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Yes, those reporting their progress on the MP study site are a diverse group from all over the world but English (at this time) is a requirement. However, there is some effort to translate the protocol into other languages. The latest being the Chinese who have asked Marshall to train the doctors at Western China Hospital how to conduct the protocol. Once again, you must find a doctor to support you if you plan to do the MP. That can be problematic because doctors are a skeptical lot when you try to tell them what to do. Especially to follow a protocol discovered on the internet (grin) . Are you familiar with the ACCESS study? It was conducted by the government to study sarcoidosis between the years 1995 – 2001. Ten major university medical centers participated and studied 215 newly diagnosed sarc cases. Some of the study unexpected results (among others) were: There were no cases of documented spontaneous remission, The use of corticosteroids made some sarc patients worse and others who showed improvement relapsed when it was discontinued, There were 5 husband and wife combinations where both had sarc. Sarc is so rare that there shouldn’t have been any. May indicate the disease is communicable. Sarc does not discriminate; it shares its disease equally among all races and ages. Over the study period, 50 in the study reported additional organ involvement. Check it out on the internet. Gene |
Dear MsL,
Thanks for your most recent post. There is so much to look at and think about; and I can't wait until I have the time to sit down and really check it out. Your thinking regarding RSD is very wise and healthy. Modern medicine does not know where to begin to help; and I totally agree that a common sense approach and research are the answers. This is not a hopeless illness, with alternative medicine and therapies providing lots of hope. Some may think that I should change my name to Pollyanna. (Pollyanna –noun 1. an excessively or blindly optimistic person). Actually, it is a name that I would find to be quite endearing because throughout my daughter Sarah’s 5-year struggles with RSD … hope, optimism, and God’s promise that He will provide have been the essence of what keeps us moving forward. This thread is evidence that there is so much we can learn from each other -- no longer being left to feel quite so blind in our quest for help. Again, I thank you for sharing your research. Jeanne |
Dear Jeanne and Gene -
No wonder I'm getting confused about names around here. Jeanne - Thank you very much for your concern. Just out of curiousity, are you aware of chronic edemic in the effected limbs showing up in CHRONIC FATIGUE, FIBROMYALGIA, AND LYMES? If you or anyone is, let me know. Txs. Gene - Not only did I check the Internet for the ACCESS Study, but I read the free full text version, or much of it. Turns out that my treating physician and source for the information about spontaneous remission, Prof. (Emeritus) Om P. Sharma at U.S.C., was not only one of the named committee members on the report, but an author of a study the report cited for the proposition I asserted. Here's what it has to say about spontaneous remission: “Statement on Sarcoidosis [ACCESS Study],” Am. J. Respir. Crit. Care Med., Volume 160, Number 2, August 1999, 736-755; 745: Spontaneous remissions occur in nearly two-thirds of patients, but the course is chronic or progressive in 10 to 30% (23, 25,Free full text available at http://ajrccm.atsjournals.org/cgi/reprint/160/2/736 I didn't address the other assertions you made about the ACCESS Study because they did not appear to be directly germaine to my post, but would strongly enourage you to read the full text of the report. Mike |
Communicable?
[There were 5 husband and wife combinations where both had sarc. Sarc is so rare that there shouldn’t have been any. May indicate the disease is communicable.]
Gene, I pulled the above from your earlier post, as it is something I have been thinking about. When I posted this tread, this is exactly the kind of information I was searching for. Interestingly, in my research of Lyme disease I learned that it is also believed by some that it too can be transmitted through semen and from mother to child through the placenta, a theory that most of us have never heard about. As my daughter has had numerous tick bites, and because of the experiences of others like Roz, we are doing all that we can to rule out the possibility that Lyme is a factor in her RSD. You may recall that I mentioned in an earlier post to you that my Mom had Sarcoidosis; and although I do not want to be paranoid … for my daughter’s sake, I do not want to find out that we have been ignorant (uninformed). Wow, too much to think about! I will definitely be talking to her doctor about this, again in an effort to rule out any unknown factors. I thank you so very much for taking the time to share your knowledge and experience with us. Jeanne |
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Hi Folks, Lets start taking a real good look at page number 742. If someone could post it, it is a right start. I just got a new lab top and am just learning with it. Thanks, Roz |
Dear Roz -
You mean as in "Although lung fields are clear of infiltrates, parenchymal granulomas are often found in lung tissue biopsies?" And you're right, I wasn't questioning that. What I was addressing was the well meaning posting of incorrect but seemingly authoritative information, where that information apparently came from (at best) second-hand accounts of the ACCESS Study on the Internet. Think of it as an example of a theme I've been focussed on in some of my postings on this thread. Mike |
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I am very concerned that these Th1 diseases are contagious. That goes along with Marshall’s idea that Th1 diseases are caused by intracellular bacterial infection. The variety of bacteria and the sequence of infection determine symptoms for the various Th1 diseases. And, yes it looks like they can be passed with close contact. There are several MP members posting that have spouses and other family members ill and on the MP together. There is one family that I know of where both parents and three children are on the MP. Now that I know the symptoms, I realize I have been infected all my life (I am 67 years young) and my illness/symptoms have varied through life depending on the condition of my immune system. If this is chronic infection, there won’t be remission until the bacteria are completely eliminated. Between my father, his sister, their spouses, and their four children we have had a father (not related) & his son both with Parkinson’s disease, Crohn’s disease, Sarcoidosis, Breast Cancer, Cancer, Heart Disease (3), Arthritis, & Dementia. This is a strong case for infection, in my opinion, and it being contagious. A result of Th1 illness is a dysregulated vitamin D nuclear receptor (VDR). The VDR is dysregulated by the bacteria acting as an antagonist disabling it. It will result in a high 1,25-D blood assay so that this assay is an indicator. Most doctors only test for the 25-D. Three years ago mine measured 50 pg/ml. The Merck manual says anything over 45 pg/ml will leach calcium from bone. My wife just had her 1,25-D tested and it is an alarming 64 pg/ml. We are in the process of starting her on the MP. Her symptoms are CFS, IBS, OCD as the big ones. Gene |
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You are out of line!!! I didn't come to argue. I don't have time. So I will leave you with you opinions and illness. Gene |
I am requesting everyone take a deep breath and try to get this thread back on track please
It is understandable that people will disagree on things but our guidelines call for you to disagree agreeably please. here are the guidelines http://neurotalk.psychcentral.com/showthread.php?t=1293 specifically Quote:
thanks |
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Hi Gene, Like you, I really believe their is a infection connection as well. I am concerned about my husband as well. We all just need to hang in their. Thanks for hanging in their with us. Roz |
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I really appreciate your positive personality here. Thanks so much for your thoughts on this. I believe having a deep faith is a main ingredient towards any form of success. I am so sorry to hear that your young daughter is going through all of this horrible stuff. I've been thinking about the fact that she now has RSD in her stomach. Just a thought, have you or her doctors thought of trying digestive enzymes? I was having such horrible stomach pains coming and going on the left side of my body, my rsd side, following my surgery that there was a time where I was concerned that RSD was moving into my intestines too. The doctors were not able to find the source of my pain and I usually shrugged it off as having to do with my chronic constipation. It wasn't until just recently when I added the a full spectrum blend digestive enzyme that the pain stopped. I also take a systemic enzyme for inflammation and now swear by them both. Not only has it helped me with the pain, edema and complete stiffness in my bones, it knocked my chronic sinusitis out of me and I no longer need to take my medication for that. I have way more energy too. I am currently reading an interesting book by Ellen Cutter, DC and Jeremy E Kaslow, MD on the subject of enzymes which is what promted me to give the digestive enzymes a go. I hope this message finds you and your daughter doing well. MsL |
Thanks again,
Hi MsL,
Thanks for the tips. Over the past 4 years, Sarah has seen five different g.i. specialists with none of them providing any help. She is now seeing a new doctor who is addressing some of the things you recommend. He is an MD and naturopath who is willing to go the extra distance to find out what is going on. Recent tests he has ordered have revealed that she has very little, if any, beneficial intestinal bacteria so just last week he started her on probiotics and an "intensive repair complex" which is used to help repair and restore the g.i. lining. It is a combination of plant enzymes, mucilaginous herbs, and amino acids. From time to time others post about stomach difficulties; but it is difficult to find much about it when you research RSD. Recently, I became aware that as many as 70% of Fibromyalgia sufferers have Irritable Bowel, and we have been told that Sarah also has FM as well. One of the tests her doc ran indicated that there was irritation that may be resulting in response to parasympathetic excitability, not really much of a surprise. Please continue to share, as it is most helpful. I will be looking for the book you suggested on my next trip to Borders. Thanks, Jeanne aka Polly |
I also have a suggestion. This is something I found out about MYSELF this summer.
Fructose (and excess sucrose--which is 1/2 fructose) can be an intolerance trigger. I have a GI congenital defect I was born with, twisted malrotation of the whole GI tract. So I tend to get "used" to upheavals there. What I DIDN't realize is that I have a fructose problem. Now with hindsight, I realize it was always there, but it just seemed to become much worse all of a sudden. If your daughter has trouble with fruit, esp. apples and pears, if she cannot tolerate apple juice/cider, that would be a big warning sign of this. I stopped ALL high fructose corn syrup, high fructose fruit, and sucrose and ALL my gas, pain, and diarrhea attacks STOPPED! I looked this up on the net and found one site that claimed a 1 in 3 incidence for this intolerance. I have managed fresh oranges, recently. But I don't drink any juices anymore. I take supplemental Vit C daily instead. I'd suggest an elimination of these sugars for at least two weeks, to see if there is improvement. I discovered my problem during vacation where I became sick and didn't eat ANYTHING for a while besides crackers, water, chicken soup etc. When I had a G2 Gatorade I was sick within 1/2 hour! And that had 1/2 the sugars of a regular Gatorade. Even Jelly on my peanut butter set me off. Now that I am eating sugar/corn syr free, I feel so much better, you can't imagine! Please consider it if IBS symptoms are resistant to other treatment! |
Thanks!!!
Hi mrs. D.,
Thanks so much for the advice. It is great that you realized that this was causing such difficulty for you. It is interesting because I would have never made the Fructose association with Gatorade. Several years ago my daughter had hydrogen breath tests done for fructose & lactose intolerance. If I remember correctly, they came back o.k. with the only insight provided was that she was a "rare non hydrogen producer" ... something I really didn't have an explanation for until Sarah started seeing her new doctor. She had been taking Protonex, and thus the lack of stomach acid was likely the explanation. She took this med for 10 months, something I am now reading can do lot more harm than good to the gut. Now that I think about it, I wonder if those tests would provide an accurate result for this reason?? Over the past four years, Sarah has unintentionally been on an "elimination diet" as she has discovered that many things do not agree with her. She has a very difficult time getting enough calories with solids, so the majority of her calories come from GNC Weight Gainer Shakes. We even add flax oil to those as they do not provide enough fat. I am suspecting that there is lots of Fructose in those? I very much appreciate your input. There is so much to be learned from others ... and with an illness with so few answers ... that is invaluable. Thanks again, Jeanne |
Appreciate Your Knowledge!
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I pray that you are still hanging around as I very much appreciate your insight and generosity in taking the time to share. My mind is full of questions, and I am attempting to remain calm and not overreact to the new questions that are surfacing. I will talk with Sarah's doctor about blood tests. Do you know if the bacteria associated with Th1 infections are anaerobic? The reason I ask is that we address Sarah’s pain with hyperbaric oxygen treatments. If they are anaerobic, hyperbarics kill those bacteria and could affect tests results … but I suppose that if results come back normal, we might be able to assume that there was never a problem or that we are addressing it through hyperbarics??? The fact that Sarah’s pain resurfaces when treatments are stopped is concerning when considering an infection connection, as that would indicate that it is not being completely killed off. Please, please continue to share. At this time we are attempting to rule out the possibility of Lyme. Is that too a Th1 infection? I hope you will excuse me if I ask some dumb questions. This is a whole new “world” for me. Is it possible to provide a basic, easy to understand summary of the Marshall Protocol for Th1 infections or do you know where I might find such an explanation. When things get too in depth, especially initially, I must admit that much of it goes right over my head. Thanks, Jeanne |
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I can't find a label...to see what kind of sugar has in it. Sucrose is easier on people than fructose. There are two types of fructose intolerance.. one is GI mostly, the other is a liver reaction (genetic). Also you need to look at magnesium content. Some shakes have high magnesium added and this can cause diarrhea in some people. You might try simple Whey protein...with no added sugar. Adding the flax oil is great. I have never been able to drink apple juice like others...so I think I have had this forever, and it just became acute when I was ill. I seem to be able to eat some cereals, but not others. Plain oatmeal is okay for me, but not the flavored instant type (lots of sugars in them). At one point last year my doctor had me have abdominal ultrasound thinking I had gall bladder problems...it was horrible gas/pain every day...but all was negative. I was so surprised when I cut out all fructose...it was amazing the CHANGE! Long term use of drugs like Protonix (proton pump inhibitors) can mess up absorption of some nutrients: B12 folic acid calcium magnesium zinc iron. Those drugs also prevent protein digestion, which leads to bacterial fermentation in the bowel by bacteria, and the subsequent gas and diarrhea. Short term use is okay, but the way that doctors hand them out "for life" with no supervision, is just terrible IMO. You can PM me anytime, if you have other questions. I don't often get to this forum commonly ;) |
Hi ,
I have been drinking Vitamin Shakes called Alive. I really don't know much about it though. Here is a link about it. http://www.vitasprings.com/alive-ric...ure-s-way.html Hugs, Roz |
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I hope these lines find you truly blessed. My own mum died from R-fever from strep. I have had to have tests that have just been unbelievable lately. I want to thank you for sharing. Much Love, Roz |
Vitamin D deficiency could help explain infection correlation
I think there may be connection -- or rather a correlation -- between RSD and infectious disease. Recent research with Vitamin D has shown many if not most of us are deficient and that Vitamin D is necessary for many physiological functions. So, when inflammation is triggered by an injury, isn't it possible that Vitamin D plays a role in turning it off? When we don't have enough Vitamin D to activate the anti-inflammatory compounds in our bodies (like Interleukin-10), then the inflammation continues and spreads throughout the sympathetic nervous system and beyond. In case you are not aware, Vitamin D has been shown to reduce cancer risk as well as bacterial and viral infections and may play a whole host of other roles in the body -- Check out the Vitamin D council website.
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Thanks so much for your wisdom and intergrity. May you be blessed abundantly. Much Love, Roz |
Another two cents
This is somewhat of a repeat of something I posted on a similar thread, but I strongly feel that, while there is much to learn about predisposing factors to the development of diseases such as ours and others, I can't help but feel that there is some danger to linking terms where there is no empirical evidence.
There is almost (OK, some tribal cultures not ever exposed to widespread pathogens, etc, just to cut down on some angry retorts that I may get) no person on this earth who is without infection with some pathogen. Infection and inflammatory processes are a part of the human condition. The inflammatory process works to protect the body, though certainly a hyper-response has the opposite effect. It's all part of the body's attempt at maintaining homeostasis. If our body produced no response, we would all be dead before we reached our first birthday. Without the ability to respond to an outside threat with the increased circulation of WBC and blood supply, we would have no chance to beat infection at all. I feel compelled to mention that connecting infection (and cancer in other threads) to the development of RSD can be a slippery slope. There certainly is no cause to alarm those who have had infections with an increased threat of RSD without any solid proof that this connection exists. We could just as easily connect that brown-eyed people are at increased risk. Please be cautious about alarming people needlessly and without true proof. There are certainly facts regarding predisposing events;stories we all know and share. This disease is so horrible and so poorly understood that there is a certain sense of desperation which I pray we don't add to without proof and not speculation. Two events happening at the same time does not make a causative relationship. |
Hi llrn,
I want to thank you for your thoughts on infection. I suffered a serious infection with my injury which caused my RSD. Never have I felt like the infection caused the RSD but the process of prolonged healing. First injury, second injury infection, third injury debridement. Constant battering to my original injury. Stitches in for 3.5 weeks. Infection does no doubt have some relation to RSD but I wonder more about the trauma infection causes not the actual infection. I try to think positive knowing I have no control over the actual reason I developed RSD. One can only look frwd to better sunny pain free days. The last thing I want to have on my mind would be the C word:eek:. This thread I was avoiding but couldn't hold back any longer. My sister in law had a small cell cancer the dr. said she had like a 7% chance of surviving. She told him she was going to be in the 7% group! She made it past 5 years this year. Well thanks for hearing my thoughts, Debbie |
My story
I agree and that is why my intregity has been questioned. Although I may have Lyme.... even though my Western Blot was NOT positive, I don't think we can say that these infections and coinfections apply to everyone with RSD. If you decide to test for Lyme (infections and coinfections) as I did, the test results may not reveal anything for certain. People have tested for years for Lyme before getting a positive result. The dark field microscopy shows oragnisms and they are counted. If you have I believe less that 12 organisms, I could stand corrected on that number, your test will be negative. What I am saying is that after all the testing one may find themselves in the same position as me, right where I was when I started. Oh, I know the response you need a Lyme Literate Doctor, but without positives, do we really know? And do we all have these organisms anyway? Also, where from? Our parents, bites, even milk? I still think there is so much to learn and there are no absolutes for everyone.
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Hi Diana,
Sorry to hear that you are having such a hard time and I do hope you get the answers you need soon. I love your *edit* honesty.
I have lost 22 relatives to cancer and have a brother with colon cancer and none of them had RSD nor lyme disease. I agree about the infections from the injuries or surgeries that caused the RSD can there but I don't feel that infections cause RSD. We can have 30 different diagnoses but that doesn't mean they are all connected. This is just my *edit* talking, other people will have other ideals. Ada |
This is why I am trying to choose my words a bit carefully. It seems that most arrows point to trauma of some type (surgery, needle sticks, fractures, etc) as a precursor to RSD developing. Infection can follow trauma, and certainly that work-ups that we all go through in the attempt to find answers can turn up positives which may or may not be pertinent. Outside of those infections, using the term "infection" can really mean anything and I think sends a message which can panic people and lend less credence to those who are trying to prove a causing event (WC, med mal) to be compensated for their medical bills. If we REALLY think it's infection of any sort, the virulence itself would make RSD much more well-recognized than it is.
Just my opinion |
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I hope these lines find you pain free. I want to welcome you to the site. Again, I want to thank you for your wisdom. Do you mind if I PM you? Hugs, Roz |
Why?
[For my children, their children, their children's children, and for all children -- they depend on us to ask why and to act on the answers, however difficult.]
This is a quote from a book I am reading, and it sums up the reason that I started this thread. It was not meant to scare anyone, nor did it bring up the subject of cancer. For me, not asking why is much more frightening than accepting the status quo thinking that has produced no answers to the mysteries of this illness. As the mother of a beautiful 17-year-old daughter who suffers with RSD, I must continue to ask why. I owe that to her. Maybe the connection is not infection at all; but I must investigate that possibility, as well as others, because I could not forgive myself if 5 or 10 years down the road I look back and say, "You know that crossed my mind but I didn't follow up on it." I can't help but think that if you don't know why it is broke, you can't possibly fix it. Most of you have probably heard about the pastor who was shot this week while giving his sermon. This happened just a few miles from my home. I had met this pastor, as my sister attends his church. On several occasions he came to visit my mom when she was dying in the hospital, and I also enjoyed attending his church with my sister from time to time. He was young, and loved, had a beautiful wife and two young daughters. The day after the shooting, it came out in the news that the 27-year-old gunman suffered from Lyme Disease. When I heard this report, I realized that I had talked with this young man's mom on two separate occasions. She had called me about a year ago because they were checking into hyperbaric oxygen treatments for her son. She shared with me that he had been diagnosed over and over again with mental illness, but it was not until he ended up on life support that they discovered that his brain was full of Lyme. She shared with me the many struggles they encountered with insurance companies who did not want to pay for extended treatments, as well as many of the other battles they had to fight to receive care. The last time I heard from her was about two months ago. She said that her son had in fact benefited from hyperbarics, and she was looking for information about buying a home chamber. The medical system and insurance companies no doubt let this family down; but who would have ever stopped to think that this wonderful pastor and his beautiful, innocent family would also pay such a costly price. The system is letting down RSD sufferers as well. With the primary relief available coming from drug companies who are motivated by profits, we all need to question where the answers are going to come from. I not only need to attempt to rule out the possibility of Lyme but other infections as well. My daughter's doctor shares the concern that infection is a contributing factor to her RSD, in fact he brought it up. Infection is obviously not a concern for many on the forum; but for some of us, it is a concern that needs to be investigated. Answers from conventional medicine are not going to happen soon enough for my daughter or for any of the wonderful people who visit this forum. In my opinion, for what it is worth, we all need to be open minded and willing to think outside the norm. A little brain storming never hurts. We can't allow egos, harsh criticism, or hurt feelings to interfere with beneficial dialogue. Jeanne |
Hello,
M.D. OZ is very impressed with the Under the Skin Video. I have never been to a psycologists, or DX with a mental illness. Lyme and co infections effect people different. http://www.oprah.com/article/oprahan...081126_oaf_moz Oprah Radio host Dr. Mehmet Oz talks with filmmaker Andy Abrahams Wilson and reporter Kathy Fowler about Lyme disease. http://www.oprah.com/media/20081126_oaf_20081126_oaf_mo I am sad to of heard of the young man falling thru the cracks of the system. This is why I have mentioned a Lyme Literate MD on several occasions. Lyme is very complicated and very difficult to treat. Their is a co-infection with Lyme where HBO treatments could be dangerious from what I have heard. Lyme is very expensive to treat. I test neg- for Lyme as well. Much Love, Roz |
Lyme/Parvovirus B19
Roz,
It was in fact a Lyme Literate MD who suggested hyperbarics for this young man. It was reported in a local paper that he was on 13 different meds. Who knows what if any part they played. Obviously, most people who suffer with Lyme do not develop mental illness. From what I have been told, it can settle in different parts of the body, creating a variety of symptoms. Like RSD, it is too often misdiagnosed and appropriate treatment is very hard to come by. Jeanne |
This is a tremendous thread and it's simply inexplicable I missed it. I'll have to go back and read the last five or six pages much more carefully but wanted to make a couple observations now.
"Given that CRPS patients are presumed to be in a constant negative emotional state and exhibit multiple signs of abnormal autonomic function, atrophy of right AI in CRPS corroborates the above studies and suggests that central anatomical abnormalities may explain fundamental symptoms of CRPS." I experience what I percieve as left hemisphere degeneration but it seems primarily in the pons and brain stem with some affect on the amygdala and frontal cortex. My RSD started with an injury but I have the impression that it was just lying in wait for a trigger rather than being the result of the injury itself. There were tiny clues in retrospect that there might have been precursors. I improve when given large doses of antibiotics. One thing that I think I can state categorically is that the changes in the brain are wholly independent of pain, at least for me. I very rarely have excrutiating pain and the pain I do experience is normally manageable. I suppose I spend a lot of mental effort to suppress it. I can certainly relate to the constant negative emotions. It's been a roller coaster between the lows of depression/ pain to the highs of paranoia/ anxiety. Fortunately there are a lot of things I can do and enjoy or I'd be a basket case. I still feel like I'm serving a needful function making the absurd seem obvious and helping family. I also have hobbies with which I can still spend time. The point is the negative emotion is caused by brain changes and is independent of pain. Apparently there are some RSD patients who don't experience pain at all. One has to question what is causing the changes in the brain if it isn't pain. |
Dear Folks,
Their is a co-infection with a tick born illness called Babesiosis, where HBO treatments can make it worse, people doing HBO might want to research this. Also HBO by itself will not kill LYME. It will help with medications going into a deeper level. Anyone taking an antibiotic, needs to know as well. Lyme will go into a Cyst form. So you need to treat the cyst form as well. This is why you need a Lyme Literate MD. Hugs, Roz |
Infections
Hi Everyone,
I promised God I would help if I got thru the horrid RSD pain that was off the charts. If you start researching you will see infections have cell forms, cysts, and L forms. You need to be under an MD's care, a HERX reaction can kill you. Absolutely nothing can show up in the blood work as well. Please hang in their, Love, Roz |
I wasn't sure what a HERX reaction was so i looked it up.
I'll post what I found in case others weren't sure about what it is. [Herxheimer reaction From Wikipedia, the free encyclopedia The Herxheimer reaction (also known as Jarisch-Herxheimer or Herx) occurs when large quantities of toxins are released into the body as bacteria (typically Spirochetal bacteria) die, due to antibiotic treatment or rapid detoxification. Typically the death of these bacteria and the associated release of endotoxins occurs faster than the body can remove the toxins via the natural detoxification process performed by the kidneys and liver. It is manifested by fever, chills, headache, myalgia (muscle pain), and exacerbation of skin lesions. Duration in syphilis is normally only a few hours but can be much longer, up to months or years, for other diseases. The intensity of the reaction reflects the intensity of inflammation present. The Herxheimer reaction has shown an increase in inflammatory cytokines during the period of exacerbation, including tumor necrosis factor alpha, interleukin-6 and interleukin-8] http://en.wikipedia.org/wiki/Herxheimer_reaction |
The protocol has been 2.4 ata with antibiotics . Currently some are changing to 2.0ata. I have just been involved with treatment of a Lyme Alzheimer patient and doctor. We saw amazing results with 2.0 ata and antibiotics.The lady had had Azheimers for 9 years. The doctor and I got amazing results from treatment and it was one of his family members. I have been treated by someone who has treated many, many Lyme patients.
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Their is a co-infection with a tick born illness called Babesiosis, where HBO treatments can make it worse, people doing HBO might want to research this. Have you studied it, since you are still in pain yourself. Alzheimer patients usually have different infections. Hugs, roz |
Wrong
Wrong, Roz. None of this is set in stone. Only theories and speculations. *edit*
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I'm closing this thread for now also.
cool down time.:grouphug: |
I am re-opening this thread after some edits and have also merged the new infections thread into it so the topic stays together
a few points to note #1 This thread is clearly labeled as related to infections. If the subject or poster(s) trigger you, please move on and dont post to it. #2 If members have a problem with a post that they feel violates our guidelines, please REPORT it using the report button http://neurotalk.psychcentral.com/report.php?p=480400 By retorting instead of reporting, you could find yourself in violation of the guidelines! again a reminder of what the guidelines say about posting at NT http://neurotalk.psychcentral.com/showthread.php?t=1293 Quote:
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#3 also stated in the guidelines: Quote:
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#4 there is a feature here to place another member on "ignore" if you find them upsetting. that means you will not see their posts nor be able to receive any PMs from them. I strongly recommend that those who feel triggered by others use that feature #5 please consider this an "official" warning that disrespectful posting to each other will not be tolerated here, on this thread or any other. I have clearly posted the guidelines above. If we have further violations, members could find their accounts in probation, which means all posts have to first be mod approved before appearing to the boards. We do *not* want to do that, but we also cannot have this forum disrupted by strife. It is not fair to anyone, least of all the members who are here to find support and information. Everyone is dealing with more than enough suffering with their illness. They dont need to be subjected to discord in a place that is supposed to be a safe haven. I would appreciate everyone heeding this thank you Cheri |
And let me just emphasize that we believe in everyone's right to their own opinions and interpretation of data and the research, just be respectful in disagreeing with one another. When an issue is especially close to us or our hearts, it can be challenging to try and keep a neutral attitude or viewpoint.
But we ask you do that anyways, because conversation and knowledge can't happen if people don't respect one another. Thank you. Best, DocJohn |
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