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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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02-24-2009, 04:48 PM | #11 | |||
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MsL, I have one of those microwave bean bags too! I forgot all about that. My friend got it for me as a xmas present a couple of years ago. It's one that filled with herbs, I think it's lavender and something else. It really feels good on spots that are really hurting sometimes. I also get aromatherapy at the same time and it's quite relaxing! Thanks for putting it down. Is yours a scented one too or just one of the plain?
Hugs, Karen
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Laugh until you cry, don't cry until you laugh. Living, loving and laughing with RSD for 14 years and counting. |
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02-24-2009, 05:05 PM | #12 | |||
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Hi Karen, I have a couple, one plain and the other with lavender. I love them both and often use them both, especially on day like this. We have a terrible cold rain right now and it gets deep into my bones so I am off to use my hot wax machine on my foot right now because of that. The hot wax is the only way to get deep penetrating heat for me. I know some here probably can't handle that intensity of that type of temperature but I have always loved it, even at my worst most sensitive state. Once I get past the first dip it is all good from there. MsL |
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"Thanks for this!" says: | dd in pain (08-08-2011), DejaVu (09-09-2015), full_moons_of_hope (07-06-2019), MominPainRSD (02-24-2009) |
02-24-2009, 06:13 PM | #13 | |||
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idk how many of u are sensitive to the wind/breezes in like spring and summer when its too warm to wear a sweat shirt over ur arms/hands, but i got this idea from the nba players... they wear arm sleeves for what ever reason... so i went to the fabric store and found a soft fabric my arm could handle and got various colors (to match whatever i was wearing) and had my neighbor create my arm sleeves that would be like a glove minus the fingers and go up just past my elbow. they work wonders blocking out the breeze on super hypersensitve days.
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"Thanks for this!" says: | dd in pain (08-08-2011), DejaVu (09-09-2015), freebird36 (11-22-2013), frogga (08-17-2010), irpuregenius (11-11-2014), MominPainRSD (02-24-2009) |
02-24-2009, 11:51 PM | #14 | ||
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02-24-2009, 11:53 PM | #15 | |||
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andrea
i also have the same problem with the wind and even cealing (sp) fans in the house. i always at the house have blankets or sweat shirt. but last summer i noticed that i stayed warmer its like my rsd has days where i feel so hot and then days were its like antartica only in my body lol you sleve things are ingenius i cant wear gloves or stocking or pantyhose period so i have trouble in the winter thank god i live in the south lol carrie |
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02-25-2009, 10:14 AM | #16 | ||
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As far as sheets, there is a "new" (to me, anyway) type that are made of bamboo fibers. My daughter got two sets for wedding gifts and she claims they are very comfortable. I have not tried them, but it is very chic right now. I believe they are somewhat pricy, so I wouldn't suggest buying them unless you try them somewhere or get other recommendations. Has anyone tried the bamboo sheets? Mike |
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"Thanks for this!" says: | dd in pain (08-08-2011), DejaVu (09-09-2015), full_moons_of_hope (07-06-2019), MominPainRSD (02-25-2009) |
02-25-2009, 12:06 PM | #17 | |||
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I saw some bamboo T shirts at a little shop on the coast - they were very soft. I was surprised at that.
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"Thanks for this!" says: | DejaVu (09-09-2015), MominPainRSD (02-25-2009) |
02-25-2009, 04:11 PM | #18 | |||
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Hi Mom!
Fresh organic fruit helps me to feel better! I soak my feet in Epsom salts. I want a bath but the tub is upstairs and I haven't been up there since November just before I fell and hurt my ankle..My dream would be a nice long warm Epsom salts soak in a bath tub.. That would be heaven.. Soft clothing are a big help.. In bed last night I realized just how much the sheets and the comforter weigh.. It felt like they were pounding me down in the bed.. I was cold but I still kept throwing them off me.. I just started Cranio Sacral Therapy..Here is a link about it.. Oh my goodness, this helps so much.. I have never experienced such relaxation and it helps my pain levels.. http://www.spineuniverse.com/display...rticle784.html Wishing everyone a pain free evening.. Pauliana
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"Thanks for this!" says: | bluekrikit (11-05-2014), dd in pain (08-08-2011), DejaVu (09-09-2015), Inspiretoday (07-20-2015), MominPainRSD (02-26-2009), Theburasfam (05-03-2020), vintagewine (05-29-2015), Winter7 (10-17-2014) |
02-25-2009, 08:43 PM | #19 | |||
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pauliana
i also have had cranial sacriol and it did help alot the problem is finding some that knows how to do it exacatlly i also know that they use it for pelvic pain issues too . i have been tryin to find someone here that does it.. carrie |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
02-25-2009, 08:49 PM | #20 | |||
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Can anyone enlighten me as to why my post was removed??? I posted about the only type of sock I could stand to wear.
DebbyV |
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"Thanks for this!" says: | DejaVu (09-09-2015) |
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