SCS for RSD

SBOWLING · 04-07-2009, 04:41 PM

Quote:

Originally Posted by CRPSbe

Where I live, in Belgium, Europe, Spinal Cord Stimulators are only refunded for CRPS type 2 (Causalgia) and not at all for CRPS type 1 (RSD). I have no clue why. The company making the SCSs are recommending SCS as treatment for both types.

These things are very expensive!

How is the state of affairs in the US (or elsewhere) for SCSs? Does it depend on your insurance? On the type of CRPS you have? Does it depend on how far along the RSD is? What are the criteria?

I don't have a SCS. It scares me to have nerve blocks or operative procedures done. So far, I have stuck with my medication, but I am curious about other procedures.

How does it work in the US?
What are your experiences?

Hello Marlene,

I had to have clearance from my physcologist and paperwork from my pain management doctor that all the blocks had failed. I had one put in for full body RSD. The leads went from c3 in my neck to the lumbar area of my spine. It was covering my arms legs and low back. It was impossible for the programmers to program. After two and half years I had it removed. It was very sensative to posture. When I turned my head it would, sometimes, shock me. When I sat down the stimulation would go so low it didn't help the pain.
I know everyone's experience is different it wasn't good for me.
I wish you the best of luck in your search for relief.

Take care,
Sherrie

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