Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-05-2009, 08:44 PM #1
kimmie kimmie is offline
Junior Member
 
Join Date: Mar 2009
Location: grand rapids, michigan
Posts: 50
15 yr Member
kimmie kimmie is offline
Junior Member
 
Join Date: Mar 2009
Location: grand rapids, michigan
Posts: 50
15 yr Member
Angry R.S.D. Swelling of face

Can any one tell me this for the past two weeks my left ear like blocked. then my face started swelling on the right side. i have had r.s.d. for 15 years. but the last few months i have had this swelling. i go get my shots on the 13 of this month. Now, the right side of my face is swelled again my feet .i dont known why this is doing this i feel like my face is becoming deformed. i could sit and cry. i am not in alot of pain but my right gum hurts too .i no it is with the r.s.d. did or dose any one else have this? if so what do ? you do god bless kimmie. my r.s.d. is on my left side but it gose to my right side tigger points.
kimmie is offline   Reply With QuoteReply With Quote

advertisement
Old 04-05-2009, 08:52 PM #2
Abbie's Avatar
Abbie Abbie is offline
Elder
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Default

Hi Kimmie...

I know this is a frightening time... facial swelling is not fun...

Please rule out any other possible issues before ruling it as RSD swelling...
(if you haven't already that is...) Could also be sinus related or dental related....


My face swells off and on but it also turns bright red and ice cold when it does this.... mine happens on one side or the other... never swells both sides at the same time.

I wish you well!!!!

Abbie
__________________
My avatar pic is my beautiful
niece Ashley!

.
Rest in Peace
3/8/90 ~~ 4/2/12
Abbie is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-05-2009)
Old 04-05-2009, 09:23 PM #3
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Quote:
Originally Posted by kimmie View Post
Can any one tell me this for the past two weeks my left ear like blocked. then my face started swelling on the right side. i have had r.s.d. for 15 years. but the last few months i have had this swelling. i go get my shots on the 13 of this month. Now, the right side of my face is swelled again my feet .i dont known why this is doing this i feel like my face is becoming deformed. i could sit and cry. i am not in alot of pain but my right gum hurts too .i no it is with the r.s.d. did or dose any one else have this? if so what do ? you do god bless kimmie. my r.s.d. is on my left side but it gose to my right side tigger points.

Kimmie,
More info, Please?

I Absolutely KNOW that this is not a good time to ask, but, You must clarify, what it is that you're asking!

My face swells with the RSD.
Bi laterally.
Sometimes,
I call myself , fat face.

Maybe some NSAIDS? Sometimes Aspirin or Motrin works wonders on the swelling.

Call your neuro!

Remember,
RSD, is an Evil Witch of a disease!
It will play, all sorts of evil tricks! Just to throw you off!

You must be, just as wily!

I hope that you are!

Don't EVER let it get you down., EVER!

It's YOUR body!
Not the rsd's!
You must somehow, sometime, TAKE control!
F' those nerves!

Take it back!

Put up a fight!

Kimmie,
We're NOT gonna let you give up the fight!!
We love you too much!

Pete
ASB
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-07-2009)
Old 04-05-2009, 10:48 PM #4
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

i have facial rsd but havent had any of the swelling with my rsd alot at all. i would get it check out for sure to make sure that it isnt something else that is for sure

please hang in there


carrie
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-05-2009)
Old 04-05-2009, 11:28 PM #5
kimmie kimmie is offline
Junior Member
 
Join Date: Mar 2009
Location: grand rapids, michigan
Posts: 50
15 yr Member
kimmie kimmie is offline
Junior Member
 
Join Date: Mar 2009
Location: grand rapids, michigan
Posts: 50
15 yr Member
Arrow thank you

Quote:
Originally Posted by AintSoBad View Post
Kimmie,
More info, Please?

I Absolutely KNOW that this is not a good time to ask, but, You must clarify, what it is that you're asking!

My face swells with the RSD.
Bi laterally.
Sometimes,
I call myself , fat face.

Maybe some NSAIDS? Sometimes Aspirin or Motrin works wonders on the swelling.

Call your neuro!

Remember,
RSD, is an Evil Witch of a disease!
It will play, all sorts of evil tricks! Just to throw you off!

You must be, just as wily!

I hope that you are!

Don't EVER let it get you down., EVER!

It's YOUR body!
Not the rsd's!
You must somehow, sometime, TAKE control!
F' those nerves!

Take it back!

Put up a fight!

Kimmie,
We're NOT gonna let you give up the fight!!
We love you too much!

Pete
ASB
hi, i no it is the r.s.d. i have had it 15 years. my left ear will block up then my sinus. then the swelling. i do get my shots in my back every 6 to 8 weeks. i have never babyed my right side i am 52 years old. but this just makes me feel like i want to i just do not no.i am in stage 2. thank you for your input god bless kim
kimmie is offline   Reply With QuoteReply With Quote
Old 04-06-2009, 08:09 AM #6
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

As we age, we sometimes get stones in the salivary glands.

This can cause a swelling on the side affected. People with dry mouth from inflammation like Sjogren's or from side effects from
drugs are more prone to this. If it becomes totally blocked, surgery may be needed. My doctor recommends sucking on a sour candy a couple of times a day to stimulate saliva production. Give that a try.

Ear infections also can do this, or a throat infection that occurs only on one side. Painless swelling should always be evaluated because swollen lymph nodes with no pain could be lymphoma.

So if it persists you really should see a doctor.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-07-2009)
Old 04-06-2009, 08:59 AM #7
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
SBOWLING SBOWLING is offline
Member
 
Join Date: Mar 2009
Location: Ohio
Posts: 310
15 yr Member
Default

Quote:
Originally Posted by kimmie View Post
Can any one tell me this for the past two weeks my left ear like blocked. then my face started swelling on the right side. i have had r.s.d. for 15 years. but the last few months i have had this swelling. i go get my shots on the 13 of this month. Now, the right side of my face is swelled again my feet .i dont known why this is doing this i feel like my face is becoming deformed. i could sit and cry. i am not in alot of pain but my right gum hurts too .i no it is with the r.s.d. did or dose any one else have this? if so what do ? you do god bless kimmie. my r.s.d. is on my left side but it gose to my right side tigger points.
Hello Kimmie,

I have full body RSD. When it is flaired in my face it turns bright red and I can't put makeup on. It looks like I have been in the sun for too long.I swell in a lot of areas but not my face. Keep in mind RSD/CRPS is diffent for all of us.
Someone mentioned about glands swelling that is really good advice. My daughter (21 years old) had some dental work done. A gland along the jaw line was irritated and she swelled one the side of her face and into her neck.
Give yourself some peace of mind and call your doctor.
It' okay to cry just don't allow yourself to stay in that mood for very long. Tell yourself RSD has taken enough from your life and don't allow it to take something you do have control of and that's your attitude. You have been fighting the fight for 15 years dust yourself off and get back in the ring.
Take care
Sherrie
SBOWLING is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-07-2009)
Old 04-06-2009, 10:09 AM #8
Annie Poo Annie Poo is offline
Junior Member
 
Join Date: Sep 2006
Posts: 85
15 yr Member
Annie Poo Annie Poo is offline
Junior Member
 
Join Date: Sep 2006
Posts: 85
15 yr Member
Default blocked ear

Hi Kimmie,

I have CRPS type II on the right side of my body from a venipuncture nerve injury to my right arm 4 years ago. In addition to symptoms below the neck, I have symptoms on the right side of my face, neck, & head. No swelling, but occasionally redness on my right cheek. I commonly have a sensation in my right ear that does indeed feel like a "blocked ear" canal, as well as weird skin sensations all over the skin on the right side of my face & head. Also, occasional symptoms, including burning, on the right side of my upper lip, tongue, and gums.

Good luck!

Ann
Annie Poo is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Grammadur (04-07-2009), kimmie (04-07-2009)
Old 04-07-2009, 03:32 PM #9
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
AintSoBad AintSoBad is offline
In Remembrance
 
Join Date: Mar 2009
Location: Eastern PA.
Posts: 1,143
15 yr Member
Default

Quote:
Originally Posted by kimmie View Post
hi, i no it is the r.s.d. i have had it 15 years. my left ear will block up then my sinus. then the swelling. i do get my shots in my back every 6 to 8 weeks. i have never babyed my right side i am 52 years old. but this just makes me feel like i want to i just do not no.i am in stage 2. thank you for your input god bless kim
Kimmie,
What does your neuro say about the swelling?

I get it in my face and my feet, sometimes in my hands.
Ice packs work, (with a towel of course), as do NSAID,s aspirin, motrin, aleve.
And, motion!
Try taking a walk. Get your blood circulating.
Sometimes Allegra helps. (allergy prescription). That's for your neuro to answer.

Sometimes, I can't get my shoes on.

I'm 52 also.

Call your neuro, and ask his/her advice!

Here for you!
BE BLESSED AND BETTER!

Pete
asb
AintSoBad is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-07-2009)
Old 04-08-2009, 12:45 PM #10
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
SandyRI SandyRI is offline
Senior Member
 
Join Date: Dec 2008
Location: Rhode Island
Posts: 1,056
15 yr Member
Default

Dear Pete,

Be careful with the ice - because ice and RSD usually don't mix.

Sandy
SandyRI is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
kimmie (04-12-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Swelling kMontana Dentistry & Dental Issues 12 03-01-2009 04:43 PM
Swelling Leslie Peripheral Neuropathy 4 08-02-2008 02:27 PM
I came face to face with my disease yesterday, and it scared me. beautytransforming Multiple Sclerosis 21 05-05-2008 02:32 AM
RSD - swelling not going down ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 8 09-22-2007 12:03 PM
RSD and Swelling ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 12 07-28-2007 05:16 PM


All times are GMT -5. The time now is 03:00 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.