NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)
-   Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)
-   -   RSD/CRPS is "Managed", not cured. (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/84205-rsd-crps-managed-cured.html)

buckwheat 04-16-2009 12:10 PM

Quote:

Originally Posted by CRPSbe (Post 496820)
That's a nice attitude to have, fighting is a good thing, but it's also nice to take the facts into account.


Hi,

It's a fact you can be cured from M/S, Cancer and RSD.

I have been cured of Cancer when I was a young adult.

Hugs, Roz

Hi CRPSbe,

What's your thought's on this? You are right, but the way I believe is right as well.

http://thelivingmatrixmovie.com/trailer

SandyRI 04-16-2009 12:31 PM

[QUOTE=lostmary;496597]OK...Philly group. Do you all remember Jerry Blavat? when he was wild? Loved his for lovers only album. Really need to find it again. Remember fire house dances. Such fun

Hugs
mary
:grouphug:


My Mom and Dad will - I was born in 1960, so during his hot days on the radio I was still pretty young....

CRPSbe 04-16-2009 01:24 PM

Quote:

Originally Posted by buckwheat (Post 496834)
Hi,

It's a fact you can be cured from M/S, Cancer and RSD.

I have been cured of Cancer when I was a young adult.

Hugs, Roz

Hi CRPSbe,

What's your thought's on this? You are right, but the way I believe is right as well.

http://thelivingmatrixmovie.com/trailer


That's the first time I've heard it phrased that way. Odd.

mimichicago 04-16-2009 03:24 PM

I had RSD for seven years before I was diagnosed, and I was diagnosed last November! Hear this: there will always be lazy doctors out there, no matter the advances made in medicine.

buckwheat 04-16-2009 03:48 PM

Quote:

Originally Posted by mimichicago (Post 496968)
I had RSD for seven years before I was diagnosed, and I was diagnosed last November! Hear this: there will always be lazy doctors out there, no matter the advances made in medicine.

Hi Their,

I want you to know I 100% believe you. Doctor's make money weather they do anything or not. When I am talking about doing nothing, I mean just treating the SX. for us.

It's not just their fault, they have to follow a ABCD order, or they will loose their license. They also have to deal with insurance companies that do not want to pay them.

My the grace of God I am out of pain. My treatments for the last 7 years out of pocket, have been at least 300 hundred thousand.

Hang in their, Much Love, Roz xoxo

buckwheat 04-16-2009 04:27 PM

Quote:

Originally Posted by mimichicago (Post 496968)
I had RSD for seven years before I was diagnosed, and I was diagnosed last November! Hear this: there will always be lazy doctors out there, no matter the advances made in medicine.

Hi Their,

You have got to understand I care about each and every person with RSD. but MD's are not lazy, they really aren't. Their are 3 different type's of medicine Biological, Holistic and Conventional. I have done them all.

The pain I was in was way beyond horrid, my DX is type 2.

I have had a PPO with a secondary the last few years. They have paid for maybe half of my care.
Hugs, Roz

buckwheat 04-16-2009 04:54 PM

Quote:

Originally Posted by buckwheat (Post 496984)
Hi Their,

I want you to know I 100% believe you. Doctor's make money weather they do anything or not. When I am talking about doing nothing, I mean just treating the SX. for us.

It's not just their fault, they have to follow a ABCD order, or they will loose their license. They also have to deal with insurance companies that do not want to pay them.

My the grace of God I am out of pain. My treatments for the last 7 years out of pocket, have been at least 300 hundred thousand.

Hang in their, Much Love, Roz xoxo

On this note, I am talking about Conventional Medicine.

AintSoBad 04-16-2009 07:40 PM

Hello all,
I've had a fairly busy, productive day today. Around lunchtime, I started in with a migraine. It took two pills today, it is still hanging around. Towards dinnertime (which I haven't had yet), I started to get some breakthrough pain. I realized I had "slipped up" on my meds. OK, fair enough, it was a frustrating (Mental stress) day, on the phone with lawyers, etc. and getting nowhere--maybe tomorrow, since I have a court deadline Monday. I laid down for a bit, and dozed off, missing a very important call! Aghhh!

I've been missing out on the "Exercise" corner of the triangle as well. The triangle is becoming the "straight line", to heck.

What I'm saying, is with Physical, Weather, Emotional Stressors, (Life in general), and a slip up on medication, even the most seasoned of us can get thrown "off course".

Roz, "Buckwheat", I have a question for you, I see you started another thread.
I'll post it over there.

Thanks,
and Take Good Care!

Pete
ASB

SandyRI 04-17-2009 08:07 AM

Quote:

Originally Posted by buckwheat (Post 496984)
Hi Their,

I want you to know I 100% believe you. Doctor's make money weather they do anything or not. When I am talking about doing nothing, I mean just treating the SX. for us.

It's not just their fault, they have to follow a ABCD order, or they will loose their license. They also have to deal with insurance companies that do not want to pay them.

My the grace of God I am out of pain. My treatments for the last 7 years out of pocket, have been at least 300 hundred thousand.

Hang in their, Much Love, Roz xoxo

Sorry Roz, I don't buy the BS about a doctor not "being at fault" for the fact that my RSD has spread to my neck and head. I can't even sleep half the time because it hurts too much to lay on my head. The jerk injected me all over with steroids when I was sent to him with probable RSD. What the hell does that have to do with following an ABCD order or dealing with an insurance company that doesn't want to pay? All he had to do was refer me to another doc if he didn't want to look up the right and wrong way to treat RSD. I think this kind of thing probably happens all too often too way too many of us. The damage is done to me, and the RSD has now spread to my hands and feet.

*edit*

buckwheat 04-17-2009 10:19 AM

Dear Sandy,

If I have upset you in anyway I am sorry. I am out of pain, I am still dealing with some Neuro. SX. ( not pain) I believe in time, I will get well from them as well.

I suffered for many years. I am beyond thankful, I am out of pain.

I only came back to help people, I believe the more given, the more is required. I will just stick to my PM's from now on.


Hugs, Roz


All times are GMT -5. The time now is 01:29 AM.

Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.