FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | |||
|
||||
Elder
|
Cynthia Toussaint's story of RSD on TLC's Mystery Diagnosis!!!!
It's about time RSD made it to a national television show!!! Very Exciting!!!!
__________________
My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
|
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
Member
|
I think that is the same show that Zoe's Pearson's (the girl from England) plight with RSD was on. I saw that one. Keep us posted.
Here is the Utube link. Thanks for the info. Di http://www.youtube.com/watch?v=7OgAzmgX28w |
|||
![]() |
![]() |
"Thanks for this!" says: | jenno (04-06-2009) |
![]() |
#3 | |||
|
||||
Member
|
I saw that episode a while ago on Belgian television (VijfTV) - I think last year or something. Amazing story. Finally something was broadcast about RSD where I live!!!
If you search YouTube for that episode on mystery diagnosis, you'll find it posted in two parts! |
|||
![]() |
![]() |
![]() |
#4 | ||
|
|||
Member
|
DianaA thank you for sharing the link. I dont think I had ever seen that. It was a great story of a wonderful & tough woman.
Higs, Denny |
||
![]() |
![]() |
"Thanks for this!" says: | DianaA (04-08-2009) |
![]() |
#5 | ||
|
|||
Magnate
|
My mom saw this on TLC too and I saw the you tube. I saw this doctor who they interviewed. I think Cynthia still runs a support group for rsd in the area. I hope oneday we see something about RSD that is more in depth on Oprah etc. I wish they would go more into depth on the struggles with proper treatment and how many things need to be tried. I know some have luck with just the nerve medications but for many it takes a lot of different treatments,doctors so on.
|
||
![]() |
![]() |
![]() |
#6 | |||
|
||||
Member
|
i saw this a year or so ago and it was great to see us on there.. !!!! i watch this show all the time so it made my day!!!
__________________
hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
|||
![]() |
![]() |
![]() |
#7 | |||
|
||||
Junior Member
|
I am happy Cynthia was able to actually get cured. It is about time RSD see more air time to get people to realize actually how large of a problem this disease is! Thank goodness she never got internal.
|
|||
![]() |
![]() |
"Thanks for this!" says: | DianaA (04-08-2009) |
![]() |
#8 | |||
|
||||
Member
|
cynthia is the founder of For Grace here is their website
http://www.forgrace.org/women/in/pain/C90 ...... it is manily a website for women in pain ..... i knew i had seen her name somewhere. oh well there goes my brain again LOL carrie
__________________
hope this finds all in less pain . rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,, please check out our website to help bring awareness to RSD! . |
|||
![]() |
![]() |
![]() |
#9 | |||
|
||||
Wisest Elder Ever
|
This is a very useful and fascinating show.
There is a lot to be learned from it. Patients ignored. Wrong diagnosis That somewhere there is a solution! Many odd facts about the body, genetics, and infections. I really can only watch it occasionally....it triggers me emotionally sometimes with the stories! But I salute Discovery Channel for airing it!
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Diagnosis Parkinson's Disease: You Are Not Alone Video Diagnosis Parkinson's Diseas | Parkinson's Disease | |||
How do you get on Mystery Diagnosis? | Multiple Sclerosis | |||
Mystery Diagnosis | Thoracic Outlet Syndrome | |||
Mystery Diagnosis No More | New Member Introductions | |||
Fibromyalgia Syndrome: Presentation, Diagnosis, and Differential Diagnosis | Fibromyalgia and Chronic Fatigue |