Dealingwithtos,
Hi! Sorry I missed this until today. I didnt have problems with my back until SCS was implanted. Its bad now too. where the generator is was immediate. My back took longer. Then they redmaged a nerve in my neck that was damaged in a car accident in high school. At first there was just numbness & pain down my left arm. Then the RSD went there. My doctor did a nerve conduction study & found the damaged nerve & knew what he did. They think I had a blood clot sitting on that nerve after the trial. It was pretty much just a mess. I didnt have problems with my back at all until the SCS. I had a very pysical job before RSD came into my life. I am sorry you are having the same issues. It sounds like your SCS is was more positional than mine is. Mine doesnt change stimulation by moving quite as much as yours. I think I am lucky that way.
Hugs, Denny

Hey All I am starting to see a pattern here with the back pain after the SCS. I have it for my legs and my plates are at the top of my shoulder blades. My last visit I hit my pd with another symptom, my spine is on fire and it travels to the back of my neck and down my arms. My stimulater does change its intensity by movement and I have had to learn when I can use it and when I can't. I have osteoarthritis and I sleep in a recliner but I can't sleep with the SCS on because I have to run it so high and it changes with movement and I also have another problem if I sleep with it on. I have started total body bone pain in which I have beeen complaining about for 3 months now. When I have the bone pain (which they say is probably fibromyalgia) what ever it is I can't use my stimulater at all because it rattles my bones. I had the shrink thing and then I had a few symathetic nerve blocks, at that time we were treating the RSD, I also did the trial which got me down to almost no pain however I was on methadone too. I do love it when I am driving because that is such a painful thing to do without it. Mine is a Boston Scientific stimulator and I also did the trial test at the time it did a wonderful job and now they want to get me off some of the pain meds however the osteoporosis and osteoarthritis is so bad, plus the fibromyalgia they are now reevaluating the situaltion and since I got to reprogram my stemulater and learned the final part I can change programs myself. I don't know if you get a trial test but if you can it would be best. It took my insurance eight months to approve it because of the exspence. So Marleen read all you can and I don't know why they won't approve it it for type I, I personally have the caustalgia type. Keep asking questions and this is a good place for opinions and advice, just don't forget that everyone is different.
tjbird

Tjbird, I am suprised you use your SCS while you drive. I was told not to. I would love to but with the change in stimulation sometimes I dont dare. I too have Fibro. They diagnosed that before the RSD. Have tried having a program set just for nighttime on your SCS? I have a program that I keep really low that I use at night. I could never use the higher programs I use during the day at night while I sleep. They would make me crazy or is that crazier (lol)!!!
Have a good day!
Denny