I am waiting to see my family doc, who is the one that does my meds - to clear it with her in case I need a short run of 24/7 pain meds -- then I think I am going to go for the botox my neuro recommended.

So --- even though I had a really rough time last time, I think it helped enough that it will be worth it.

I hope that you take my willingness to do this again as encouraging!

I am sure it will help you.

I didn't find the injections all that bad ---- maybe for a "normal" person but not for someone with RSD -- we are used to far worse. I can't imagine being put under to have it done. It wasn't that bad! For me the pain was a lot worse a week later.... but like I said, my Doc is the expert around here, and says I am the only one who has ever reacted this way.

I bet this is what gets you on the road to normal movement again!

one week post botox
 

Hi everyone!

Ali I am doing quite nicely actually. I am seeing the benefits of Botox. My arm & hand fingers are straightening out. I am still having some and my hand is rather weak/finger dexterity funky. But the pain is much less quite bearable. They told me 1.5 to 2 weeks I would notice the full effect. So I am feeling on top of the world. I think if they offer botox it would be a good "shot"s. My Orthopedic Surgeon who specializes is the one that did mine. He is also the one who did my surgery with a very positive outcome. Ask a zillion questions until your gut says its good for you. I was told this is the last chance for treatment of my dystonia. You are so young to have to make decisions that I as a grownup (child at heart ) have trouble with. You are so smart to be educating yourself for treatments. I wish you love and lots of big huge future!!!!!!

DebbieXXYou can PM me anytime if you have questions Im open