Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-15-2009, 08:41 PM #1
kilikina kilikina is offline
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Confused Need Ultralight wheelchair

I need to get an ultralight wheelchair (25 to 27 pounds) but my insurance company will only rent a "regular" wheelchair for me. I purchased a used one on eBay but it is not fit for me and is heavier than I would like. Any suggestions?
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Old 04-16-2009, 09:22 AM #2
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could u put out a notice in any local papers or to community support groups for help in locating what u need? even do an interview with a paper xplaining ur situation?? groups like the Lions, United Way etc. mite be of help. sometimes if u let people know of ur need they can rise to the occasion and embrace the opportunity to be of service. best of luck
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Old 04-16-2009, 09:41 AM #3
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we also have our own classified forum here where you can post a want ad or check if anyone has one available

http://neurotalk.psychcentral.com/forum55.html
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Old 04-16-2009, 10:49 AM #4
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Try finding one with a titanium frame. These are really lightweight. I can think of a few brands that are well known, like Quickie models from Sunrise Medical, or models from Invacare.

My mother couldn't handle the heavy frame of a normal wheelchair, she has osteoporosis, so we had to get a light frame for me. Even my dad struggled with the heavy chair. Besides, my parents who care for me are in their sixties. Since it's only approved for people with paralysis in the lower limbs here, I didn't get a penny. Never mind the circumstances!

Be sure that your arms can take it wheeling it yourself, because these light weight titanium models are designed for self handling. I wouldn't recommend it if you have RSD, even if your arms ar "clear". Besides, you need to have enough upper body strength to wheel your own weight + the weight of the chair. I know I can't do it! I had handles made onto my chair because of that. Even then, it's not a chair to go out into the open with. Forget that! It's nice enough indoors and on really flat surfaces, but the sidewalks and the roads are brutal for such a light frame!

If you think your wheelchair will get you places just like your limbs did, forget it!

If you can, get an electronic model or a disability scooter, that's so much more towards your own mobility!
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Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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Old 04-17-2009, 01:19 PM #5
daniella daniella is offline
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My gramps has an electric scooter which he was going to give me one but for me it was not the right thing. Anyhow he really gets around so fast in it and goes through entire airports and takes it on trips. He said you can attach it to the back of your car with a small attatchment but I also have seen him take it apart to put in his car. I am not sure the expense on this though but was thinking is there a way you can appeal the insurance for something like this?This may be stupid thought but would craigslist have items like this? I thought I saw one at Costco though it may be not a good model. Good luck in finding what meets your needs.
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