Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-16-2009, 09:27 AM #1
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Default Dental Work and RSD

I had a horrible dentist appointment yesterday. I had one of my bottom teeth capped a few years ago and then root canaled. I had been having this horrible taste in my mouth on that side, and yesterday they found that the tooth is totally decaying under the cap, which is forcing the cap loose. The only thing holding the tooth together is the cap, and that could come off at any time. The tooth needs to come out. I am fearful of this on two levels. One...RSD. I developed this after foot surgery in August 07, and after MANY treatments, meds, PT, etc., I have FINALLY broke free from the grips of it (I only have very mild issues which are not even worth complaining about at this point, and I'm sure they will resolve over time, as the rest of it has--hopefully). So my body does not do well with surgery. Two... about a year ago the doctor had me on oral Fosomax and then Boniva for osteopenia, which I was only on for probably 3-4 months at the most when I decided to take myself off because I didn't like the risks of osteonecrosis of the jaw, and being that I'm only 38, the risk of needing dental work at some point is high. But I hear these can stay in your system for 10 years. I also find it curious that the tooth decayed so quickly. Last time they x-rayed it--I think in Oct.--it was FINE. Now it's a mess. Is this a side effect of meds (or nerve blocks, etc.)? Are there other options for having the tooth removed? I suppose not, I can't leave a rotting tooth in there. I will definately plan to let the oral surgeon know about this, and I've found the best one I can. But are there preventative measures that can be taken to prevent problems after oral surgery? UGHH! Not happy.
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Old 04-16-2009, 09:49 AM #2
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hi, a few years back i had a similar situation, in a crazy short period of time my teeth began to deteriorate, xtractions were needed and many many caps. in researching i discovered that the few years i'd been on copious meds they mite have undermined the building codes for dental strength; they also create acid in the gut which eats away at tooth enamal, as does 'dry mouth'. additionally, rsd impacts bone, teeth included. at that time i was also dealing with tmj, very nervous the dental work would pop the bones outa place, ouch!

on the UP side, with very good dentists who didnt mess up the nerve areas none of the work done aggravated my system. i even found dental surgeon familiar with rsd so felt in safe hands when having the xtractions.

best of luck
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Old 04-16-2009, 11:30 AM #3
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Which meds do they believe were related to the deterioration?
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Old 04-17-2009, 08:13 AM #4
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I have read somwhere that teeth problems are actually, or can be , directly related to the RSD as another issue of the disease. I have lost two and have had seven crumble to the point of need to be cut out, as is my plan when I get my SSD. I will have to work with my pain center so maybe I can find an oral sergion that knows about RSD, and I want them yanked out while I am asleep. They have only been a source of extra pain for the last 2 1/2 years, but I too am curious about the teeth issues.
Curious Members,
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Old 04-17-2009, 09:10 AM #5
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I like Curious members.

sorry...tjbird....couldn't help myself...
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Old 04-17-2009, 10:46 AM #6
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Cute! I got a chuckle, Curious.
Sorry slipped with the Debbie Title....Millerprof and Tjbird....RSD Brain..sorry
I have teeth problems too as said before, RSD, dry mouth from meds and biting or chewing my teeth from pain. I had to have a few extracted. I am still biting and chewing from the pain. The dentist gave me a mouth guard, but it makes me gag. Good luck hon!

Last edited by DianaA; 04-17-2009 at 10:49 AM. Reason: Wrong name on subject or title
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Old 04-17-2009, 05:09 PM #7
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Quote:
Originally Posted by Millerprof View Post
Which meds do they believe were related to the deterioration?
sorry i dont recal specifics kiddo, to some degree all the pharms' we try for rsd tend to have toxic aspects when put into a human body. considering that rsd softens bones, changes nails etc. its no surprise it gets a handle on teeth. it was all rather sudden and as u mentioned, from one xray to the next a few months later decay had set in. and i'm a very obsessed kinda gal about my teeth, have been known as 'farah flossit' cause i like my teeth clean! but please know i have not had further issues with them since all the work was done, tho i also take no pharms, think i was still taking adivan at that time, which was causing the dry mouth.

as long as u r well frozen and the dentist has a good record of NOT aggravating nerves its probably one of the better odds at not causing u additional issues. personally i find face pain xtremely challenging to get a handle on, so i'd hi tail it back to a dentist if i absolutely had to.

if u can, focus on a positive outcome, breathe and run an internal conversation that all will resolve in ur best interest and speak ur anxiety to the dentist, enroll him in empowering u for success.

best wishes
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Old 04-20-2009, 09:40 AM #8
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Originally Posted by miatri View Post
sorry i dont recal specifics kiddo, to some degree all the pharms' we try for rsd tend to have toxic aspects when put into a human body. considering that rsd softens bones, changes nails etc. its no surprise it gets a handle on teeth. it was all rather sudden and as u mentioned, from one xray to the next a few months later decay had set in. and i'm a very obsessed kinda gal about my teeth, have been known as 'farah flossit' cause i like my teeth clean! but please know i have not had further issues with them since all the work was done, tho i also take no pharms, think i was still taking adivan at that time, which was causing the dry mouth.

as long as u r well frozen and the dentist has a good record of NOT aggravating nerves its probably one of the better odds at not causing u additional issues. personally i find face pain xtremely challenging to get a handle on, so i'd hi tail it back to a dentist if i absolutely had to.

if u can, focus on a positive outcome, breathe and run an internal conversation that all will resolve in ur best interest and speak ur anxiety to the dentist, enroll him in empowering u for success.

best wishes
Thank you!
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Old 04-20-2009, 05:43 PM #9
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Which meds do they believe were related to the deterioration?
hi, i just heard a commercial from a dental office mentioning that meds which cause dry mouth inhibit the bodys normal antibacterial activity which then leaves the mouth unable to eliminate germ buildup. they also said it occurs very quickly, certainly my xpereience. there r mouth washes which can help generate the necessary cleansing of the mouth.

ask ur pharmacist about the side effects of ur meds if u r not sure u have dry mouth issues.

all the best
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Old 04-20-2009, 06:03 PM #10
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Quote:
Originally Posted by Millerprof View Post
I had a horrible dentist appointment yesterday. I had one of my bottom teeth capped a few years ago and then root canaled. I had been having this horrible taste in my mouth on that side, and yesterday they found that the tooth is totally decaying under the cap, which is forcing the cap loose. The only thing holding the tooth together is the cap, and that could come off at any time. The tooth needs to come out. I am fearful of this on two levels. One...RSD. I developed this after foot surgery in August 07, and after MANY treatments, meds, PT, etc., I have FINALLY broke free from the grips of it (I only have very mild issues which are not even worth complaining about at this point, and I'm sure they will resolve over time, as the rest of it has--hopefully). So my body does not do well with surgery. Two... about a year ago the doctor had me on oral Fosomax and then Boniva for osteopenia, which I was only on for probably 3-4 months at the most when I decided to take myself off because I didn't like the risks of osteonecrosis of the jaw, and being that I'm only 38, the risk of needing dental work at some point is high. But I hear these can stay in your system for 10 years. I also find it curious that the tooth decayed so quickly. Last time they x-rayed it--I think in Oct.--it was FINE. Now it's a mess. Is this a side effect of meds (or nerve blocks, etc.)? Are there other options for having the tooth removed? I suppose not, I can't leave a rotting tooth in there. I will definately plan to let the oral surgeon know about this, and I've found the best one I can. But are there preventative measures that can be taken to prevent problems after oral surgery? UGHH! Not happy.
not sure if you have asked this on the dental forum here as well. Bryanna may have some insight for you

http://neurotalk.psychcentral.com/forum89.html
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