Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-26-2009, 02:16 PM #9
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nancyinLA nancyinLA is offline
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nancyinLA nancyinLA is offline
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Quote:
Originally Posted by AintSoBad View Post
Get used to it.
Get used to being a "Manager".
Check out the definition.

This is something that we "Manage". We Do Not cure it!
Unless, you're one of those lucky few, who get it right early.

To go back to the beginning,
We are Managers.
WE must manage our lives, our pain, any other lives that intermingle with our own, and any physical activities out of the ordinary, must be managed.
And, we must exercise!
Use it or Lose it!
(Think about that. You get to a point that's so bad, how can you exercise?)
These are the folks I worry about.

The triangle of RSD CARE.

Your Meds

You and your Neurologist > Together, strong communications.


Your Mind / Attitude

You and Your NeuroPsychiatrist (Pain management psych), Strong communications.

Your Body.
EXERCISE. USE IT, OR, LOSE IT!
No matter what!
Get to a warm pool, and walk, walk, walk!
Or, just walk anywhere you can!

Some days, we just "go down" with the pain.
The next day, we've got to Rally!
And, exercise for two days!

Keep Moving!
Don't turn on the TV!
Until you've taken a walk!

Move your ***!

Love to Ya'll,

Pete
AintSoBad
pete - absolutely loved ur message! (so very sorry bout ur personal prob.) but ur such an inspiration! i've had this mess 4 only 17 mos. but i totally agree w/ur triangle of care...... i might even name the 3 parts:
MEDS
Your Group of Treating Physicians
Your Mind/Attitude

thks 2 all of u 4 all the nuggets of advice & SUPPORT! i will keep moving! and i agree - we ARE managers!

have a good wkend.....
__________________
May you always be overwhelmed by the
Grace of God rather than by the cares of life!


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AintSoBad (09-26-2009)
 


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