Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 04-14-2009, 01:23 AM #11
msdrea83's Avatar
msdrea83 msdrea83 is offline
Member
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
msdrea83 msdrea83 is offline
Member
msdrea83's Avatar
 
Join Date: Oct 2006
Location: Santa Cruz, CA
Posts: 252
15 yr Member
Default

i suround myself with big comfy/soft pillows, a small throw blanket, pain meds, recline the seat some...

although i think this is kinda weird, but it hurts a lot less for me when i'm actually driving then if i'm just sitting back.
__________________
~*Andrea*~
msdrea83 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (04-14-2009)

advertisement
Old 04-14-2009, 01:54 AM #12
Dew58's Avatar
Dew58 Dew58 is offline
Member
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Dew58 Dew58 is offline
Member
Dew58's Avatar
 
Join Date: Jul 2008
Location: Oklahoma
Posts: 498
15 yr Member
Heart Thanks You All :)

I do appreciate your sharing tips for traveling with RSD.

I don't want to burden my sister and her family with my RSD issues, so I will follow the tips that yall have shared with me.

My sister, Wanda, is 52. At 42, she had a little girl (change of life baby). Reva just turned 11 years old, and she loves art. I am an artist, and my sister ask me to teach Reva some art techniques(quilling;paper sculpture). I have a box of supplies that have several beginner's kits and quilling materials/tools, that I made just for Reva.

This will keep Reva busy and will also make it easier for my sister to get some rest. My sister also has an 18 yr old son, and a 26 yr old son. My sister and her hubby will celebrate 30 years of marriage this June. Wanda will turn 53 in May, and we plan to have a birthday party while my hubby and I are visiting.

We are keeping a positive attitude concerning the pancreatic cancer diagnosis. Hope is what we all cling to,right? I do, anyway.


Dew
__________________

.


A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
Dew58 is offline   Reply With QuoteReply With Quote
Old 04-14-2009, 12:13 PM #13
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Dew,

Keep us posted when you get there and how things are with your sister!

Wishing you lots of strength, and courage!
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (04-15-2009)
Old 04-14-2009, 11:03 PM #14
angelrsd's Avatar
angelrsd angelrsd is offline
Member
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
angelrsd angelrsd is offline
Member
angelrsd's Avatar
 
Join Date: Dec 2008
Location: murfreesboro tn
Posts: 500
15 yr Member
Default

dew

i am will be keepin your family in my prayers. yes hope is the key i have found .. my grandmother found out 1.5 yrs ago that she had stage 2 breast cancer and we all kept hope she couldnt do chemo and all that but she is doin ok ..

about the car ride pillows and light blanket and i do have to stop alot otherwise i get to stiff to even move .. try that ..

i never asked where in OK you live? i used to live in omaha. guess i brought tornado ally with me to TN ..

please let us know how things go..

carrie
__________________
hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


.
angelrsd is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Dew58 (04-15-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
LeDoux vows to go distance with ALS BobbyB ALS News & Research 0 01-26-2009 12:13 PM
The long-distance OC Blazeman race is being held in memory of an Ironman triathlete. BobbyB ALS News & Research 0 06-20-2007 06:27 PM
long distance surgery-what I learned LA31 Thoracic Outlet Syndrome 2 05-10-2007 05:07 PM


All times are GMT -5. The time now is 05:38 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.