[CRPSbe]

Have any of you who have permanent disabilities due to RSD/CRPS had problems with disability check-ups and with doctors who aren't knowledgeable about the condition?

In my country it's like a lottery. It depends on which doctor you end up with at those check-ups, and it doesn't seem at all fair that they can present you with a doctor who isn't knowledgeable about RSD/CRPS.

I am from Europe, have RSD/CRPS since September 21, 1995 due to a car accident (almost 14 years) and I am disabled because of late diagnosis (almost 3 years into the RSD) and late stage RSD in both legs. I also have chondromalacia patellae due to the accident (both knees). Since 2008 arms/hands have started giving me problems as well. So I have this in 4 limbs now.

I was granted disability for 8 years (knowledgeable doctor), and then saw a few doctors at those check-ups who didn't know RSD/CRPS at all, consequently my disability payments were abruptly taken away from me last year. I have had to go on wellfare because of it.

Professionally, I am a multilingual secretary and haven't been able to work since 1997. Back then I wasn't on disability yet, but on a different system for about three years that occupies itself with temporary disabilty (depended on the doctor there as well). I wasn't diagnosed until 1998.

Anyone recognize this? Is my country the only one with this problem?

I know someone who has 1 RSD affected hand and was granted permanent (for the rest of her life) disability payments by the same government that suspended my disability payments (and I have 4 affected limbs). It all depends on which doctor you end up with and I'm not the only one with that problem. It isn't fair, is it?