Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 03-28-2009, 03:20 PM #1
Grammadur Grammadur is offline
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Join Date: Mar 2009
Location: Indiana
Posts: 26
15 yr Member
Grammadur Grammadur is offline
Junior Member
 
Join Date: Mar 2009
Location: Indiana
Posts: 26
15 yr Member
Default New member

Hi everyone,

I'm new to all of this... I have RSD and am confused by everything. Many of you went undiagnosed for years, saw many doctors, and underwent tortuous testing. I guess I'm "lucky" because I know when I got RSD - Jan. 23, 2009 at 2:25 p.m. I was to have a cervical epidural steriod injection on the left side of C6-C7 but the pain management physician was in a hurry and injected the right side. Instant RSD in my right hand and forearm!

At present the pain is manageable with 300 mg of Lyrica, Flexeril and Darvocet when needed, so the pain management specialist is happy. But I've gained 10 lbs, can't remember sh.., have no concentration, and still feel pain with cold air and water.

I have confusion about what to do next. The Neurosurgeon I was referred to said we can do a ganglion block that may or may not help. Some literature I've read said that's risky for someone who already is prone to RSD. Anything to do with the nerves may well aggrevate them even more. I certainly don't want any more pain and I certainly don't want any more medication. And I'm
not crazy about physicians' sticking needles in my neck - again!!!!!

Has anyone been cured? What are the best options out there?

Grammadur
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