Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-24-2009, 09:53 AM #1
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Default questions about Opana ER

Hi all,

Just wondering if anyone else has been rx Opana er. My new PM has taken me off Percocet and morphine and said that Opana is better and stronger. It is a hydromorphone hci. I'll start at 10mg every 12 hrs. and he'll be titriting me up over the next few weeks? Just wondering about the use.

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mary\
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Old 03-24-2009, 09:06 PM #2
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Hi Mary,

My daughter started opana, but it didn't help her. But, she just finished the pain rehabilitation program at Cleveland Clinic Childrens hospital. She is completely off of pain medication. She is doing very well she has CRPS in her left ankle leg and hip. She is now wearing blue jeans, and going to school, she went for a two hour walk today. But, my understanding is that opana is a derivative of morphine. It has been my daughters experience that the pain medications do not take the pain away, they only make her feel out of it!!
Her pm said she has patients who have good results with it. so much luck to you. I think everyone is different. I hope it takes your pain away.






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Originally Posted by lostmary View Post
Hi all,

Just wondering if anyone else has been rx Opana er. My new PM has taken me off Percocet and morphine and said that Opana is better and stronger. It is a hydromorphone hci. I'll start at 10mg every 12 hrs. and he'll be titriting me up over the next few weeks? Just wondering about the use.

Hugs
mary\
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Old 03-25-2009, 08:55 AM #3
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Default Opana ER has been a life saver for me

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Hi Mary,

My daughter started opana, but it didn't help her. But, she just finished the pain rehabilitation program at Cleveland Clinic Childrens hospital. She is completely off of pain medication. She is doing very well she has CRPS in her left ankle leg and hip. She is now wearing blue jeans, and going to school, she went for a two hour walk today. But, my understanding is that opana is a derivative of morphine. It has been my daughters experience that the pain medications do not take the pain away, they only make her feel out of it!!
Her pm said she has patients who have good results with it. so much luck to you. I think everyone is different. I hope it takes your pain away.
Hi wanted to let you know, Opana ER has been a life saver for me. I take it with Lyrica 150 mg of Lyrica and 40 mg am and pm of Opana. I was in crisis and nothing else was working, we tried fentynal patches,and every other drug you have heard of. this is the only combination that worked for me and it was immediate. the Lyrica controls my severe burningl. The two together have been a winning combination for me. I of course also have to have breakthru meds, but I have a very severe full body case of RSD,(dont we all)-so I also take 4 -30 mg oxycodone for breakthrough pain as needed. I hope the opana works for youo too. dont forget to couple it wht Lyrica for the buring. Take care and good luck. CZ
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Old 03-25-2009, 09:19 AM #4
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Well, I've taken my 2nd dose of both the Opana and Lyrcra. I will say that I had the best nite sleep that I've had in a long time. As I was without any pain meds for almost 24 hrs before I took it, I was able to notice how it was working. After a few hrs I noticed that the pain was really down. Slept great, woke up ok. a little groggy, but not bad, took care of the horses, dogs cats, my new little kitten who was just spayed yesterday, and went back to bed to play on my computer. I did take my 2nd dose as soon as I woke up. It's been about3 hrs since I took my 2nd one and I still feel sleepy, but not as if I need to crawl into bed and sleep. Pain wise it feels ok, nothing more then the average person has. I really think this will work. I know it will take a bit to get used to the meds, but I'm excited about this. I've tried so many meds that I don't want to get my hopes up, but it's getting up there. Keep you fingers crossed. I know this is kinda a new med in pill form, and I've read some awesome reviews about it. It also came with a card that give me a 25 dollar payment to my co-pay for 12 months. It comes from the company. It is really great. so, if my co pay is 50 then I only have to pay 25. great deal..


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Old 05-10-2009, 05:31 AM #5
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Quote:
Originally Posted by lostmary View Post
Well, I've taken my 2nd dose of both the Opana and Lyrcra. I will say that I had the best nite sleep that I've had in a long time. As I was without any pain meds for almost 24 hrs before I took it, I was able to notice how it was working. After a few hrs I noticed that the pain was really down. Slept great, woke up ok. a little groggy, but not bad, took care of the horses, dogs cats, my new little kitten who was just spayed yesterday, and went back to bed to play on my computer. I did take my 2nd dose as soon as I woke up. It's been about3 hrs since I took my 2nd one and I still feel sleepy, but not as if I need to crawl into bed and sleep. Pain wise it feels ok, nothing more then the average person has. I really think this will work. I know it will take a bit to get used to the meds, but I'm excited about this. I've tried so many meds that I don't want to get my hopes up, but it's getting up there. Keep you fingers crossed. I know this is kinda a new med in pill form, and I've read some awesome reviews about it. It also came with a card that give me a 25 dollar payment to my co-pay for 12 months. It comes from the company. It is really great. so, if my co pay is 50 then I only have to pay 25. great deal..


Mary
Mary I am so so happy for you!! Thrlled that the Opana is helping you too. WE can never really belivie when we find something that truly lowers our pain threshold. It is so wonderful this is helping you too. Im so glad you tried it!
Sincerely, CZ
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Old 05-10-2009, 06:47 PM #6
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CZ,

Well, my dr and I decided to keep me at 20mg 2 x a day with Opana ir 5mg for breakthru pain. I went off the Lyrica, and I do feel better. My hands we getting to be so swollen that I couldn't close my fingers. It's gotten better since I went off the Lyrica. But I love my Opana ER. I feel like a new human being and I have some excitement back. I wish everyone here could/would take it and it would be as wonderful for them as it is for us.

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Old 05-10-2009, 07:26 PM #7
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im glad that some have found something that works wonders for them
it makes me feel better knowing that some are able to regain as much as normal life as they can!!! its great!!!

carrie
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Old 05-11-2009, 09:34 AM #8
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Opana ER has changed my life for the better. I feel so much better. I am glad that you have found relief from this lifesaver drug

Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 05-11-2009, 10:14 AM #9
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Quote:
Originally Posted by lostmary View Post
Hi all,

Just wondering if anyone else has been rx Opana er. My new PM has taken me off Percocet and morphine and said that Opana is better and stronger. It is a hydromorphone hci. I'll start at 10mg every 12 hrs. and he'll be titriting me up over the next few weeks? Just wondering about the use.

Hugs
mary\

Hi Mary,

I did take Avinza, which is the same as Opana, for a while and yes it did work for Pain but the problem I had with it,was that all morphine based meds damage your teeth. What happens is it dries up the salvia in your month which does keep the mouth and teeth clean in-between brushings and such. Without the salva it causes decay and a lot of it. Maybe check with your dentist before you start. I have also done ketamine therapy which also contributed to the teeth problem, the ketamine changes your PH in your body. I am posting this because I wish someone would of warned me. I have lost quite a few teeth, in the back thank goodness, but I stay away from those type of meds. Also, I had great teeth prior to all meds I did not even have a cavity until I was 25 and only had 2 or 3 by the time I was 40. Now after the RSD I lost count between Root Canals, Cavities and extractions.

Good luck and be carefull...

Gabbycakes
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Old 05-13-2009, 03:48 PM #10
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Went to the pm doc today with my wife today and brought up the subject of Opana with her doctor. She wrote out a one week prescription for 20mg 12 hour time release for Suzy to take every 12 hours to see if she gets relief from it. The doctor sent us to a particular pharmacy to fill the prescription and they refused because the insurance company said no. I hate insurance companies and can rant all day about it but wont. The insurance company said Suzy should not take the time released version. That makes absolutely no sense to me and I will straighten it out.
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