Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 03-31-2009, 07:25 PM #21
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That's why I called it a myth! Some of the comments made by Dr. Hooshmand have taken on a life of their own. I simply pointed it out because I think that is where the myth started. To some people his RSD Puzzles have become fact when little to no evidence is given to support some of his positions. That being said he provided many people with good care at one point in time when few others knew what to do for RSD. He is now long retired and his web site has not been updated for a few years. mrsD you provided us with some great information and food for thought. Thanks!

As far as cravings for sweets go, I used to have a horrible sweet tooth and needed carbs constantly, I have not been dx with fibro. Since I have changed my diet these past 6 months my cravings have reduced substantially. I get enough sugar now in my fresh fruits that I rarely have cravings. I will have chocolate on a special occasions or just before my period comes. Since I changed my diet I feel much better in many ways. I used to eat lots of red meat and carbs, it was a very unbalanced diet and that was reflected in my overall health and pain levels.

Roz, as far a neurotoxins go...they are in almost all processed foods now. MSG is now being disguised under a number of different names on food labels.



Neurotoxins /excitotoxins really is a whole other thread that I think needs to be discussed on the forum. I will post a separate thread with more information on this topic when I have a bit more time, unless someone else wants to have a go at it, and in that case I'll happily contribute.

Wishing you all a good day.

MsL

Dear Msl,

I here you, I will shut up about detoxing. You are right it does belong on a different thread. Hugs
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Old 03-31-2009, 09:32 PM #22
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i also have fibro and have the craving also i dont eat choc alot becuase i have very sensitive teeth.. but i eat alot of fruits or cereals. or rice cakes. we dont have much of any processed food in the house becuase i have a child with food allergies that cant have soy milk or peanuts so there is more organic natural food. and for years that have been using HVP or fat for soy and msg. most veggie protiens are now soy based.. i think that eliminating choc depends on the person as this doesnt afect me one way or the other...
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 03-31-2009, 10:47 PM #23
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Yes, I agree, there are health benefits to chocolate. I am not a big chocolate fan, but hubby is. I have some now and then, but he has it every day.

We both find the dark more satisfying.

As far as MSG goes, I've already posted this...MSG is BAD for nerves. It sets off peripheral neuropathy symptoms too, so I would expect it to be very problematic for RSDers.

It stimulates the NMDA pain receptors.

It has been my experience that most doctors are very poor chemists. They have very little chemistry, or medicinal chemistry in their training. Many doctors therefore do NOT understand how most drugs work. (they only listen to salespeople sell their products). When other issues appear therefore in the research doctors don't have the skills to evaluate the papers.

That comment about 10 grams of phenylethylamine is totally wacko. Alkaloids found in food are always in the microgram or low milligram level. Example... common caffeine. 100-200mg in a strong cup of coffee and much less in tea. And that is alot for an alkaloid found in a foodstuff.

Yes, I think an MSG thread would be very useful here. I'll make contributions, too, if you start one.

Also for example... The esteemed Dr. Latov in the PN field, recently wrote a book...on the various forms of peripheral neuropathy. He did not proofread or didn't understand his own words...he has TWO errors in the text telling people to take 500MG of B12.
This probably was meant to be 500mcg... but even that is low borderline. 1000mcg daily is better and more effective. So he must be friends in kind to Dr. Hooshmand?
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Old 04-01-2009, 07:29 AM #24
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You would think I would be all over this thread. Choccy was my fave food!

I still love it, but have no craving for it. I can leave it in the pantry. I end up throwing out holiday candy. Shocking huh?

I started taking cinnimon supplements over a year ago. I don't crave sweets at all.

Keeping my blood sugar leveled, SAMe, EFA's and daily vit's has helped my pain levels tremendously.

I do have my 1 cup of coffee in the morning. No other caffiene. I don't drink any type of soda.

Anything that might spike my pain level, just not worth it.

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Old 04-01-2009, 08:35 AM #25
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Hi Sbowling,

This sounds like such a great opportunity for you.
Have they mentioned the Metabolic Code diet to you?

Hugs, Roz
Hey Roz,

Yes, the Cincinnatti location is the Lavalle Metabolic Institute. I have talked to this office and one in Dayton Oh. I haven't decided what to do. I like what I have learned so far, I just talked to someone last week.

Thanks,
Sherrie
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Old 04-01-2009, 08:40 AM #26
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You would think I would be all over this thread. Choccy was my fave food!

I still love it, but have no craving for it. I can leave it in the pantry. I end up throwing out holiday candy. Shocking huh?

I started taking cinnimon supplements over a year ago. I don't crave sweets at all.

Keeping my blood sugar leveled, SAMe, EFA's and daily vit's has helped my pain levels tremendously.

I do have my 1 cup of coffee in the morning. No other caffiene. I don't drink any type of soda.

Anything that might spike my pain level, just not worth it.

Hello Curious,

I have an awful sweet tooth that is rarely satisfied. What kind of cinnimon substitue are you talking about?

Thanks,
Sbowling
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Old 04-01-2009, 08:46 AM #27
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It's a supplement. Comes in a pill/gel cap form. They are right there in the vitamin aisle. I get mine at WalMart.

We have many threads about it. You can use the Search button up on the NT toolbar. Just type in cinnamon.

My daughter, who will be 15 tomorrow takes it too. We both have a mega sweet tooth. I can tell when she misses a few days. Back to the cravings.

I will tell you something funny. Even she jokes about this. She took 2 of the gel caps one morning. A few minutes latter she did a little burp. Out came a little puff of cinnamon. Better than garlic huh?

If you can't find the threads...I'll search for you. They have links to sources and research.

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Old 04-01-2009, 02:23 PM #28
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I agree the cinnamon dust is better than a garlic. Thanks for the laugh!!!
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Old 04-01-2009, 03:33 PM #29
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I've been putting cinnamon generously on my cereal too.
The whole grain Cherrios taste very good with it generously sprinked on them. I've also sprinkled it on rice pudding, and Crispix cereal, and oatmeal. Cinnamon is also very nice in pancakes and waffles.

I also sprinkle it on peanut butter (since I cannot have sugar anymore--no jelly).

Anyway you want it, it is good for you!

I found a very large container at SAMs club for less than $5. It will last me years at this rate.
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Old 04-01-2009, 03:36 PM #30
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I bake generously with it too. Always put in oatmeal. Yum.

lol...we even named our newest hamster Cinnamon.

MrsD can tell you...for years I have been known as the choccy-holic.
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