Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-26-2009, 04:11 PM #1
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Default Weather change and chest pain.

We have a blizzard coming in to Colorado today. We are suppose to get 8 to 12 inches. That's what I think is messing with my chest pain.

Question is: How do you figure out what is causing a chest pain? How do you seperate the symptoms? RSD, Costo, TOS, Fibro, and heart problems?

Ada
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Old 03-26-2009, 05:40 PM #2
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Exclamation Take This Seriously

I don't know the answer to this question. However, when anyone tells me they are experiencing chest pain I take it seriously. Call your physician and/or go to the ER. I hope you have someone there with you.

Worried
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Old 03-26-2009, 05:55 PM #3
LinJane LinJane is offline
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Default chest pain

Dreambeliever, I know your name from the TOS website. I am new at the RSD site. When there are atmospheric changes, i.e., rain, snow, etc. I feel alot more pain than usual. Today in NJ we are having rain and my pain is so much worse. I have TOS and RSD and my pain is in my right shoulder, chest area. Today I seem to be holding my chest, on the right side, all the time. I don't know a medical reason for it but know it happens to me. I saw the news today that you were going to have alot of snow so I hope you are ok. Good luck and try to take it easy.

My son is 16 and has just learned CPR in school. He saw me holding the right side of my chest the other day and thought he needed to do the procedure! He is 6' and about 230lbs. I am 5'2" and about 120lbs. I told him he would kill me!! It was my TOS/RSD/not a heart attack!

Hope you get through this weather and pain! Don't shovel! Linda
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Old 03-26-2009, 06:25 PM #4
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db128,
I've learned that most of us w/TOS, tend to rotate our shoulders inward, and rest our arms in our laps. This is the most "naturally" comfortable position with TOS.
But,
If you have heart issues as well, I' not a doctor, therefore, and even if I were a doctor, I' want to be SURE about my heart!
As a matter of fact, my own Doctor had a HAttack recently, and he told me of the "Elephant on the chest" feeling.
That's a far cry from TOS.
Apparently I don't live so far from LinJane, and the cold rainy weather here, took me out today, too.

Just be sure, OK?
This is a question you should ask your doctor.

ASB
Pete
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Old 03-26-2009, 07:09 PM #5
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Default Hi Girls,

I do think you are right on the TOS. I have had surgery on the right side and had a rib removed but on my left side I only had 3 inches of muscle taken out from under my arm to calm the chest pain. I just haven't dealt with it in a couple of years. I do see my Dr. tomorrow and he will give me some triggerpoint injections to try and calm it down.

I do have CAD and some other issues and now I am dealing with high cholestral. 345 and high blood pressure. He just checked me last week though and he said I sounded good. I do have a lifeline if I need any help but we do have a blizzard going on and the wind is blowing really hard. I think that is adding to my problem. I wouldn't even want to get the ambulance drivers out in this weather.


Linda, my grandson's are 14 and 15 and already taller then me and they know not to hug me too hard. I wouldn't want them to do CPR on me neither. LOL

Thanks for the help. It's just so darn confusing to try and figure out what is causing what. I know my body pretty well but this one I never can figure out.

Thanks again,

Ada
Sorry Pete, for calling you a girl. LOL
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Old 03-27-2009, 07:46 AM #6
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Default

Ada, as I said I am new to this site but I also saw, poor Pete, being refered to as a girl, LOL! I am sure he's ok!

I appreciate the information here but am also very interested in everyones treatments. Right now they have me on neurontin and now oxycontin. I don't like taking that. I had a problem with it years ago and don't want to go through it again. I want to know if anyone has had the Ketamine infusions. That's what they want me to do and I have no idea if I should. Thanks, Linda!
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Old 03-27-2009, 08:27 AM #7
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Arrow Yes indeed

Hi, my name is Kim ,i have had r.s.d.for 15 years. i just got done doing a heart test it came back fine the doctor said it is from my r.s.d. .Me i was not surprized. it is a very trickey thing. god bless kim
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Old 03-27-2009, 08:45 AM #8
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Girls,
I've been called Far worse than anything you can do by including me as a "girl".
Hahaha!
It's all funny.
We all need a little laugh occasionally.

Linda,
I had the Ketamine (not the coma) in Philly.
I was monitored, as far as heart. It can have a side effect of stopping your heart.
They titrate the ketamine up to a certain percentage.
We know that pain is a "cycle".
The Ketamine is just another way of "Stopping the Cycle".

If you have the coverage, or paying for it is not a problem, and you trust your doctor, I'd say go for it.
Feel free to PM me.

ASB
Pete
(Just one of the girls)!
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Old 03-27-2009, 09:40 AM #9
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Default Good Morning everyone.

Pete, I went back in to change that title but it wouldn't let me change it so I felt I had to say sorry. Are you one of those guys who don't care what they call you, just so they call you to dinner.

Linda, There have been several on here that have had good results from ketamine treatments. I have had the shots. My PCP gives them to me and he had special ordered the ketamine a few years back. He also uses lidocaine for my TPI's. I would definatly think about doing it.

We got 8 inches of snow and suppose to get more. The roads were closed last night around us and up to 10 feet of snow drifts. The mountains were suppose to get up to 2 feet but I'm betting they got a lot more. We needed the moisture too. I don't know if I will make my Drs. appt. today even though it's only a few blocks away. Underneath the snow is solid ice. I just went out and cleaned my car off and it is a heavy snow.

My chest is still hurting along with the left side of my head. It has now went around into my shoulderblade area. Sure now it's TOS.

Linda, I am glad to see you here. My brain isn't too good at memory issues anymore. I will be 58 this year and I chalk it up to old age. Also between all the Linda's and Debbie's we have had on the forums when I get an email from one of them, I am thinking which one is this and what are they dealing with?
Sorry for that too.

Glad to see you here.

Ada
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Old 03-28-2009, 10:17 AM #10
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Default Hi,

The snows about melted but it's still cold.

I got two shots in my chest yesterday. My Dr. thought too it was the TOS and the Fibro doing it's thing due to weather change. I laid on a heating pad last night. The shots did the job. This is about the second time he had to give me shots there for the TOS since I had the 3 inches of muscle taken out to calm it. Before that I had many. Thank God for a good Dr.

Now if summer would just get here.

Ada
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