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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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TLC's Mystery Diagnosis!!

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Old 04-06-2009, 03:00 PM #1
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Smile TLC's Mystery Diagnosis!!
Cynthia Toussaint's story of RSD on TLC's Mystery Diagnosis!!!!

It's about time RSD made it to a national television show!!!

Very Exciting!!!!
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Old 04-06-2009, 03:26 PM #2
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Thumbs up Thats Great!
I think that is the same show that Zoe's Pearson's (the girl from England) plight with RSD was on. I saw that one. Keep us posted.
Here is the Utube link. Thanks for the info. Di






http://www.youtube.com/watch?v=7OgAzmgX28w
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Old 04-07-2009, 12:47 PM #3
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I saw that episode a while ago on Belgian television (VijfTV) - I think last year or something. Amazing story. Finally something was broadcast about RSD where I live!!!

If you search YouTube for that episode on mystery diagnosis, you'll find it posted in two parts!
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Old 04-07-2009, 11:09 PM #4
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i saw this a year or so ago and it was great to see us on there.. !!!! i watch this show all the time so it made my day!!!
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




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Old 04-07-2009, 11:42 PM #5
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I am happy Cynthia was able to actually get cured. It is about time RSD see more air time to get people to realize actually how large of a problem this disease is! Thank goodness she never got internal.
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Old 04-08-2009, 09:46 AM #6
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DianaA thank you for sharing the link. I dont think I had ever seen that. It was a great story of a wonderful & tough woman.
Higs, Denny
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Old 04-08-2009, 12:19 PM #7
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My mom saw this on TLC too and I saw the you tube. I saw this doctor who they interviewed. I think Cynthia still runs a support group for rsd in the area. I hope oneday we see something about RSD that is more in depth on Oprah etc. I wish they would go more into depth on the struggles with proper treatment and how many things need to be tried. I know some have luck with just the nerve medications but for many it takes a lot of different treatments,doctors so on.
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Old 04-08-2009, 12:34 PM #8
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cynthia is the founder of For Grace here is their website


http://www.forgrace.org/women/in/pain/C90 ...... it is manily a website for women in pain ..... i knew i had seen her name somewhere. oh well there goes my brain again LOL

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-08-2009, 02:57 PM #9
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This is a very useful and fascinating show.

There is a lot to be learned from it.
Patients ignored.
Wrong diagnosis
That somewhere there is a solution!

Many odd facts about the body, genetics, and infections.

I really can only watch it occasionally....it triggers me emotionally sometimes with the stories! But I salute Discovery Channel for airing it!
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