Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-26-2009, 09:48 PM #1
AintSoBad AintSoBad is offline
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Default How do YOU, Stop the Sweat? / Do you have it?

Last week, I got all my long hair cut OFF!

I look like a Dern Lawyer now! Ugh!
(We can talk for 40%)! Haha, As if! (Never pay more than 25%)

OK, I thought that would help me from the perspiration that exacerbated
the entire condition.
I used to sit in front of the A/C, or, go in my Car, and sit there with it on COLD!
Now that my hair is short, I thought I'd notice a big difference.
NOPE!

Since I've had those dern spider bites, and took steroids the past 2nd week, I took a "luke warm" bath, in Aveeno Oatmeal.
Then a Cool shower, I almost needed shades!
(How cool is that?)

Nope.

My shower was several hours ago.
It's 57 degrees outside, yet, I'm running the air.
Nope.

I'm still sweating, scalp down.

Does anyone get an anti perspirant shampoo from their doc?

Or, how do you treat it?
Does anyone have this problem?

It seems, I just get wet from the roots of my hair!
Agh!
SHUT IT OFF!
(AGGHHHHH, MY BRAIN IS BUSTIN OUT!)

OK, then,
Just wonderin'


Pete
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Old 09-26-2009, 10:02 PM #2
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I don't have any answers for you, Pete. I have the air on me constantly, as long as my left leg and right arm are covered. I have never had a problem with sweating until the RSD came along. Have really long hair and I am so vain about it that I couldn't part with it, so it's always up. I wake up in sweat and my kids make fun of the way I sweat because sometime I wear a bandana on my head around the house, they ask me what gang I'm in that day...very funny! I wish I had an answer.... sorry!

Cindi
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Old 09-26-2009, 11:41 PM #3
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Hi Pete,

You sound like me when I'm having one of my hot flashes. Seriously. I don't mean to be quip about this but have you had your hormones checked? Both men and woman are affected by hormonal deficiencies and declines as we age. Personally I think hormones are at the root of most of our health issues. Have a look at the article on American RSD hope on the importance of adrenal hormone replacement for Intractable pain.

http://www.rsdhope.org/Showpage.asp?...4&PGCT_ID=4227

I have found that my diet changes have helped with this immensely. Oh by the way I couldn't stand any type of cold blowing on me up until this past 6 months, now it seams like I can't stand the heat yet my rsd foot is still on fire with cold burning pain. If people saw how I dressed cold winter clothes for my left side and summer clothes for my right side they would think I was a freak.

Let me know what you think.

Wishing you find good relief.

MsL

Last edited by Mslday; 09-26-2009 at 11:46 PM. Reason: added oh by the way...
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Old 09-27-2009, 12:14 AM #4
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Pete
I believe its all related to the RSD . But Ive noticed that the more im active[not saying your not] the least amount of perperation,,I know that when i get flares or when I lay around alot because of the pain , The more i sweated,,it;d pour out of me,and it stank terrible,,i was always cleaning uder the arms numerous daily,,But the more active i am walking ,aqua jogging, less stressfull days and just trying to preocupy my mind,,helping friends of mine doing auto repairs[supervising],,I dont smell or sweat,,RSD has a terrible inpact on our vasamotors and sudmotors[vascular,blood pooling and sweating] I have found that activity pushes back the sweating/smell problem,,,and as i said,when i layed around alot,,i stink and sweat alot,,theropy/work/anything/pushes back RSD into its cage,,plus my legs looks better,,,I have good days or a week that Im able to stay active ,then i get a pain flare that makes even my legs look terrible,,I lay off the activity,,but ive found that i need to work thru the pain [without being wreckless] and I feel better,,But trust me ,,there is a corralation,,Ive tryed different tests ,even with meds off and on,,they due factor in,,but not like not being active physically a few hrs a day,,and Trust me ,,I dont feel up to it at times,,But i know i have too,and sometiumes its miserable,,but it reaps a huge reward,,im pushing for "YE-OLD" REMISSION,,, and exspecially when were not working and were on a stack of meds,,activity goes out the window,,,I know,,im living it,,but im presently working out and staying active and the stinch with the RSd is receding,,how far? I dont know,,but i want to do my part and get out of this mess,,,God is my refuge and present help in danger{psalms 46:1
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Old 09-27-2009, 09:41 AM #5
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Males who use narcotics for chronic pain, eventually become
hormone suppressed. When testosterone levels fall then a MENopause of sorts happens.

But narcotic pain relievers also cause sweating as a side effect.
And so do antidepressants, and some other drugs as well.

If your blood sugar is bouncing around, you will have terrible sweating. If this occurs after a meal, it is called gustatory sweating and signals you should have a work up for diabetes.

If your thyroid is acting up you may get sweating too.

Many things besides the RSD problem can contribute.

If your sweating is mostly on the head...try a thick terry cloth sweat band..this may help keep it out of your face, etc.
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Old 09-27-2009, 04:15 PM #6
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Thanks for all the help!
I'm fairly certain I have some hormone issues.
Seriously, my tbi, my brain bled (subdural hematoma) was located just adjacent to my brain stem, and I'm certain there are some important glands there, pituitary, etc.
It was after the tbi that this odd sweating started, on my head.
I had the rsd perspiration before, on my hands, feet, if I took off my socks...
I know also, just by the "side effects" that my testosterone is low, I used to use a supplement, it just didn't seem so important after a time.
So, I do have a perscription for some serious blood work, which, may lead to more.
I'll show my doctor your suggestions!

I usually take a luke warm bath, then follow with a cool shower.
I often take some pain meds, (methadone) before I shower. I'm going to start watching what triggers it. It just seems that my pores won't close on my scalp.
So, I'm done with a blow dryer.
And, I usually drink something cold, and even sit in front of the A/C, in an attempt to close my pores.

Thanks for all your great suggestions.

I'd appreciate any more, and let ya'll know how this works out...

love to all,

pete
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Old 09-27-2009, 05:50 PM #7
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Quote:
Originally Posted by AintSoBad View Post
Thanks for all the help!
I'm fairly certain I have some hormone issues.
Seriously, my tbi, my brain bled (subdural hematoma) was located just adjacent to my brain stem, and I'm certain there are some important glands there, pituitary, etc.
It was after the tbi that this odd sweating started, on my head.
I had the rsd perspiration before, on my hands, feet, if I took off my socks...
I know also, just by the "side effects" that my testosterone is low, I used to use a supplement, it just didn't seem so important after a time.
So, I do have a perscription for some serious blood work, which, may lead to more.
I'll show my doctor your suggestions!

I usually take a luke warm bath, then follow with a cool shower.
I often take some pain meds, (methadone) before I shower. I'm going to start watching what triggers it. It just seems that my pores won't close on my scalp.
So, I'm done with a blow dryer.
And, I usually drink something cold, and even sit in front of the A/C, in an attempt to close my pores.

Thanks for all your great suggestions.

I'd appreciate any more, and let ya'll know how this works out...

love to all,

pete
Hi Pete,
I also have excess sweating that is annoying. I use fans, ceiling and floor fans in addition to our air condition. We live in Arizona, so the summers are pretty miserable.
I've read on one of the rsd web sites about sweating. Actually it is the rsdrx.com site and then under that site look at puzzles, which are questions written in to Dr. Hooshmand, now retired, and his answers. There are 3 main manifestations of rsd-1) control of temperature, 2) vital signs, 3)modulation of immune system.
As for a solution, I don't know, but will write down the question for my Dr. on next visit and will post if I find any answers.
I also take a cool shower, anything warm is not good. It's still over a 100 here in the desert. Should be bearable temp. in a couple of weeks. Take care, your friend, loretta
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Old 09-27-2009, 09:45 PM #8
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Default Hi Pete,

The only thing different with me and Cindi is that I don't wear a bandana. I could have been the one writing what she wrote otherwise.

I do believe it's from the RSD. I didn't sweat like I do now before the RSD. I am not on any narcotics right now. I only use them when the RSD pain kicks in so I don't blame it on them.

I keep a fan going at the foot of my bed at night, even with the heat on in the wintertime and do keep my feet and legs covered at all times.

In the winter I can wear my hair down though. That's the only way I can enjoy it being long.

You are not sweating this out alone. You only hope that your deoderant holds up all day if you are around people.

Ada

Ada
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Old 09-28-2009, 12:57 AM #9
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Pete
If your testosterone level is low,,that alone will make us sluggish,,I knew a 19 year old male auto mechanic that had a very low tes level,,he was tired all the time and didnt feel like doing much,he was a good kid and an excellent mechanic ,,but no spunk,,,his dr put him on a andro patch,,,,did the trick,,,not that you need it,,ive used some cream[testosterone ],,that my wife had a few years ago,,I didnt need it but was curuios,,It works,,I was alot more agressive at work and play,Either way movement is a good thing for rsd,,,,,good luck pete,,,,,,,bobber,,,,Like we need another med to stack,,LOL,,,,,,,ps,,If your blood tes level is low,,you automatically qualify and can get the booster patch
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Old 09-28-2009, 01:22 AM #10
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hey pete

what i was told by my doc. and i noticed my self that clonidine will help with the sweating because it works with the sympathetic system and i had to stop takin it due to my low very low bp.. but as soon as i stopped it.. the sweating is unnerving to say the least.. have you tried this med?

other wise i have no ideas how to make it go away... i have the same problem that you do.. my house stays about 68 degrees. no mater what time of year it is. and im either burning up or freezing.. drives me insane
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