NeuroTalk Support Groups - organ donation

Since, all of this is hypothetocol at this point, but still considering the importance of this question, I would like to have some input here. My theory on this is that since we really DON'T know the cause of RSD/CRPS or the consquences of the donation of one of our organs, I suggest we let those who are more healthy without a diagnosis that is questionable, carry the torch on this one. I can not imagine what it would be like for a desperate organ recipiant to receive an organ and suffer the consquences of this uncurable disease. You may argue that it should be a personal choice, but clearly there should be a standard set to resolve any liability.
When I first was diagnosed, I was sent numerous letters requesting my cadaver upon my death, for research for RSD/CRPS. Maybe, just my opinion...this is the path we should champion.
Here is a link for more information on RSD/CRPS. Again, just MY opinion.

http://www.ninds.nih.gov/disorders/r..._dystrophy.htm

What is Complex Regional Pain Syndrome?

Complex regional pain syndrome (CRPS) is a chronic pain condition. The key symptom of CRPS is continuous, intense pain out of proportion to the severity of the injury, which gets worse rather than better over time. CRPS most often affects one of the arms, legs, hands, or feet. Often the pain spreads to include the entire arm or leg. Typical features include dramatic changes in the color and temperature of the skin over the affected limb or body part, accompanied by intense burning pain, skin sensitivity, sweating, and swelling. Doctors aren’t sure what causes CRPS. In some cases the sympathetic nervous system plays an important role in sustaining the pain. Another theory is that CRPS is caused by a triggering of the immune response, which leads to the characteristic inflammatory symptoms of redness, warmth, and swelling in the affected area.