Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-12-2009, 11:16 AM #11
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In the meantime, sometimes for some folks the oatmeal baths work very well to relieve itching. Aveeno is a name brand.

Does anyone get (I don't know what to call them), but they're little red dots on the skin.
I wear shorts around the house alot, and roll my sleeves up. It's on those exposed places that I get these things. Occasionally, one will seem to become like a pimple.
And, it won't seem to heal for the longest time, leaving a dark spot on my caucasian skin. My doctor has taken pictures of it on my calves, and calls it "Classic RSD".
I have one (my second) that is now sort of an open sore.
I put neosporin on it, and a band aid.
I don't know what else to do?

pete
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Old 04-12-2009, 11:32 AM #12
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I don't think "itching" is an RSD symptom. And there's "itching" and just plain having an itch sometimes.

But you might have 2 things going on at once if the itching is really serious and unrelenting, esp. if there are break-outs going along with it. Might be an allergic reaction to something or other. I wouldn't immediately chalk everything up to RSD, without a serious doctor's exam.
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Work related (car) accident September 21, 1995, consequences:
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- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-12-2009, 11:40 AM #13
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Default Hi CRPS,

You are right about this.

I think mine is actually coming from something else.

After Bill passed away I moved into a smaller place and every since I moved in here my allergies have been worse. My Dr. even said I got worse after I moved here.

I am going to change my laundry detergent and I did do a lot of different things to the house. I am going to be taking up the carpet and put tile in the bedrooms. We have painted and cleaned everything but I still believe it has something to do with this place.

I have just started having rashes also. One got as big as a grapefruit and we have it healed up but I still keep getting them. We are tackling them before they get as big as the first one.

Ada
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Old 04-12-2009, 01:13 PM #14
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Quote:
Originally Posted by dreambeliever128 View Post
I know we talked about this before but I couldn't find the thread.

Do you think itching is from the RSD, I'm on no meds execpt my Prevacid and a new one my Dr. just put me on for my stomach. I am having such a time with itching and I can't figure out what I might be itching from.

Breakouts, I see my Dermotogist on the 24th again due to some places on my face that just keep coming back. He gives me shots and he cleared them up for awhile but they come back in the same place. He says they are pre-cancerous, I don't know. It's just frustrating.

I'm getting ready to change laundry detergents and I was wondering if you had any ideals on one.

I also take Allegra D for allergies but it doesn't help.

Any thoughts would be appreciated.

Ada
Hi, I also have the itching and it is from RSD, I've never had it b4, mine was so bad it was actually embassing. Someone on this site told me to try Aveeno and I also got the body wash for showers..it hasen't stopped it but it really helped a lot...I also have the itching in my head (which is really embassing), for that I got T/Gel therapeutic shampoo-extra strength and head and shoulders dry scalp care conditioner..they also help, I changed everything and the doctor told me it is from the RSD and not from detergent etc...hope this helps
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Old 04-12-2009, 02:16 PM #15
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Default RSD attacks cause itching

My rsd when it does a large attack it makes my pain sky rocket outta control beyond the extreme it is now, in which my body can't take it so it revolts against the pain even though it can't do anything to stop it and only makes things worse for itself. When my body revolts it becomes extremely itchy all over or at other times in just certian places, because of the pain levels i begin puking and as well my body becomes so weak i get dizzy/light headed and daze in and out of being alert and falling asleep. Your body temp can have you feel like your boiling or freezing or some parts of each. Its all the joy of attacks. I've Seen Small, Medium, Large & Extreme ones and even the smallest are very hard to deal with. So with the question of can RSD cause itching yes it can very much so. Itching so bad your literally scratching ur skin off. Or anything in between. Hope it settles down for you.
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Old 04-12-2009, 04:55 PM #16
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Ada,

Ask the doc if he can swab it and do an amplied DNA test for varicella virus. Shot in the dark but could not hurt.
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Old 04-12-2009, 09:00 PM #17
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Hi Ada, I'm so sorry about the itching. It is maddening for sure.My RSD Dr. said it's important to use sun screen when in the sun. I get rash break out from the sun and it itches. There is someone on here that has a cream made by a compounding pharmacist for the itchiness. If I can find it I'll PM you. I just had my first skin lesions and it took3-4 months to get rid of. They got infected. They are gone now. It's imortant not to keep them greased up, it keeps them from healing. I put some acne cream on some red dots and they got bright red and started itching bad. The Dr. said stop using anything but water and keep them uncovered. They eventually stopped itching and went back white. Still have the bumps but not itching. Skin problems go with RSD Iknow. I wear cotton and try to not sweat. I can use afan in the room to keep the air moving and cool. Dreading this summer in the arizona heat. As for soap, I use tide with no perumes etc. don't usedryer sheets either. Use Dove soap with no perume.and amild soap for face.
I also gained weight on Neurotin and then Lyrica. Went off about6 months ago and have lost 30 lbs. Feel better off. I did have one seizure the day I found out about one of my best friends daughter losing her first baby a few days before birth date. They think it was the cord. I kept her the first several hours to save on nursery bill. I was terribly upset for both of them. I'm working on cutting back on meds. Went off of two antii-depressants and went on just one newer one, cymbalta. I'm working on my 2nd set of 30 lbs and hope to go off or down on blood pressure meds. I was on 3200 mg of neurotin. Was alway so tired, but it did stop my jolts, spasms, shocks etc. Have had RSD 13 years now full body and feel my sympathetic system as calmed down alotl The anti-anxiety med Lorazepam has helped a lot. And I'm slowed my life down, and use exercise, meditation, music etc especially my furry kitty kat Sabrina. I'm learning to by optomistic and grateful and mostly have accepted my condition and want to help others that have this and other tragic circumsances in their life. It's tough. Take care of yourself, and I'll try to find that cream somewhere. I know Iwrote it down within the last couple weeks or so. Your friend, loretta jewell
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Old 04-13-2009, 10:46 AM #18
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Lightbulb

My hands have the itching problem, the most. It is annoying.

Before my RSD/CRPS diagnosis:

My Mom use to tell me when I was a child,per itching hands:
Itch on the left:money coming in. Itch on the right; money going out,LOL!
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-13-2009, 11:39 AM #19
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Default Hi Loretta,

I would like a copy of that cream. Thanks.

I am getting ready to change laundry detergent. I am thinking that might be one of my problems. Also I had bought some Skin So Soft from Avon and I had forgotten about not being able to use it. I have always been allergic to it but I hadn't used it for so long, I couldn't remember.

The places on my face seem to get infected also. I get them healed and then they start again. The shots the Dermo put in them seemed to heal them up pretty good. The last time he gave me some tape with medicine in it to use on them and it did nothing for them.

I dread the Colorado heat. I have more pain in the summer then winter. My skin dries out more in the winter though.

I do have to stay out of the sun also. It makes me itch. I wear Sunscreen and makeup with sunscreen in it to help when I go out.

I'm working on getting my weight off too that I gained from the Lyrica. It's been hard for me due to the metabolic syndrome but with summer coming on, i hope I can get the rest of it off. I need to lose 20 lbs.

I'm like you with getting off of the meds. I think I am going to try and find a way to get off of the Prevacid next. Maybe try a different kind and see if MrsD is right about me being allergic to it.

Dew, my hands don't itch. It's just the rest of my body that drives me nuts.
Maybe someone will come up with something good to help us with this. It sounds like a lot of us deal with it.

Thanks

Ada
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Old 04-14-2009, 02:07 AM #20
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Heart Dear Ada....

Quote:
Originally Posted by dreambeliever128 View Post
I would like a copy of that cream. Thanks.

I am getting ready to change laundry detergent. I am thinking that might be one of my problems. Also I had bought some Skin So Soft from Avon and I had forgotten about not being able to use it. I have always been allergic to it but I hadn't used it for so long, I couldn't remember.

The places on my face seem to get infected also. I get them healed and then they start again. The shots the Dermo put in them seemed to heal them up pretty good. The last time he gave me some tape with medicine in it to use on them and it did nothing for them.

I dread the Colorado heat. I have more pain in the summer then winter. My skin dries out more in the winter though.

I do have to stay out of the sun also. It makes me itch. I wear Sunscreen and makeup with sunscreen in it to help when I go out.

I'm working on getting my weight off too that I gained from the Lyrica. It's been hard for me due to the metabolic syndrome but with summer coming on, i hope I can get the rest of it off. I need to lose 20 lbs.

I'm like you with getting off of the meds. I think I am going to try and find a way to get off of the Prevacid next. Maybe try a different kind and see if MrsD is right about me being allergic to it.

Dew, my hands don't itch. It's just the rest of my body that drives me nuts.
Maybe someone will come up with something good to help us with this. It sounds like a lot of us deal with it.

Thanks

Ada
Dear Ada,

Maybe that means you will win the lottery

per my Mom's thoughts on itching hands...
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A Positive Attitude Will Assist Me Toward An Active Life, Once Again
.

WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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