Hi All,
I know I don't post alot (cause my hands hurt so much and it is painful for me to sit up typing) but I do try to read every few days or so to keep up-to-date. I laugh when you laugh and cry when you all cry.

I see there is some mentioning of chiropractic treatments here. I have had my full-body rsd (and Fibro) for over four years now and have used a chiropractor for two years of it and see a huge improvement in pain and function. However, the insurance co does not see any improvements and is cancelling my care. Now, I have to go to court and represent myself because I want to continue it. I've been told that chiropractics and RSD don't go together and I am lucky I received it for as long as I did...yet it helps me so much. I see a great chiropractor who doesn't do the "crack you and your out the door" thing. She does many different types of fascia work and PT with me. She has enabled me to walk again. How does everyone feel about chiropractics and any ideas on how I can keep continuing to use it in my future and get workers comp to pay for it. I went six months without it and I've gone down the tubes. I appreciate all your help.

I have to let you all know that when I have a terrible day and no one seems to understand I check out this site and most of the time I find someone who feels as though I do and then some. Thanks for all your help with this daily battle of RSD. You all are the best and I pray for your healing.
Take care,
kathy d

I've never been a fan of chiropractors but I think it's up to each person on what they find that works.

My daughter just wasted a month going to one and finally broke down and went to our Dr. about her back.

I went to an Osteopathic Dr. years ago and she's the reason I am in the shape I am in today. She popped all my bones and caused me to have TOS and RSD on the right side. When I went to her I only had it in the left. My PCP sent me to her only for a diagnoses. He ask her if she would help diagnose me because he knew her. She really did a job on me. I tried to sue her but the attorneys said that my case was too complicated. At the time RSD was even less known.

It sounds like your Chiropractor knows other treatments besides just popping bones. I don't think it matters what kind of Dr. you go to just so they don't make you worse.

Ada

I don't think chiropractors are able to treat RSD, neither are PTs. It takes a slew of different approaches (chiropractors and PTs might help), but they mostly involve medication, nerve blocks, infusions and such.

RSD needs medical treatment. Whatever else you do that works for you, works for you.

It took 7 years for my rsd diagnoses. During that time, and long after, my chiropractor kept me moving. He was in fact, the person who realized I had rsd! And, sent me to dr S.
He's very gentle. Not just popping bones, but slowly stretching. Using the hot packs, cold packs electric stim, whatever he needed. Gentle massage.
He gave me a far improved range of motion, with less pain.
Osteopathic doctors are too "Rough".
But a good, gentle chiropractor who understands rsd and tos, can do a great job in taking away some day to day misery!

Pete
ASB

I agree with a gentle chiro can help with your day to day misery. My chiro who has been beneficial in my diagnosis of RSD, has been experimenting with cold laser. Some days I do not find a lot of relief but other days I can have a few to four hours of reduced pain. In my eyes, that is better then nothing. Take care
Beth

Hi I have had RSD/CRPS for 12 years now. I sprained my left ankle when i was 11, was finally diagnosed 2years after the injury, and it traveled to my whole left leg, both hips and lower back. I have tried everything from nerve block shots, epidurals, physical therapy (which it made me worst), and i also have the spinal cord stimulator. For the last 2years i have had a doctor up in decatur, il give me nerve block shots every few months. i didnt and still dont understand why he wanted me to have them so often..i think it just wore me out and drained me more then what was needed.
anyways..the last week i have been seeing a chiropractor, and he hasnt been just popping me (btw he popped a spot in my back that was amazing lol) i have only had 3apts and its killing my body. i was told i would get worst before better. but i didnt think it would bother me this much..i know i havnt had a lot of movement in years, and understand it will take awhile to get all that back to normal. i guess what i wanna know is how was it for everyone when they first started with the chiropractor. i dont have too many people in my life that understands this..hell most of them dont even try to understand but im just needings some reassuring good news to help me stay positive

Hello Kathy,

I would be strung out on meds if it were not for my chiropractor. He DX me and has been treating me for 8 years. I got very lucky and bought an insurance that he offered I pay 217.00 per month. It covers a family of 4 and all the treatments and x-rays that are needed. This plan was a blessing from God.
I have full body RSD it has effected my lungs and heart. I see my chiropractor 3 days a week and sometimes 5 if I am flaired (he no longer offers the insurance) I went to Philly to see an RSD research doctor. He said chiropractic care is the best things I can do for myself. He is an activator chiropractor he uses a small spring loaded instrument to adjust my spine. I am too tender for him to use his hands. His adjustments really help with the chronic fatige.
It works for me and I am glad I found my DC.
Take care,
Sherrie

First... remember.... no two of us with RSD/CRPS are the same, we don't have the same symptoms, same locations, same anything other than the name. Nor do we react the same to medicines, therapies, or treatments.


If it weren't for my Chiropractor, I wouldn't be here.... HE IS THE ONLY ONE ABLE TO GET MY PAIN LEVELS TO GO DOWN AT ALL!!!! I am severely allergic to ALL narcotic pain medicines.


I say do what is best for you... If Chiropractic brings you relief, then by all means FIGHT your insurance company!!! Ask your Chiro if they will testify or write a letter to the judge on your behalf.


I wish you the best!!!
Abbie

Thanks all for your help with the chiropractics suggestions. I appreciate your input. I just sent all the paperwork in to fight the works comp for me to keep my chirop. (and I am taking her to court with me this time)...and yesterday I got a ltr in the mail from ins saying they want to review me having to have Ketamine treatment done!!! I have only been waiting over two and a half years for this treatment and NOW they are questioning me to have it done. I just sat and cried yesterday. I don't know what they could say since they can't claim my chiropractor made me much better because they are refusing to pay that bill. I don't know how these people sleep at night. Thanks for all your help and ideas. The fight marches on.
Take care,
kathy d

I agree about the Chiro. I know everyone is different with their RSD and responses to treatments. I agree, if it works and helps you out, go for it. I too have a wonderful Chiro, who has helped me through this. Good luck with your fight for coverage with the chiro. It is very frustrating, when you see some relief from Chiro and they say they wont cover you. So sorry you need to deal with that. Hang in there.