NeuroTalk Support Groups - questions about Opana ER

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - questions about Opana ER (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/82266-questions-opana-er.html)

Quote:

Originally Posted by Jimking (Post 512182)

Suzy has been prescribed, amongst many others, methadone which she became very ill from, percocet, same reaction and a couple others I don't remember. She handles vicodin and oxicodin well. She is trying to ease into the morphine but I don't have high hopes. She will most likely wait out the month and reapply.

Jim,
I don't know how Suzy has tried these meds. But, one thing I learned, is I will NEVER try more than one new med at once (Unless there's a specific reason). Because I want to know what they do to / for me, individually.

Also,
If I get a big side effect, as you say Suzy has had, could it be the dosage is too high, (she might need to titrate up), and also as I said, too many in the mix?

Just a thought...

Pete
Asb

That's tough but we have to be... :hug:

Quote:

Originally Posted by AintSoBad (Post 512335)

DEW,
For some,
the "Euphoria" is the pain relief.
For me, percoset always made me feel as if my feet weren't quite touching the floor.. (Oh, I'm hang gliding again!)
I only took them for two (weekend) periods after tmj surgery, long ago.

But, straight pain relief, without the Buzz, is where it's at!
(Am I being cruel?)

The point is, the closer you can get to "Living a Normal, YOUR Normal life, wether that be raising children, working, driving, etc."
That's success, at Managing RSD.

Then, we must deal with our bodies aging.
(The alternative is not good).

So, back to the "Triangle of RSD management"

Meds = Your Doctor and You

Mood = Your neuropsych doctor and You.

Body = Excercise, You!

Keep that body ready for retirement, even though you may feel that you're retired, or simply "existing" now.

Do I practice what I preach?

A Question for another day....

Pete
asb

Quote:

Originally Posted by AintSoBad (Post 512404)

Good morning ASB! Good point about maybe the dose is too high. I will mention it to her. After 4 years with no meds, lousy treatment from both her employer, doctors and insurance company and finally started to receive good treatment to control her pain after she was dumped from her company's payroll it was in these early days of treatment she tried methadone, percosets etc. slowly in order to find what worked better for her. After sometime it was vicodin (the strongest version) and 2 per-day 40mg ER oxycodin that she received the most relief. The other meds she takes are for muscle cramps, bone issues, lidocaine cream and inflamation meds. She refused to take any drug that will increase her weight. She has steadfast refused any evasive treatment at all cost, ever since her original injury, that caused her RSD including blocks, stimulators etc. Her fractured right wrist is still damaged from the reset the doctors performed (original injury) in which she still has torn cartilage and rubbing bone issues. To this day she wears a brace on her right arm and has been for 7 years. She has been warned by two doctors that physical therapy on her bad arm is a no no until she has surgery to correct this mess but are very afraid of her RSD spreading. There are no trapped nerves in her right hand and arm but sometimes I wonder about this, that there is a trapped nerve the EMGs missed causing her RSD symptoms. However she has had PT at GW hospital in Washington and several ketamine and lidocaine infusions. This Opana thread is very interesting because I can not recall reading anywhere a drug or procedure that has given those with RSD a high level of relief other than ketamine and or early detection followed by aggressive PT. I'll suggest to my wife the dosage issue and if she finally does receive Opana maybe the dose should start out lower around 10mg instead. I'm hoping she'll find more relief from her pain than she is now.

Quote:

Originally Posted by Jimking (Post 512655)

Jim,
We all wish Your Wife and you the best!
You should read the methadone thread as well.

Some doctors just write a prescription and slide it over to ya.
No explanation.
But, I think it's wise to start slow, and kind of "figure out" what this med does to/for you, one at a time!

Hope this helps, don't be afraid to PM me, if I can help.

Pete
Asb

Quote:

Originally Posted by Jimking (Post 511698)

The only lawyer we have now is one specializing in SSDI. We had another who was looking for a connection with her former employer and health insurance company to see if she was terminated from her employment do to the insurance company's negligence releasing both parties from any obligation pertaining to her RSD.
BC/BS told us Opana is not on their list of drugs because it is relatively new. The insurance company wants Suzy to take what they consider a generic version of Opana which appears to be morphine sulfate for one month first. 4 30mg per day and 2 60mg time-release per day. She started it yesterday and became somewhat ill from just one 30mg. Dew, Suzy seems to think that Opana is just like morphine and may make her ill anyway. I've explained that it may not be just like morphine even though it is morphine based, but it may not have certain side effects as morphine. Can anyone attest to this? Thanks!

I am allergic to morphine, but can take Opana. I personally do not like Opana as I am still on 10mg in the am and in the pm with no pain relief!!!

I was on Opana ER 40mg 2x a day for 16 months. The last 4 months I noticed that I got really bad headaches all the time and pain relief for only 3-4 hours at a time. My PMD put me on methadone at 15mg 3x's a day. This has helped with my pain and no more headaches.