Hi Jonee, I am so very sorry for you and your daughter. I'm 62 and have RSD for 15 years now. I did have a couple remissions for a year or more in the beginning with PT. Now it is full body and internal. Abdomen and pelvic region. It is HOT to touch and internal fire-sweating skin. Very difficult to deal with. My gyn is looking for a compounding pharmacist to make up a cream to put on outside and inside. Others use it-ketamine, lidacaine . If you would like, when I get a prescription, I'll pass it on to you. There is a childrens wing for RSD at the Cleveland Clinic that some have been to. How old is your daughter? There are some young people-teenagers that have RSD and their mothers post here.
Please know how much we are-there is a lot of educated people here and always willing to share information, and be of encouragment. One of your new friends, loretta