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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Deep Brain Stimulation

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Old 04-12-2009, 09:25 AM #1
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Default Deep Brain Stimulation
Hi all,

My pain has gone to a new miserable level- I was wondering if anyone has considered deep brain stim

Thanks
Debbie
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Old 04-12-2009, 11:10 AM #2
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Default Deep Brain Stimulation
Hi All,

I have not been here in a while- had trouble logging on. My pain has gone to a new level with severe muscle wasting and all the other good stuff... I was wondering if anyone has considered or tried deep brain stim. We had a neuro surgeon come to our support group and talk about all different kinds of stimulators.

Thanks for any info

Debbie
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Old 04-12-2009, 11:38 PM #3
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Default Debbie
Debbie, I am so sorry to hear that you are still really struggling with rsd/crps. I had been wondering why we haven't heard from you. I dont have any answers about deep brain stims, but just wanted to say "hello and I hope things get better for you soon". I really hope that you get some answers here. Take care. Di
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Old 04-13-2009, 07:05 AM #4
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Default TY
Thanks Diana- How is the HBOT going for you??
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Old 04-13-2009, 10:33 AM #5
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I hope you feel better soon.
Dew
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WC Injury 03/24/07;Two Right Knee Surgeries on 5/22/07 and 01/16/08. Surgeons and Physical Therapists ignored my concerns of burning pain, swelling, and no improvement and getting worse. Diagnosed RSD/CRPS I/Sympathetically Mediated Pain Syndrome/Chronic Pain on 06/2008 by family doc;on 08/2008 and 12/2008 diagnosis confirmed by two WC PM Doctors: Both legs;hips; hands; and spine effected by this culprit. SSDI granted 01/2009.
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Old 04-13-2009, 12:44 PM #6
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Post Deep Brain Stimulation for Parkinson's Disease
Quote:
Originally Posted by debbiehub View Post
Hi All,

I have not been here in a while- had trouble logging on. My pain has gone to a new level with severe muscle wasting and all the other good stuff... I was wondering if anyone has considered or tried deep brain stim. We had a neuro surgeon come to our support group and talk about all different kinds of stimulators.

Thanks for any info

Debbie
I hAD Dbs FOR pARKINSON'S dISEASE AND AM GLAD TO SAY IT WAS SUCCESSFUL IN REDUCING BY MEDS AND IMPROVING MY MOVEMENT. DO NOT KNOW WHAT OTHER TYPES OF DISEASES OTHER THAN ESSENTIAL TREMOR USE DBS SUCCESSFULLY. I STILL HAVE pARKINSON'S BUT CAN TREAEET IT BETTER NOW.

TUTOR 50
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Old 04-13-2009, 01:00 PM #7
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Default Debbie, could you give more details on the treatment?
Quote:
Originally Posted by debbiehub View Post
Hi all,

My pain has gone to a new miserable level- I was wondering if anyone has considered deep brain stim

Thanks
Debbie
Debbie, could you give more details on which treatment you are referring too?
So Sorry for your continued increasing pain.
Sincerely,
cz
Last edited by CZZ74; 04-13-2009 at 01:01 PM. Reason: spellling
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Old 04-13-2009, 04:06 PM #8
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Default hi
Do you have RSD along with the Parkinsons?



Quote:
Originally Posted by tutor50 View Post
I hAD Dbs FOR pARKINSON'S dISEASE AND AM GLAD TO SAY IT WAS SUCCESSFUL IN REDUCING BY MEDS AND IMPROVING MY MOVEMENT. DO NOT KNOW WHAT OTHER TYPES OF DISEASES OTHER THAN ESSENTIAL TREMOR USE DBS SUCCESSFULLY. I STILL HAVE pARKINSON'S BUT CAN TREAEET IT BETTER NOW.

TUTOR 50
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Old 04-13-2009, 04:07 PM #9
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Default Hi
I believe it is the same deep brain stim they use on Parkinsons.....
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Old 04-13-2009, 04:57 PM #10
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Default
I merged the two threads so it will be easier to keep track of replies and answers.
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