Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-18-2009, 09:31 PM #1
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Thumbs up RSD and DENTAL PROBLEMS

hi all i wanted to know who has had problems with teeth and RSD . as i have found out that i have infected molars in the back that now has gone into the jaw bone.. what treatments have you had for teeth and so on ...

just want to see what everyone else has had done

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 03-18-2009, 10:05 PM #2
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Default Hi Carrie,

I lost all my teeth before RSD but I just wanted to say I hope the dentist will have knowledge of the RSD to help you. Those toothaches are bad.

Feel better soon.
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Old 03-19-2009, 05:02 AM #3
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Hi Carrie,

I'm sorry to hear about your dental problems ! I really hope you can get everything sorted soon and start feeling better.

I also have problems with my teeth now that I have RSD. My teeth used to be fine and hardly every needed any treatment but now they chip all the time and can get infected pretty easily.

Since having RSD, in the space of about 3 months, I have had to have a Root Canal, Filling and a tooth extracted. I was SO scared of going to the Dentist at first as I thought it would cause the RSD to spread but figured it was better than having to deal with any additional problems.

One of my friends has suspected RSD and she has also had to have a Root Canal. Her Doctor said that all of the dental issues were linked to the RSD and that it is pretty common. I never thought of it before but it seems to make a lot of sense as RSD can mess anything up that it wants to do!!!!

When I went for the dental treatment, we told the Dentist all about RSD and asked him to read up on it. We also took an article about RSD and Dental work and it stated that RSD patients usually need double the amount of Anaesthetic than a "normal" person to try and prevent any spreading. It took 6 shots of anaesthetic for one of my teeth to go numb!!

My Dentist was very good though and read up on everything and knew what to do beforehand. If you need any dental work, I would definitely talk to your dentist about the RSD and make sure he knows what he is doing beforehand. If you look on the American RSD Hope Website, there is an article about RSD and Dentistry that you might find useful ... it is the article that we used and took to my dentist.

Take care and please keep us updated when you can! I'm sorry that you are having to deal with all of this!!
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Old 03-19-2009, 06:59 AM #4
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Default Hyperbarics for Bone Infection

Hi Carrie,

Please do some research into the use of hyperbaric oxygen treatments for bone infections. I do not have the time at the moment (just popped on for a minute and need to get to an appointment) to look into it for you; but if I remember correctly, bone infection may even be one of the "approved" applications and thus might be covered by insurance. You might also want to talk to Diana to see what she knows about hbot as a possible treatment option.

Wishing you the very best,
Jeanne
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Old 03-19-2009, 01:03 PM #5
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Hi carrie,

I hope your infection is getting better. Your getting bombarded!

A few months ago I had a tooth snap of at the gumline and then a second. I had read somewhere that Gabapentin can cause dental issues (which I had been on) Gabapentin tossed in the woods! My dentist always said to me that I had very strong gums/teeth/bones and would have my teeth for a very long time. I do not have full body rsd like you but think that the RSD is strange enough to cause just about anything. Let alone the drugs consumed.

Keep on top of that infection. I know you have really great drs. so you are in good hands.

Hope you sleep better tonight!
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Old 03-19-2009, 01:11 PM #6
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Default Hbot and bone infections

carrie,
Hi! I did a quick search as Jenno suggested. She was right here is the link for it. I am not sure about the insurance part of it, but you might look into that too. Hugs Di


http://www.nlm.nih.gov/MEDLINEPLUS/e...cle/002375.htm
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Old 03-19-2009, 01:57 PM #7
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Quote:
Originally Posted by jenno View Post
Hi Carrie,

Please do some research into the use of hyperbaric oxygen treatments for bone infections. I do not have the time at the moment (just popped on for a minute and need to get to an appointment) to look into it for you; but if I remember correctly, bone infection may even be one of the "approved" applications and thus might be covered by insurance. You might also want to talk to Diana to see what she knows about hbot as a possible treatment option.

Wishing you the very best,
Jeanne
When I did my 20 HBOT therapy sessions there was a young girl in with me who was about to have all her wisdom teeth out. Because of a previous history of cancer the doctors believed this to be the best way to prepare her for the upcoming dental procedure.

Good luck with this Carrie.

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Old 03-22-2009, 07:42 PM #8
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thanks to all for helping i appericate it tons.. so sorry it took for me to get back .. been tryin to sleep as much as possible this weekend.. i will get that article and take to the dr .. ihave to make the appt this week.. thanks all for the advice
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hope this finds all in less pain
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 03-23-2009, 09:33 AM #9
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This is just an FYI to everyone. I am having sever plaque build up. My dentist is cleaning my teeth more often. He says its because iof the meds & RSD. I use a special toothpaste at night you dont rinse out that protects your teeth. My doctor says this all puts are teeth & jaws at risk for all kinds of problems. I now floss my teeth everyday also (I was bad about that before). Just thought I would share that with you. He says its impararive that I stay on top of my teeth with everything else going on.
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Old 03-23-2009, 07:51 PM #10
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If you have dry mouth due to the meds you are taking good dental hygeine is a must. But it can also cause major tooth decay.

I had bad teeth to begin with no matter how well I took care of them via dental hygeine & the dentist but dry mouth ruined them completely & i ended up having to have what teeth I had left removed completely. I now have dentures. Good luck. Luckily for me my dentist already had a patient with RSD so knew how to treat my mouth. I never had any RSD set into my face. You need to get that infection taken care no matter what he does.

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