Ali has asked me to post and let you all know how things are
As you know, Ali's RSD seems to have spread to her left arm and shoulder. The right one has been stable for a while, though slightly painful.
Recently her left leg has been giving way a little
Yesterday I nipped out for an hour or so, and as Ali didn't want to come, I left her at home
Whilst I was out her leg gave way and she fell in the kitchen. landing on her right arm
By the time I got home it was swollen from just below her thumb to just above the elbow, and that has now spread to the palm so that front to back of her hand is around double its normal size
Ali is her usual self when dealing with flares.... she doesn't want to go to the ER as she knows that if its just a flare, theres not a lot they can do (plus its a public holiday over here so her PM Team are off work) but there is always the nagging doubt that theres an underlying break.
I have said that if things have got worse overnight (which they have) I will take her to ER, but it will be the usual case of us telling them what RSD is, what it can to in response to an injury and how best to deal with it
Just when we think Ali's life is back on track and things are moving forward, RSD reminds us that its not done with her yet.
This couldn't have happened at a worse time as she has a two day selection interview for her college cxourse next week and was hoping to demonstrate that RSD would not be a problem.
Ali says that living with the constant pain in her leg has become "normal" and she can deal with this, but fluctuating pain flares are more difficult to handle.
I'll try and keep you posted on how things go and I'm sure Ali will be back online as soon as she feels up to it
Thanks for being there for us - we really appreciate it
Love
Andrea (Ali's mum)