Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-03-2006, 06:43 PM #1
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Default Trying real hard to get through this

Todays been a hard day for me. I have been fighting back tears off and on.
The boys were here for awhile today with their dad. I hadn't seen them for a week. Bill and I always got them through the week one to two nights. We have had a blizzard here since Wed. I had planned to get them Wed. night but with the snow coming in we were afraid I couldn't get them to school the next morning. It snowed again all day yesterday so I have stayed in.

The kids wanted me to come over for a Thanksgiving dinner this evening but I declined. I hate coming home in the dark and cold and I didn't want to spend the night.

The kids rearranged their living room today so that they could put up the Christmas tree for the boys. I told Susan yesterday to do it so we could keep some normalcy for the boys. Their having trouble doing it because of Bill being gone. Travis and Susan's best friend died Friday night. One week from Bill's funeral so it's been a double wammie for them.

I am going to keep the boys Wed. night so they can attend the funeral. I am going to let them put up a small tree for us. I can't do it but I have got to try and keep things happy for them.

My phone doesn't quit ringing most of the time. I've been happy about that, it has kept my mind occupied and I have had company off and on all week. People checking in on me but the nights are really bad. This house is so big and now seems so empty.

I hope all of you are having some good days. I just wanted to drop in and say hi and to let you know that I'm still hanging on.

Have a good evening.
Ada
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Old 12-03-2006, 06:58 PM #2
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dear ada

i know we don't' know each other very well - i just want to say that i am praying for you and your family and i really hope that things will get easier. This isn't the same but I am losing one of my closest relatives to cancer at the moment - so I can empathise a little bit (as well as sympathise a huge amount)

I am sending you lots of virtual hugs - please let me know if there is anything useful I can do.

Love and hugs (pain free - of course! for both physical and emotional pain)

Rosie xxxxxxxxxxxxxxxxxxxxxxxx
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Old 12-03-2006, 10:49 PM #3
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Ada,
We can only imagine the feelings of loss you are going through.
We are here for you so talk about anything that you need to.
I think keeping a small quiet Christmas for the boys is a good idea.

sending Care and Hugs your way
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Old 12-04-2006, 12:26 AM #4
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Hello Ada: My thoughts are with you and your family. I wish there was something I could do or say to ease your pain. Just remember that all of us here care about you and send you hugs. Regards, Lil
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Old 12-04-2006, 02:03 AM #5
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Dearest Ada,

I wish I knew some words that might help you right now, but I don't. The pain of loss does diminish over time, but time passes so slowly; please know I share some of your grief and wish I could do something to relieve it...Vic
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Old 12-04-2006, 10:56 AM #6
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Ada, I'm sure you know that many of us can't say, "I know how you feel," because we truly don't. We can't even begin to IMAGINE it. I've tried, and know that I still cannot get the true feeling of how you are feeling at this moment. Although NO time is a good time to lose a soul mate, just before these two big holidays has to be a tremendously trying time. But, they say the first holidays without the loved one is the hardest, so at least you are going thru it now, and hopefully that means your healing can begin. Although, I can't imagine how hard this must be.

Hold onto the children, and love them enough for BOTH you and Bill. Take heart knowing that Bill IS truly with you during this time. Perhaps wear one of his favorite shirts to bed as a nightshirt, or if you are handy, sew it into a pillowcase so he's always "in bed" with you in some way. There are ways to keep him near and dear to you. If you feel up to it, gather some pictures and do a scrapbook of memories. There's no NEED to keep your mind OFF of this time. Its the good memories, the laughter in remembering those times, that you will cherish...so remember them.

You are in our hearts, and in our prayers...and we hope that somehow you can find peace.
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 12-04-2006, 10:18 PM #7
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Big Hugs ADA, I'm here if you need me ...

Love

Debbie
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