local Physical Therapists..Here is a link to find a practitioner in your area.. Your therapist should be trained by the Upledger Institute.. http://www.upledger.com/ Best wishes, Pauliana
__________________
. |
|||
|
|
Reply With Quote
|
| "Thanks for this!" says: | DejaVu (09-09-2015), vintagewine (05-29-2015) |
| Reply |
|
|
Similar Threads
|
||||
| Thread | Forum | |||
| Lifesavers...AFSP Newsletter | Survivors of Suicide | |||
| Pets are therapeutic and lifesavers: | Pets & Wildlife | |||
Hybrid Mode
