Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-31-2009, 09:51 AM #1
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dreambeliever128 dreambeliever128 is offline
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Default Hi Jenelle,

I wanted to say about your arms falling asleep. Mine did that too. I also have TOS so I chalked it up to that. I spent almost 4 years in PT though and they stretched my fingers and arms and massaged them and I no longer have that problem.

I have the deep nerve pain too. I can't squeeze my body anywhere without making myself hurt. I don't know if we can get rid of that part. I haven't.

I am doing great with my RSD though. I have been off my meds for months so I do know that it can be done. It does take time though to get to a better place with the RSD.

Ada
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klb1553 (04-01-2009)
Old 04-06-2009, 04:30 PM #2
Jennelle Jennelle is offline
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Default You are all wonderful!!!

Thank you for the warm welcome!!!! I have a question for you what is TOS?
Jennelle
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Old 04-06-2009, 06:16 PM #3
SBOWLING SBOWLING is offline
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Default

Quote:
Originally Posted by dreambeliever128 View Post
I wanted to say about your arms falling asleep. Mine did that too. I also have TOS so I chalked it up to that. I spent almost 4 years in PT though and they stretched my fingers and arms and massaged them and I no longer have that problem.

I have the deep nerve pain too. I can't squeeze my body anywhere without making myself hurt. I don't know if we can get rid of that part. I haven't.

I am doing great with my RSD though. I have been off my meds for months so I do know that it can be done. It does take time though to get to a better place with the RSD.

Ada
Hello deambeliever,

I thinks it's great you are off all your meds. My goal has always been to try and manage my RSD with as little medication as possible. I left my job 3 years ago and so far the only medication I have been able to stop is cymbalta. Where is your RSD and how long has it taken to get where you are now?
Take care
Sherrie
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