Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-24-2009, 06:13 PM #1
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idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
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Old 02-24-2009, 11:51 PM #2
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Originally Posted by msdrea83 View Post
idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
Just last night, and everynight for that matter, it gets kinda warm sometimes on the Left Coast, so when I turn on the fan in my bedroom, I HAVE to hide my arm under the sheets or it painfully wakes me up! Great idea!
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Old 02-24-2009, 11:53 PM #3
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andrea
i also have the same problem with the wind and even cealing (sp) fans in the house. i always at the house have blankets or sweat shirt. but last summer i noticed that i stayed warmer its like my rsd has days where i feel so hot and then days were its like antartica only in my body lol you sleve things are ingenius i cant wear gloves or stocking or pantyhose period so i have trouble in the winter thank god i live in the south lol

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Old 01-12-2013, 10:03 AM #4
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Quote:
Originally Posted by msdrea83 View Post
idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
i ended up having sleeves made, called bio skin, they put very soft fleece in them.
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Old 01-24-2013, 09:53 PM #5
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Default Try This!! New Treatment!

So happy that I am able to spread the word to fellow RSD/CRPS'ers.
My mother suffers from CRPS in her left leg. Cannot explain to you how badly this has changed her life and ours. Her pain is just to much to handle. Up until now the pain and depression had taken over her life. We were researching Ketamine treatments, we're desperate. It was that time that I prayed and received an email the next day!
Has anyone heard of Calmare Pain Therapy Treatment!?
Its new, developed in Italy.
There are currently only 20 of the machines in the US.
I was lucky enough to get my mother into the only doctor located on the West Coast.
She had consult yesterday
and her first treatment today!
She literally went from a 8-9 pain to walking out pain free!!
Wow is all I can say.
You can research it, but basically it scrambles the brain. It re-programs the brain that there is no pain there.
Its non invasive, no side effects and ITS NOT PAIN FULL!
Usually it consists of 10-12 treatments 45 min
these are done every day.
The pain is gone immediately and lasts for a few hours.
Gradually the pain comes back
However, each day the therapy is done it comes back less and less
until finally, its gone completely or at a 1-2.
Some people have gone 3 months pain free to 1 year!
If the pain comes back, you simply go back in for a booster treatment!
This is such a MAJOR breakthrough for people with the chronic pain condition and my mom is proof!! SO exciting I had to share the success. and did I mention its something like 91% effective!!
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Old 03-01-2013, 12:05 PM #6
SheilaW SheilaW is offline
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Quote:
Originally Posted by Natasha6086 View Post
So happy that I am able to spread the word to fellow RSD/CRPS'ers. :)
My mother suffers from CRPS in her left leg. Cannot explain to you how badly this has changed her life and ours. Her pain is just to much to handle. Up until now the pain and depression had taken over her life. We were researching Ketamine treatments, we're desperate. It was that time that I prayed and received an email the next day!
Has anyone heard of Calmare Pain Therapy Treatment!?
Its new, developed in Italy.
There are currently only 20 of the machines in the US.
I was lucky enough to get my mother into the only doctor located on the West Coast.
She had consult yesterday
and her first treatment today!
She literally went from a 8-9 pain to walking out pain free!!
Wow is all I can say.
You can research it, but basically it scrambles the brain. It re-programs the brain that there is no pain there.
Its non invasive, no side effects and ITS NOT PAIN FULL!
Usually it consists of 10-12 treatments 45 min
these are done every day.
The pain is gone immediately and lasts for a few hours.
Gradually the pain comes back
However, each day the therapy is done it comes back less and less
until finally, its gone completely or at a 1-2.
Some people have gone 3 months pain free to 1 year!
If the pain comes back, you simply go back in for a booster treatment!
This is such a MAJOR breakthrough for people with the chronic pain condition and my mom is proof!! SO exciting I had to share the success. and did I mention its something like 91% effective!! :winky::grouphug::D:p:);):grouphug::D:D:D:D:D:D:D
NATASHA: The Calmare Treatment sounds like a better option than Ketamine infusions. Is Calmare usually covered by insurance. Also, Dr. Michael in Rutherford, NJ, offers this option to patients with neuropathic pain. Has anyone used this doctor?
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