I HAVE BEEN LIVING WITH CRPS FOR OVER 15YS NOW, I HAVE TRIED EVERYTHING.....IT HAS COME TO THE POINT THAT I AM CONSUMED ALL THE TIME WITH THE PAIN AND BURNING. I GIVE UP

You can't give up. But I do know where you are coming from. Been there, done that.

Could you tell us some of the treatments you have had and meds you have been on?

The more we know, the more help you might be able to get from others on here.

Glad you found the forum. You will learn a lot here.

Ada

Hi CHOP, I am so sorry that you are in so much pain! It must be so aweful to NOT get a break! Before givin up, try hanging around here for awhile. Read, or just join in anywhere.

I was at my wits end & happened to stumble upon these Great people here. I have found so much info! PLUS the caring support.

I hope you can find your way. My Thought & Prayers are with you.

I am confused? i have had r.s.d. for 15 years my pain is allways there. i am in stage 2. one thing i have learned is do not baby your pain i do not baby my right side i go get my shots every eight weeks. i hate what i have but it will not get the best of me.i am to young at age 52 smile. but for real i get to so much pain then i asked myself what about the people whom have cancer or outher sicknesses . i will pray for you. but do not give in to it .GOD BLESS KIM

Hi CHOP,

I'm so sorry that you're in so much pain. But, you're in the right place. We all know how you feel. We understand.

I agree with all of the comments listed before mine. Don't give up. I hope you find comfort in that there are many, many people here that experience similar pain to yours.

Give us more information and maybe we can help?

Hi CHOP,

I'm SO sorry to hear that you are in so much pain right now but as the others have already said, you simply CAN'T give up!!!!! I know it might not feel like it at times but there is always hope and without hope we have nothing!!!!

I have had RSD for 2 years now. It started in my left leg when I was 12 years old after an ankle sprain and has since spread to my left and right arms. Many times I have felt like giving up and kept saying that life isn't worth living but trust me, it IS, you just have to find positive things to focus on and things that make you smile.

I still want to give in at times now. I am going through a rough time right now and no treatments have helped me really so my doctor is having to seek further alternatives but they all have risks involved BUT I am not giving up hope and always remain optimistic that things can get better.

Do you see a Psychologist/Psychiatrist?? They can really help you focus on things and prescribed medications to try and help if neccasary. My first Psychologist was horrible and didn't help at all but I later found another one that is lovely and has taught me different breathing techniques etc to try and help with the pain and stress etc, thats not to say that I still dont get stressed and angry, I do but I can "cope" with it a little better now. It might be worthwhile looking into seeing a Psychologist if you don't already - I know it sounds a bit scary but they can really help if you find one that knows what they are talking about!!!

What sort of treatments have you tried so far?? Don't ever give up hope that nothing is going to work for you - there is always something being invented that could help you!! Have you tried anything like HBOT etc? I have heard from quite a few people who have had positive results with that (all though of course it is different for everyone!).

I agree with what the others have said also, exercise is an absolute must!!!!! I KNOW it is extremely painful but it is probably the one thing that will help you in the long run!! I have a hard time doing PT and exercising but as my PTs said, I other use my limbs and try and keep mobile or dont and lose them altogether!! My Doctor also has a good way of looking at things - he says that we are in pain whether we are sat around doing nothing or doing something so we may as well try and do something!! I never thought of it that way but it does make sense and I think a lightbulb went off in my head when he said that!!!!

Please don't ever give up hope - there is always hope, it might take a bit of time for things to start getting better but they will!! Your family need you and so do your friends and us so please, stay strong, even though I know it is hard at times!!!

Take care of yourself and know that we are here for you and care about you! If you ever need anyone to talk to, please know that I am here for you because I DO understand what you are going through!!!

Alison

I don't think it's a matter of babying your RSD. I think it's just a matter of watching what you do that might cause more injuries.

Physical Therapy, I feel is good for RSD, it's just who gives it and how much they know about RSD.

I agree with you, when we are feel like we are bad off, take a look around, cancer, MS and other medical problems that people were born with. I have a cousin that has Ceberal Palsy. She is now dying from cancer. Never saw a day out of a wheelchair so we do have to look at it the way you feel.

I didn't mean to take this away from CHOP's thread but I just wanted to answer your question.

I do realize though with the pain of RSD and what we go through, it's hard at times to look around us.

Ada

You are in my prayers for that fighting spirit that has kept you going for the last 15 yrs. of RSD..to arise within, once again.

I have had RSD/CRPS I for the last 2 yrs. Currently, it has spread in both legs,both hands, and my spine. I am not working, and recently applied for SSDI in 01/09. I take my meds, do physical therapy, and I found that creating Art work takes the focus off of my pain. I am quilling constantly..the art of paper sculpture by curling paper.

Do you have any hobbies that you enjoy? A puzzle is always a great escape from the focus upon oneself; meaning, the pain and all the discomfort that comes with RSD.

I wish you peace..people care about you.
Your experience dealing with this RSD culprit for the last 15 yrs. is useful to others. Share your knowledge.

Dew

chop
hi i am so sorry that you rsd is relentless. i have full body rsd for 11yrs and i know exactly how you feel .. sometimes you want to give up but YOU CANT!!! dont let rsd win ..let us know what kind of treatments you have had. i had to have pump put in to help with the pain. and it has reduced my pain enough that i am able to do alot more.. i still have horrible flares and pain daily .. please hang in there stick around for support it really does help

carrie
pm any time

carrie

How are you doing? Better I hope.

Hang in there, things do get better.

Ada