Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-13-2009, 07:44 PM #11
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my neurosurgeon was goin to use dbs on me but my rsd is too wide spread and he thought that the coverage wouldnt be good enough there was a guy that posted a mnth or 2 ago that he had seen the group of neurosurgeons that i see and he had DBS for his RSD .. i know that it does work for some ...my grandmother has essential tremors and had DBS done almost 1yr ago and it helped tremendously so amazing..

carrie
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rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-13-2009, 07:50 PM #12
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Thanks for your response- My RSD is also very widespread so I guess it is not a good option- I don't know- will talk to the doc again to see what my options may be

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Old 04-13-2009, 09:17 PM #13
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i have a pump. have you thought about this option? i had mine put in 5 yrs ago. and it has helped me tons. but then again we are all diferent i hope that they find something that will help you

carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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Old 04-13-2009, 09:51 PM #14
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Is that a morphine pump?
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Old 04-13-2009, 10:39 PM #15
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it is the same i dont have morphine tho i have fentanyl . i am allergic to morphine. it has dropped my pain low enough tha ti can do enough LOL it is a big surgery but i think that it is better than SCS ther eis just so many problems that go with the SCS in my opion

carrie
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hope this finds all in less pain
.



rsd DX 99 had since 98 full body and organ involement,fibro ,pelvic pain ,etc,,,,,,




please check out our website to help bring awareness to RSD!


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