Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 03-29-2009, 12:58 AM #11
Twinkletoes's Avatar
Twinkletoes Twinkletoes is offline
Grand Magnate
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Twinkletoes Twinkletoes is offline
Grand Magnate
Twinkletoes's Avatar
 
Join Date: Jan 2008
Location: Beautiful central Utah
Posts: 4,611
15 yr Member
Default

Hi Ali! I guess we're both pretty new at having "issues": my 2 year anniversay of MS dx is in 3 weeks.

I've read your posts for the past year (since I've been on NT) and had not realized that you had sprained your ankle! I didn't know that could be the start of RSD sx!

A year ago I was on crutches from a broken ankle. Glad it didn't turn into RSD!

You have such a good and positive attitude. I hope things improve for you, sweetie.
__________________
Rochelle
.



.


I've lost my mind ... and I don't miss it!


LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF!
Twinkletoes is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ali12 (03-29-2009)

advertisement
Old 03-29-2009, 07:11 AM #12
ali12's Avatar
ali12 ali12 is offline
Magnate
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
ali12 ali12 is offline
Magnate
ali12's Avatar
 
Join Date: Jul 2007
Location: Yorkshire, UK
Posts: 2,463
15 yr Member
Default

Thank you all SO much for your kind words and support - it really means a lot and I honestly dont know what I would do without all of you guys - you're the best!!

It was pretty tough dealing with the anniversary as I think it made me realise that I have had this monster for 2 years now and there is still no signs of it going into remission. My PTs are now starting to realise that they need to do something else to try and get the Dystonia from the RSD under control as my leg has been rotated out to the side for 2 years now and there is still no signs of it coming back into line no matter how many meds or therapies we try. We are now considering using Botox as a last resort and I see my Neuro PT on Wednesday to discuss that - i'm a little scared about it though as I have had a nerve blolck and it made me worse but hopefully this should work once and for all!! I know it wont cure the pain unfortunately but hopefully, it will reduce the dystonia and some of the pain that goes along with it. I'll let you all know what the PT's say when I see them again on Wednesday!!

I'm so glad that I can help you all just by replying to posts - you have all done so much for me so its the least I can do!! It's hard at times trying to be positive when all I want to do is cry in bed but I 'manage' somehow. I still have my days where all I do is cry and lay in bed but try and find something to take my mind off the pain even if it is just for a little bit!!

Twink - Yes, you can get RSD after an ankle sprain. I think its one of the most popular injuries actually that turns into RSD! It's scary thinking that just an ankle sprain can turn into RSD but it can unfortunately! You can get RSD from any injury and it can come on on it's own sometimes without any known reason! I hope youre doing well!

Thanks again everyone for your kind words and support - it means a lot!
__________________
To the World you may be one person, but to one person, you may be the World.
ali12 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kejbrew (03-31-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
7 year anniversary of RSD frogga Reflex Sympathetic Dystrophy (RSD and CRPS) 6 01-09-2009 02:40 AM
Happy 8th Year Sober Anniversary, Dorrie Chemar Alcoholism, Addiction and Recovery 8 12-05-2008 11:40 PM
10 year anniversary of a loss!! sabimax The Stumble Inn 26 07-28-2008 08:43 PM
one year anniversary.....(LONG) mommywms The Stumble Inn 8 02-07-2008 01:37 PM
15 days till my 1 year anniversary w/dxis: long ckepi The Stumble Inn 14 01-29-2008 02:32 PM


All times are GMT -5. The time now is 02:42 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.